Pages that link to "Q53368757"
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The following pages link to Informing study participants of research results: an ethical imperative. (Q53368757):
Displaying 50 items.
- "Who owns your poop?": insights regarding the intersection of human microbiome research and the ELSI aspects of biobanking and related studies (Q21202161) (← links)
- A randomised controlled trial to assess the effectiveness of offering study results as an incentive to increase response rates to postal questionnaires [ISRCTN26118436]. (Q24815826) (← links)
- Environmental Research Translation: enhancing interactions with communities at contaminated sites (Q28395372) (← links)
- Sharing the Knowledge: Sharing Aggregate Genomic Findings with Research Participants in Developing Countries (Q28608112) (← links)
- Offering aggregate results to participants in genomic research: opportunities and challenges (Q28709472) (← links)
- Recommendations for the return of research results to study participants and guardians: a report from the Children's Oncology Group (Q28710366) (← links)
- Post-genomic clinical trials: the perspective of ACGT (Q28741720) (← links)
- Subjects' views of obligations to ensure post-trial access to drugs, care and information: qualitative results from the Experiences of Participants in Clinical Trials (EPIC) study. (Q30498252) (← links)
- Not so simple: a quasi-experimental study of how researchers adjudicate genetic research results (Q30502503) (← links)
- Feedback reporting of survey data to healthcare aides (Q30565332) (← links)
- When research seems like clinical care: a qualitative study of the communication of individual cancer genetic research results (Q33320883) (← links)
- Communicating the results of clinical research to participants: attitudes, practices, and future directions (Q33334605) (← links)
- Sharing data and results with study participants: report on a survey of cultural anthropologists (Q33433635) (← links)
- Sharing Data and Results in Ethnographic Research: Why This Should not be an Ethical Imperative (Q33433649) (← links)
- Ethics of neuroimaging after serious brain injury (Q33652268) (← links)
- Considerations for designing a prototype genetic test for use in translational research (Q33724840) (← links)
- Prospective biorepository participants' perspectives on access to research results (Q33941167) (← links)
- Biobank participants' preferences for disclosure of genetic research results: perspectives from the OurGenes, OurHealth, OurCommunity project (Q34106590) (← links)
- Estimating and disclosing the risk of developing Alzheimer‘s disease: challenges, controversies and future directions (Q34135724) (← links)
- Procedural misconceptions and informed consent: insights from empirical research on the clinical trials industry (Q34186870) (← links)
- Managing incidental findings and research results in genomic research involving biobanks and archived data sets (Q34205284) (← links)
- Receiving a summary of the results of a trial: qualitative study of participants' views (Q34315615) (← links)
- Participants' preference for type of leaflet used to feed back the results of a randomised trial: a survey. (Q34408320) (← links)
- Approaches to informed consent for hypothesis-testing and hypothesis-generating clinical genomics research (Q34436672) (← links)
- Sharing Unexpected Biomarker Results with Study Participants (Q34478432) (← links)
- Preferences regarding genetic research results: comparing veterans and nonveterans responses (Q34515650) (← links)
- Reciprocity-based reasons for benefiting research participants: most fail, the most plausible is problematic (Q34556648) (← links)
- Disclosing individual genetic results to research participants (Q34579296) (← links)
- Attitudes of African-American parents about biobank participation and return of results for themselves and their children (Q34663288) (← links)
- Ethical, legal, and social implications of biobanks for genetics research (Q34763998) (← links)
- Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group (Q34960621) (← links)
- Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium (Q34960752) (← links)
- Ethical Issues in Developing Pharmacogenetic Research Partnerships With American Indigenous Communities (Q34961325) (← links)
- Reasons Why Post-Trial Access to Trial Drugs Should, or Need not be Ensured to Research Participants: A Systematic Review (Q35097682) (← links)
- A post-trial survey to assess the impact of dissemination of results and unmasking on participants in a 13-year randomised controlled trial on age-related cataract (Q35105582) (← links)
- Opinions and intentions of parents of an autistic child toward genetic research results: two typical profiles (Q35406095) (← links)
- Informed consent in genomics and genetic research (Q35551797) (← links)
- Public Perspectives on Returning Genetics and Genomics Research Results (Q35564757) (← links)
- Disseminating results: community response and input on Kisumu breastfeeding study (Q35650104) (← links)
- Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility (Q35791516) (← links)
- Communication of pharmacogenetic research results to HIV-infected treated patients: standpoints of professionals and patients (Q35793287) (← links)
- Acknowledging awareness: informing families of individual research results for patients in the vegetative state (Q35891798) (← links)
- Community engagement in epidemiological research (Q35995956) (← links)
- One thing leads to another: the cascade of obligations when researchers report genetic research results to study participants (Q36105210) (← links)
- Researcher Perspectives on Disclosure of Incidental Findings in Genetic Research (Q36145902) (← links)
- Perceptions of Research Bronchoscopy in Malawian Adults with Pulmonary Tuberculosis: A Cross-Sectional Study (Q36177235) (← links)
- Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families (Q36197067) (← links)
- How do patients want to learn of results of clinical trials? A survey of 1431 breast cancer patients. (Q36608857) (← links)
- Ethics of future disclosure of individual risk information in a genetic cohort study: a survey of donor preferences (Q36632066) (← links)
- When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority (Q36775822) (← links)