Public attitudes regarding the use of residual newborn screening specimens for research (Q35715208)

9 August 2017

title

Public attitudes regarding the use of residual newborn screening specimens for research (English)

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9 August 2017

1

Jeffrey R Botkin

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9 August 2017

Erin Rothwell

2

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9 August 2017

Rebecca Anderson

3

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9 August 2017

Louisa Stark

4

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9 August 2017

Aaron Goldenberg

5

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9 August 2017

Michelle Lewis

6

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9 August 2017

Matthew Burbank

7

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9 August 2017

Bob Wong

8

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9 August 2017

language of work or name

English

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publication date

16 January 2012

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9 August 2017

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9 August 2017

volume

129

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9 August 2017

issue

2

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9 August 2017

page(s)

231-238

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Storage and use of residual dried blood spots from state newborn screening programs

9 August 2017

cites work

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3269111

Completeness and complexity of information available to parents from newborn-screening programs

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3269111

Methodology of a multistate study of congenital hearing loss: preliminary data from Utah newborn screening

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3269111

Web surveys: a review of issues and approaches

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3269111

Seroprevalence of human immunodeficiency virus among childbearing women. Estimation by testing samples of blood from newborns

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3269111

Pilot study for utilization of dried blood spots for screening of lead, mercury and cadmium in newborns

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3269111

An Evaluation of the Use of Dried Blood Spots from Newborn Screening for Monitoring the Prevalence of Cocaine Use among Childbearing Women

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3269111

Newborn blood collections. Science gold mine, ethical minefield

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3269111

Serving the family from birth to the medical home. Newborn screening: a blueprint for the future - a call for a national agenda on state newborn screening programs

25 September 2018

1 reference

12 December 2020

Recommendations for effective newborn screening communication: results of focus groups with parents, providers, and experts

1 reference

12 December 2020

Concerns of Newborn Blood Screening Advisory Committee Members Regarding Storage and Use of Residual Newborn Screening Blood Spots

1 reference

12 December 2020

Committee report: Considerations and recommendations for national guidance regarding the retention and use of residual dried blood spot specimens after newborn screening

1 reference

12 December 2020

Parents' decision-making in newborn screening: opinions, choices, and information needs

1 reference

12 December 2020

Not without my permission: parents' willingness to permit use of newborn screening samples for research

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12 December 2020

Identifiers

DOI

10.1542/PEDS.2011-0970

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9 August 2017

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9 August 2017

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