Returning findings within longitudinal cohort studies: the 1958 birth cohort as an exemplar (Q34040535)

30 July 2017

title

Returning findings within longitudinal cohort studies: the 1958 birth cohort as an exemplar (English)

1 reference

30 July 2017

1 reference

Neil M Walker

2

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Jane Elliott

series ordinal

3

object named as

Jane Elliott

1 reference

30 July 2017

Susan E Wallace

1

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30 July 2017

publication date

4 August 2014

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Emerging Themes in Epidemiology

30 July 2017

published in

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30 July 2017

volume

11

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30 July 2017

page(s)

10

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Dynamic consent: a patient interface for twenty-first century research networks

30 July 2017

cites work

1 reference

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Managing clinically significant findings in research: the UK10K example

5 July 2018

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Enhancing systems medicine beyond genotype data by dynamic patient signatures: having information and using it too

5 July 2018

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ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

5 July 2018

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Best practice guidelines for the use of next-generation sequencing applications in genome diagnostics: a national collaborative study of Dutch genome diagnostic laboratories

5 July 2018

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Clinical genomic database

5 July 2018

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Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?

5 July 2018

1 reference

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Weighting of the data and analytical approaches may account for differences in overcoming the inadequate representativeness of the respondents to the third wave of a cohort study

5 July 2018

1 reference

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A public resource facilitating clinical use of genomes

5 July 2018

1 reference

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Population studies: return of research results and incidental findings Policy Statement

5 July 2018

1 reference

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Managing incidental findings and research results in genomic research involving biobanks and archived data sets

5 July 2018

1 reference

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Exploring concordance and discordance for return of incidental findings from clinical sequencing

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4131774

Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network

5 July 2018

1 reference

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Practical implementation issues and challenges for biobanks in the return of individual research results

5 July 2018

1 reference

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Hearing in 44–45 year olds with m.1555A>G, a genetic mutation predisposing to aminoglycoside-induced deafness: a population based cohort study

5 July 2018

1 reference

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Incidental findings on computed tomography scans for acute appendicitis: prevalence, costs, and outcome

5 July 2018

1 reference

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Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4131774

Dense genotyping identifies and localizes multiple common and rare variant association signals in celiac disease

5 July 2018

1 reference

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Population biobanks and returning individual research results: mission impossible or new directions?

5 July 2018

1 reference

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Charting a course for genomic medicine from base pairs to bedside

5 July 2018

1 reference

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Disclosing individual CDKN2A research results to melanoma survivors: interest, impact, and demands on researchers

5 July 2018

1 reference

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Research ethics. Research practice and participant preferences: the growing gulf.

5 July 2018

1 reference

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Misunderstandings concerning genetics among patients confronting genetic disease

5 July 2018

1 reference

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Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of results

5 July 2018

1 reference

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Public expectations for return of results from large-cohort genetic research

5 July 2018

1 reference

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Research ethics recommendations for whole-genome research: consensus statement

5 July 2018

1 reference

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Disclosing individual genetic results to research participants

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4131774

Informed consent for genetic research on blood stored for more than a decade: a population based study

5 July 2018

1 reference

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The Needle in the Haystack: International Consortia and the Return of Individual Research Results

5 July 2018

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Study newsletters, community and ethics advisory boards, and focus group discussions provide ongoing feedback for a large biobank

28 October 2018

1 reference

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Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time

28 October 2018

1 reference

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Familial hypercholesterolaemia: summary of NICE guidance

28 October 2018

1 reference

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28 October 2018

Identifiers

DOI

10.1186/1742-7622-11-10

1 reference

Dimensions Publication ID

30 July 2017

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1 reference

30 July 2017

1 reference