Big Data in medical research and EU data protection law: challenges to the consent or anonymise approach (Q31020801)

19 August 2017

Big Data in medical research and EU data protection law: challenges to the consent or anonymise approach (English)

1 reference

inferred from citation network

19 August 2017

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1 reference

2

Annelien L Bredenoord

1 reference

19 August 2017

4

Johannes J M van Delden

1 reference

19 August 2017

Menno Mostert

1

1 reference

19 August 2017

Monique C I H Biesaart

series ordinal

3

1 reference

19 August 2017

language of work or name

English

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publication date

11 November 2015

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European Journal of Human Genetics

19 August 2017

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19 August 2017

24

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19 August 2017

7

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19 August 2017

956-960

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Will the trilogue on the EU Data Protection Regulation recognise the importance of health research?

19 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Open consent, biobanking and data protection law: can open consent be 'informed' under the forthcoming data protection regulation?

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Commentary: Epidemiology in the era of big data

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Big data and clinicians: a review on the state of the science

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Dynamic consent: a possible solution to improve patient confidence and trust in how electronic patient records are used in medical research

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

DataSHIELD: an ethically robust solution to multiple-site individual-level data analysis

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

BBMRI-ERIC as a resource for pharmaceutical and life science industries: the development of biobank-based Expert Centres

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

DataSHIELD: taking the analysis to the data, not the data to the analysis

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

International Charter of principles for sharing bio-specimens and data

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Policy: EU data protection regulation--harming cancer research

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Open access data sharing in genomic research

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

The promotion of data sharing in pharmacoepidemiology

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

International ethics harmonization and the global alliance for genomics and health

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Finding the missing link for big biomedical data

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

The European Parliament proposal for the new EU General Data Protection Regulation may severely restrict European epidemiological research

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Dynamic consent: a patient interface for twenty-first century research networks

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Protecting personal data in epidemiological research: DataSHIELD and UK law.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Delivering proportionate governance in the era of eHealth: Making linkage and privacy work together

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

New data protection rules could harm research, science groups say.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Health research and systems' governance are at risk: should the right to data protection override health?

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

21 June 2018

Big data in biomedicine

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Biology: The big challenges of big data

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

"Big data" versus "big brother": on the appropriate use of large-scale data collections in pediatrics

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Identifying personal genomes by surname inference

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Social networks, web-based tools and diseases: implications for biomedical research

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Rhetoric or reality: what is the legal status of the consent form in health-related research?

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Mining electronic health records: towards better research applications and clinical care

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

From patients to partners: participant-centric initiatives in biomedical research

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Sampling Populations of Humans Across the World: ELSI Issues

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

The Tension Between Data Sharing and the Protection of Privacy in Genomics Research

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

In defense of broad consent.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Consent forms in genomics: the difference between law and practice

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

From single biobanks to international networks: developing e-governance

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

DataSHIELD: resolving a conflict in contemporary bioscience--performing a pooled analysis of individual-level data without sharing the data

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Informed consent in genomics and genetic research

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Assessing the privacy risks of data sharing in genomics

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

"Broad" consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Stewardship of human biospecimens, DNA, genotype, and clinical data in the GWAS era.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Research ethics and the challenge of whole-genome sequencing

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

The uneasy ethical and legal underpinnings of large-scale genomic biobanks

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Towards an appropriate privacy regime for medical data research.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5070890

Proposed EU data protection regulation is a threat to medical research

21 June 2018

1 reference

https://api.crossref.org/works/10.1038/EJHG.2015.239

Data protection and consent to biomedical research: a step forward?

21 January 2018

1 reference

https://api.crossref.org/works/10.1038/EJHG.2015.239

UK biobank data: come and get it.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038/EJHG.2015.239

Risks of the new EU Data Protection Regulation: an ESMO position paper endorsed by the European oncology community.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038/EJHG.2015.239

Reconsidering the value of consent in biobank research.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038/EJHG.2015.239

Research ethics. The complexities of genomic identifiability

21 January 2018

1 reference

https://api.crossref.org/works/10.1038/EJHG.2015.239

A solidarity-based approach to the governance of research biobanks

21 January 2018

1 reference

https://api.crossref.org/works/10.1038/EJHG.2015.239

Consent Forms in Genomics: The Difference between Law and Practice

21 January 2018

1 reference

https://api.crossref.org/works/10.1038/EJHG.2015.239

Biobanks, consent and claims of consensus

21 January 2018

1 reference

https://api.crossref.org/works/10.1038/EJHG.2015.239

Genetic Privacy: A Challenge to Medico-Legal Norms

21 January 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/26554881

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Eu Cross-border Healthcare and Health Law

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/26554881

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1038/EJHG.2015.239

1 reference

Dimensions Publication ID

19 August 2017

0 references

1 reference

19 August 2017

PubMed publication ID

26554881

1 reference