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Jam Fool

@briarpatch-kids

Call me Briar! 31 they/them, transmasc-ish and happily married. thembo rights, Dirt Selkie and wheelchair user
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Hello! I'm Briar and here are the basics! (Last updated August 2023)

  • My blog is kind of a messy space like the rest of my life, so there's a lot here.
  • I mainly post about my garden, fiber arts, sewing, canning, the cat, the ducks, and disability topics.
  • I'm a full time wheelchair user and ventilator user with mitochondrial disease. I have a little less than half the energy I'm supposed to and that causes a lot of issues.
  • My health is super variable because of the above. If I overdo it or get sick Bad Things Happen and I've been told by my doctor I should look at flares in terms of weeks to months rather than day to day.
  • If you want to use any of my photos or video for a stimboard or moodboard, just tag me or send it to me so I can see your art!

BUSINESS STUFF

Commissions are permanently closed due to declining health

Moral stuff

  • This is a trans and ace inclusive space. Don't play those games or I'll block you.
  • I have friends here who are intellectually disabled and proud of it. If you're mean to someone for their typing or asking a question that can easily be googled I will call you out on it. Same goes for ableism of any other kind.
  • This is an anti racist and anti facist space. Black Lives Matter.
  • Please don't drag me into fanfiction stuff. I don't read it, I don't really involve myself in fandom, I've never been on Ao3. Just don't be a creep and write nsfw stories about kids or real living people. It's gross okay?
  • I say queer. I won't tag it, I won't stop saying it, it's part of my identity, don't ask unless you want a rant about it.

Communication

  • My anons are on and I really appreciate people letting me know when I say something inappropriate or short sighted. I'm on the autism spectrum and working really hard to grow as a person so feedback is a good thing!
  • I also love it when anons and such tell me fun facts or talk about their day if it was interesting or whatever.
  • I generally try to answer DMs and asks as soon as possible but sometimes they get lost. If I haven't after a few days, please don't assume it's because I don't like you or whatever. It's because I didn't have the social energy and put it off, then my memory sucks so I've forgotten or it didn't go through so you're welcome to send it again.
  • I don't have the energy for group chats, I'm sorry. I want to, but I inevitably burn out my social energy in a week and then ghost and feel bad about it.
  • I've had a pretty variable disability experience because I went from able bodied and capable of running miles to a full time wheelchair user who needs assistance with every day tasks slowly over 7 years. I'm happy to answer most good faith questions about disability, mobility aids, and the like.
  • Anyone is welcome to ask for a plain language explanation of something. I will not be rude or snarky about it if you want an easy to understand answer.
  • I don't reblog funding requests, I'm sorry. I'm disabled and trans and so are most of my friends so I see one every fourth post and it's really rough on my mental health. I have a small budget that I use to donate when I'm able to instead.
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Seizing the Opportunity

You ever feel like your whole life came together to coalesce into one perfect moment?

(and yes I did repay his kindness in bringing us lunch during my recovery by slamming him with a once in a lifetime joke)

[Image Description - Comic, Six Panels. Panel 1: Robin is seated on the couch, looking tired, a blanket over her lap and a game controller in her hand. A burger sits on a wrapper next to her. Her spouse and a friend stand farther back by a counter eating a burger and fries. Robin speaks “Thanks for the lunch.” The friend replies, “ Any time. Is it alright if I ask what kind of surgery it was?” Panel 2: The screen of the TV where Robin is playing Dark Souls. She speaks from off panel, “Oh, it’s fine. I had an orchiectomy.” The friend asks, “What’s that?” Panel 3: Robin, grins and says “It’s sometimes called a bofa-ectomy.” Panel 4: Her friend looks puzzled and says “I still don’t…” Panel 5: Robin sits up and leans slightly forward, excitement in her eyes as her friend continues, “What’s a bofa-ectomy?” Panel 6: Robin raises her hands, eyes filled with starry excitement and a huge smile on her face as she takes a deep breath. SFX: INHALE]

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Hey! I just wanted to say that costco next currently has an adaptive clothing line. it seems to just be magnet stuff. the brand is called magnaready. i think it’s pretty affordable as far as adaptive clothing goes? it’s around 40$ for a button up. there’s also a fair bit of more feminine clothing for around 20$

I do see some stuff for wheel chair users too!

I don’t have any sort of following, and it seems like you have a fair few disabled people following you, so sending an ask seems like the best way to tell people.

Btw, costco next is a part of costco where if you have a membership they partner with brands to give you more limited selection, but at heavily discounted prices. I got some nice flatware for about half price, and a good rain coat too using costco next.

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Thats pretty cool! Target also has a pretty decent adaptive clothing line, the one local to me also carries Billy Footwear which are the zipper shoes I wear.

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executive dysfunction tips! It gets easier to do a task if you dress appropriately first!! It’s much easier to get started once you’re wearing the right clothes for the headspace. For example if you need to clean your room, try putting on a maid dress! If you need to make dinner, try putting on a maid dress! If you need to accept visitors, try putting on a maid dress! If you need to poison the tea that will be served to your mistress’ esteemed guests in an effort to ensure her suitors never take your mistress’ hand from you, try putting on a-

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I think all wheelchair users should get to steal one set of kneecaps from a pedestrian with zero consequences for every 1000 hours they spend in a wheelchair. Like a punch card or something. People who walk are entirely too comfortable sharing their opinions and I think kneecap theft could change that for the better.

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wheelie-sick

people way underestimate the needs of wheelchair users.

there's a lot of what I'll call walkism (bias towards pedestrians and against wheelchair users) among disabled pedestrians (people who primarily walk, assisted or not, as their means of mobility)

diminishing our needs is walkism.

people within the community see us as ableds minus legs. they see our disabilities as simple- just can't walk, it's that easy. they see us as having low accommodation needs and as having the accommodations that we do need met. they see our access barriers as being as simple as ramps and curb cuts.

Something I wish "clicked" with a lot of occasional or part time wheelchair users is that obligatory wheelchair users don't have the choice to leave their chair at home when the terrain sucks or it's wet outside or whatever. I still remember a post where someone was asking how to manage keeping their legs dry in the rain because they had to choose to "suffer" walking instead because they couldn't tolerate having wet legs. And like, while the OP was not wrong for wanting to be dry, obligatory wheelchair users just have to deal with it and either have wet legs or never leave the house in the rain. We can't choose to walk even if it hurts and is hard to navigate in a wheelchair, we *have* to use our wheelchairs if we want to do the thing. It doesn't matter how bad it hurts or how hard it is to navigate those hills, we can't decide to walk it.

I'm not saying they're not trying hard enough or giving up or whatever ableist crap people give ambulatory and occasional wheelchair users, I'm glad they use their wheelchair to live a fuller life, I'm just asking people to remember that not everyone gets to make that choice.

(Using obligatory wheelchair user instead of "non ambulatory" because sometimes people are what I call "part time pedestrians" and still mildly ambulatory, but can't leave the house or do their ADLs without a chair. They deal with a lot of the same problems completely non ambulatory wheelchair users do.)

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