University College London Hospitals NHS Foundation Trust’s Post

“It’s easy to send off samples and the test will help protect patients in the future.” Nurses can now offer extended blood group testing to anyone with #sicklecell and thalassaemia. Bernadette is UCLH’s lead haemoglobinopathy clinical nurse specialist and just one of many nurses being encouraged by NHS Blood and Transplant to offer the test to their patients. Learn more here: https://buff.ly/4c5pSDx

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⚠️ Unsafe care? Unsatisfactory investigation? 25 year old Gaia died in UCLH of unexplained acute encephalopathy at in 2021. 🚨No ammonia test done in A&E 🚨No ammonia test done on acute med ward 🚨No ammonia test in UCLH investigation 619 Diagnosis: suspected high ammonia crisis due to urea cycle disorder - fatal first presentation in fit adult female. Patient safety at risk Dorit Young respectfully asks please review UCLH investigation 619 - unsafe care risk. 👇 David Probert Responsible Officer Prof Anthony Mundy Simon Porter Dr Simon Heales Dr Robin Lachmann Dr Gisela Wilcox Dr Stephen Waldek Dr ardeshir monavari Dr Johannes Häberle Dr Anupam Chakrapani Dr Carlo Dionisi-Vici Journal of Inherited Metabolic Disease Dr John O'Sullivan Andrea Gropman Dr Wycliffe Mbagaya FRCPE FRCPath Antonio Ochoa-Ferraro Kirsty Hoyle Jim Down Mervyn Singer https://truthforgaia.com/wp-content/uploads/2023/01/si619-report-updated-feb-22.

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