The Aortic Dissection Charitable Trust’s Post

Did you know, #OperationSmile is currently carrrying out medical research to find out what causes #cleft conditions? This project, known as the International Family Study (IFS), is led by our academic partners at the University of Southern California and Children’s Hospital Los Angeles (CHLA). With the knowledge gained from research, we can influence global health systems and health policy as well as improve care for our patients. Read more about this work here https://loom.ly/4JKMO6I

This Issue contains three SXSW-inspired musings or updates. The first, and most substantial, looks ahead to just one facet of the potential patient access challenges for MDMA-assisted therapy; the second briefly covers comments and unpublished analysis shared by Rick Doblin; and, the third looks at synthetic vs. whole-mushroom psilocybin. It also contains brief coverage of a number of other developments, including significant fundraising activity by MindMed and Cybin, as well as the launch of Usona Institute’s Phase 3 study…

We all know how stressful working in the clinical trials industry can be. It is no short of long nights and early mornings. If you have a few minutes to spare, read this inspiring story about Jax Ramirez. It's a powerful reminder of why clinical trials matter so much. Nine-year-old Jax has been facing an unimaginable battle with the rare IPEX syndrome that attacks his organs. Hope has emerged in the form of a clinical trial at Stanford Medicine Children's Health that could potentially save his life. His journey to this groundbreaking trial is one of grit, kindness, and the refusal to give up when the odds seem insurmountable. This is an inspiring testament to the life-changing potential of clinical research. You can read the article here: https://lnkd.in/gkbDMNqD #ClinicalTrials #HopeForJax #IPEXSyndrome #ClinicalResearch #LifeSavingTrials #YourWorkMatters

Joining us later today at #Techapalooza2024 in support of CancerCare Manitoba Foundation? Here are some things to keep in mind.

This is Multiple Sclerosis (MS) Awareness Week, and it is a dedicated period aimed at raising awareness about multiple sclerosis, a chronic autoimmune condition that affects the central nervous system. Over 130,000 people are affected by MS in the UK and each year nearly 7,000 people are newly diagnosed. Celebrating MS Awareness Week is crucial to help increase understanding and knowledge about MS within communities, reducing stigma and misconceptions surrounding the condition. Secondly, it provides an opportunity to highlight the importance of research into MS, as well as advancements in treatment and care. Increased awareness often translates into more funding and resources allocated towards research efforts aimed at finding a cure or more effective treatments for MS. And finally, MS Awareness Week serves as a platform for individuals living with MS to share their experiences, connect with others facing similar challenges, and advocate for improved access to healthcare, employment opportunities, and other support services. Celebrating MS Awareness Week is not just about raising awareness—it's about empowering individuals affected by MS, fostering understanding and support within communities, and driving positive change towards a world where everyone living with MS can lead full and fulfilling lives. Famous people living with MS include: Christina Applegate, Jack Osbourne, Jamie-Lynn Sigler and Selma Blair, to name a few, but it can affect anyone. If you want to learn more, check out https://lnkd.in/epUhmzMz and get involved #MultipleSclerosis #LearnMore #NervousSystem #AutoImmune #Brain #SpinalCord #BlurredVision #InclusionMatters #Balance #Learn #MSSociety

Your blood donation can equal life-saving research. Scientists rely on kind donors like you to unlock mysteries of the human body and drive medical advancements. To learn more about medical research, visit us at cellularlifesolutions.org #BloodDonation #Impact #HealthResearch #SaveLives #Innovative #CellularLifeSolutions

🎉 I'm absolutely thrilled to participate in a landmark project with Bio-CFD! 🚀 Their pioneering work in Computational Fluid Dynamics is reshaping the future of Medicine & Life Sciences. 🌐 Utilizing cloud-native software, Bio-CFD is at the forefront of offering top-notch personalized management solutions for complex vascular diseases. Their groundbreaking approach in in-silico trials is accelerating innovation and ensuring fast-track regulatory compliance in medical device development. This is a huge leap forward in responsible and efficient healthcare technology. 🧬 💡 The high fidelity Computational Fluid Dynamics for Vascular Research, particularly in areas like carotid stenting, is a testament to their commitment to improving patient outcomes. By restoring healthy blood rheology and aiding in the quick recovery of arteries, they are setting new benchmarks in vascular research and neurosurgery practices. 🌟 I am super excited to be part of this journey and can't wait to see how their continued innovations will open up even more possibilities in bioengineering modeling and simulation. The future is bright with Bio-CFD leading the way! #BioEngineering #ComputationalFluidDynamics #MedicalInnovation #InSilicoTrials #VascularResearch #HealthTech #BioCFD 🔗 [https://www.bio-cfd.com/]

The results are in from the CML Survey on Unmet needs and the findings have identified a lack of communication between CML patients and their doctors when it came to treatment goals and roles in decision-making. Here's a snaphot of what two leading CML specialists had to say about the results. Novartis CML Advocates Network CML Buster Foundation a 501(c)(3) #CML #communication #livedexperience #treatmentgoals #cancer https://lnkd.in/gsEUkc2h

Two weeks left to ensure your research gets the attention it deserves! Submit your late-breaking abstract for #IPVC2024 by September 1, 2024, and share your findings with the international papillomavirus community. Oral and poster presentation slots have been kept for the best late-breakers. Why Submit? ➡️ Reach a diverse global audience of professionals ➡️ Gain valuable exposure and feedback from experts ➡️ Make a meaningful impact on the #HPV field Submit now 👉 https://lnkd.in/dfRAs58 #PapillomavirusResearch #cervicalcancer #cancerresearch #womenshealth

The 2024 Death Valley Ride to Cure ALS 🚴♂️🌵 This October, whether on two wheels or from afar, you can make an impact in the fight against ALS. The Death Valley Ride to Cure ALS is more than a cycling challenge; it's a beacon of hope, resilience, and community in the beautiful expanse of Death Valley National Park. Why Your Participation Matters? Every stride and every donation brings us closer to defeating ALS, a disease that affects thousands worldwide. Your involvement funds crucial research and support, moving us towards a cure. Event Details: - Location: Death Valley National Park, CA - Date: April 9-17, 2024 -Register: As a team or individual Can't Ride [like myself]? Your Support Still Has Power: - Donate: Direct contributions fuel ongoing ALS research and aid. - Sponsor a Rider: Boost a participant's fundraising efforts and impact. - Spread the Word: Share our mission with your network and help amplify our cause.