Rady Children's Hospital-San Diego’s Post

Before Amanda was born, she was diagnosed with Pentalogy of Cantrell (POC), a group of five congenital defects of the heart. In addition to POC, she had a narrowed aorta & an incomplete sternum. When she was born, Amanda was immediately transferred to the #RadyChildrens CTICU to receive the best possible care from Dr. John Nigro, Division Chief of Cardiac Surgery & Cardiac Transplant Services, & neonatologist Dr. Jose Honold. They diagnosed Amanda with PHACES syndrome, which includes several anomalies, ectopia cordis (the heart lying beneath a layer of skin), & a vascular tumor in her face. Within a week of her birth, Amanda underwent surgeries with Dr. Nigro to repair her aorta & fuse her sternum together, which were successful! 🌟 5 weeks later, Amanda was ready to go home! Today, Amanda is a healthy & happy 2 year old girl! 👏 She is under the ongoing care of her Rady Children's team, including a cardiologist, neurologist, otolaryngologist (ENT) & dermatologist. Read the full story: https://rchsd.co/3xcNw1Q

  • Newborn baby swaddled in a white blanket with gold heart patterns, lying in a hospital bed connected to medical equipment including a breathing tube and monitoring sensors on the forehead and chest. The baby wears a diaper and has identification bands on both ankles and the right wrist.
  • A young child stands in the center of a sunny, outdoor plaza paved with cobblestones, surrounded by buildings with traditional architecture. The child is wearing a denim jacket over a red top, patterned leggings, and holding a small object in their hand. Festive colorful banners are strung overhead between the buildings.
Brik R.

Manager with iMOVE4U, LLC

3d

My 4 year old was just at #RadyChildrens for almost 3 weeks and in my opinion they give the best care I have ever seen. The nurses in PICU were beyond amazing. I can’t say enough good things about them. It was the best experience in the worst situation. Thanks to all the people who helped my little girl!

Jessica Newmyer

Executive Director at American Heart Association

2w

Amanda- you are a beautiful and strong heart hero! ❤️

Cristal Jimenez-Toscano

MBA-Dirección y Gestión de Proyectos

2w

🙌🏻❤️

Jessica Cella

🚑 💉 EMS Protocol Partner | Rare Disease Advocate | Full time Volunteer

3w

What a doll!!

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