Before Amanda was born, she was diagnosed with Pentalogy of Cantrell (POC), a group of five congenital defects of the heart. In addition to POC, she had a narrowed aorta & an incomplete sternum. When she was born, Amanda was immediately transferred to the #RadyChildrens CTICU to receive the best possible care from Dr. John Nigro, Division Chief of Cardiac Surgery & Cardiac Transplant Services, & neonatologist Dr. Jose Honold. They diagnosed Amanda with PHACES syndrome, which includes several anomalies, ectopia cordis (the heart lying beneath a layer of skin), & a vascular tumor in her face. Within a week of her birth, Amanda underwent surgeries with Dr. Nigro to repair her aorta & fuse her sternum together, which were successful! 🌟 5 weeks later, Amanda was ready to go home! Today, Amanda is a healthy & happy 2 year old girl! 👏 She is under the ongoing care of her Rady Children's team, including a cardiologist, neurologist, otolaryngologist (ENT) & dermatologist. Read the full story: https://rchsd.co/3xcNw1Q
Amanda- you are a beautiful and strong heart hero! ❤️
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What a doll!!
Manager with iMOVE4U, LLC
3dMy 4 year old was just at #RadyChildrens for almost 3 weeks and in my opinion they give the best care I have ever seen. The nurses in PICU were beyond amazing. I can’t say enough good things about them. It was the best experience in the worst situation. Thanks to all the people who helped my little girl!