Project HEAL’s Post

Apply TODAY for Project HEAL's community care program, Body Reborn! New cohort begins April 15th, and applications will be accepted on a running basis for a short period of time. Apply at https://lnkd.in/gAQ8X4gP About Body Reborn: Body Reborn provides a virtual, intersectional community for those who struggle with disordered eating and have faced systemic barriers due to race (e.g. those that originate for people of color). Read on to learn more, and click the link to sign up! Over the course of 8 weeks, the group engages in education and live discussion around systemic oppression, trauma, and their effects on our relationship with food/body. The group will discuss the intersection of body image, systemic bias, oppression, and other potentially challenging topics in a carefully facilitated, supportive space. While we aim for safety, complete trigger avoidance cannot be guaranteed. You may gain the most benefit from the space if you (a) are already engaging, comfortably, in these reflections individually; and/or (b) are comfortable in your outpatient care level. Space is limited, therefore we ask that you please complete the application thoughtfully and authentically as possible. Apply at: https://lnkd.in/gAQ8X4gP

Join DSAP and the Down Syndrome Center of Western PA for a virtual Lunch & Learn Speaker Series to learn about topics related to Down syndrome. Tomorrow, Friday, March 1 from 12pm-1pm Drs. Bulova and White who are physicians at the Adult Down Syndrome Center of Western PA, will present: What to Expect as You Age – Unique Aspects of Aging in People with Down Syndrome. This is the final presentation in this Speaker Series. Learn more and RSVP here: t.ly/cCacI. You will receive the Zoom meeting link in your confirmation email after registering. #dsapgh #DSAPSpeakerSeries #LunchandLearn #Resources #Education #downsyndrome

This new study in #HSR from Jessy Nguyen and Prachi Sanghavi, PhD, compares level 1 and 2 trauma centers with similarly sized non-trauma centers on survival after major trauma among older adults.     What is known: Trauma experts have had a long-standing concern about inadequate limits on trauma center designations, which may affect hospital volumes and allow entry of lower quality facilities.      What this study adds: 100% of 2012–2017 #medicare beneficiaries and propensity-score-based balancing weights to compare outcomes after care at trauma centers versus non-trauma centers.      Conclusion: Trauma centers may not provide longer survival than similarly sized non-trauma hospitals for severely injured older adults.     Read the full article: https://lnkd.in/gRp5PXaW      #HealthServicesResearch  Wiley  AcademyHealth  

📆 Coming this week! Friday afternoon, I will be participating in InformED, a ground-breaking virtual continuing education forum on eating disorders. This event is organized by Project HEAL and EDRD Pro and is the first of its kind! During this forum, speakers will tackle the issues surrounding eating disorders through the lens of the following key landscapes: The Legal Landscape: We will dive into current legislation, lawsuits, and actions everyone can take. The Healthcare Landscape: An in-depth discussion about the AAP Guidelines. The Medical Landscape: A critical look at Ozempic and the dangerous ideology of “Thin at Any Cost.” The Cultural Landscape: A vital conversation about supporting Trans individuals amidst rising anti-Trans legislation. This forum will provide a platform where professionals, advocates, and those directly affected by eating disorders can come together, learn, and create positive change. 🔗 For more information or to join this crucial dialogue, please visit the website here. https://lnkd.in/gdqgvqTe I am looking forward to exchanging ideas and collectively working toward the transformation of the eating disorder landscape. I hope to see you there! #InformED #EatingDisorders #Education #Change

Epilepsy stands as one of the most prevalent neurological disorders globally, affecting millions of individuals and their families. At Interactive Healthcare Training, we recognize the importance of raising awareness and understanding of epilepsy to better support those impacted by this condition. Read our latest Blog: Understanding Epilepsy: Enhance Your Awareness with Interactive Healthcare Training. https://lnkd.in/e2m2YmMw #epilepsyawareness #healthcaretraining #awareness #interactivehealthcare

At To Whom I May Concern®, we often refer to Sharing Groups. What is a Sharing Group? A Sharing Group is a group of people diagnosed with dementia who want to share their experiences with one another. It can be started by inviting people from a senior’s center, faith community, local doctors, neurologists, or memory clinics, or may already be an existing support group. Working with a TWIMC Facilitator, Sharing Groups may choose to co-produce a readers-style To Whom I May Concern® performance and perform it before community audiences. To start a Sharing Group, look into becoming a Certified TWIMC Facilitator. https://lnkd.in/d7tpdma

Don't miss Melissa J. Hogan's session on Medical Trauma at the Cure GM1 Hybrid Conference! Medical trauma involves the negative emotional and physiological responses to medical care that a patient perceives as scary or threatening. The risk for medical trauma increases due to many factors, one of which is more frequent interaction with the medical system, something often unavoidable with rare diseases. Medical trauma can also affect caregivers, siblings, and others impacted by a loved one’s condition and/or care. This session will educate families on medical trauma, how to recognize it and distinguish it from other symptoms, as well as empower them with strategies to help prevent and manage medical anxiety and trauma in their loved ones and themselves. Additional background can be found in Hogan’s 2021 book, “Afraid of the Doctor: Every Parent’s Guide to Preventing and Managing Medical Trauma.” AGENDA: https://lnkd.in/gdFVE72f REGISTER: https://lnkd.in/dwg_Fq6V #curegm1 #hope #raredisease #engage #connect #community #advocacy #nevergiveup

Wake Up Narcolepsy Launches Resources for Disclosing Diagnosis & Accessing Accommodations "One of the goals of the work Wake Up Narcolepsy does is to lessen the stress on people with Narcolepsy and caregivers of people with Narcolepsy by providing them guidance through disclosing their diagnosis, both in work and school settings, and understanding what reasonable accommodations look like." Read the full article and access the new resources below:

“How to Get Your Affairs in Order” – Online – Thursday, December 14, 2023 (2 pm – 3:30 pm central time) This program will provide suggestions for when a doctor says it’s time to “get your affairs in order.” We will examine a checklist for the dying and how many of the items on such a checklist can be done years before a diagnosis. Upon completion of this program, the participant will be able to: ∙ Understand how planning for the end of life leads to a better death someday and a better life right now. ∙ Recognize the importance of making plans, writing them down, and sharing them with others. ∙ Identify actions that reduce fears and anxiety. ∙ Recognize the ways that death doulas, care teams, elder care attorneys, and loved ones help support people at the end of life. The link will be emailed to you before the session. This is available for 1.5 CEUs through the Continuing Education Institute of Illinois. I’d also welcome caregivers, patients, and curious participants. Please join us! Each session also includes an “Ask a Doula” Q&A at the end where I’ll answer all your questions. Register here: https://lnkd.in/gPH_xEFM