It seems every time we look closely at home dialysis and barriers to this modality, education and fear on behalf of patients and caregivers is at least part of the equation that makes up resistance to home dialysis. It seems there are many in the industry concerned about this and working to overcome these barriers, yet I don't read much about modern means to do so. For those interested parties who have not interacted with Tim Fitzpatrick and seen what they are doing at IKONA Health with their learning platform to improve ESKD outcomes and provide patient education using virtual reality and analytics, I highly recommend that you check them out. https://lnkd.in/gHPevGxQ
Paul D. Gordon’s Post
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We know healthcare is moving home. But what about the types of care that require complex devices, training, and support? Home dialysis is one of these cases. Q: What will it take to ensure providers, patients and care partners are ready for that transition? Before we can answer this question, we need to take a closer look at the types of factors that might lead patients to choose either outpatient or home-based #dialysis in the first place (see image). One theme keeps coming up in these conversations across all stakeholder groups, from health systems and clinics to patients and care teams: 📣 Effective education and training are key. → For patients. → For care partners. → For frontline care teams. → For #kidney care providers. This theme comes up at every stage of the patient journey, from initial diagnosis (CKD or kidney failure) to modality selection and then the training needed to transition onto that treatment successfully. Think of the home dialysis patient journey like a funnel. AWARENESS / / / / / / <-- Top / / / / / / / / / / / / / / SELECTION / / / / / / / / / / / / / / / / / TRANSITION / / / / / / / / / / / / RETENTION / <-- Bottom Roughly 85% of ESKD patients are eligible for in-home dialysis. Yet, of those on hemodialysis, only 2% use home dialysis. -- Thoughts: The reality is that each of these steps has its own set of challenges. Getting from point A to point B is not as straightforward as it seems. Equipping patients and care teams with the tools they need to go from top to bottom is no small feat, but it's sorely needed. To make #healthcare more accessible for patients with ESKD, we need to address these barriers. We have the knowledge and tools available to do just that. Our work at IKONA Health focuses on the ways we can leverage immersive technologies and neuroscience to address these barriers. -- Questions: I'm excited to continue learning from all of you, the many kidney care professionals, patients, and advocates in my network who continue to share your expertise, experiences, and stories with us. • Which of these factors resonate most with your experiences? • What do you think people should know about care at home? -- KDIGO is a global, volunteer-led nonprofit that develops and implements clinical practice guidelines in kidney disease. They also host conferences that bring together experts to discuss and debate kidney-related issues — home dialysis being one of them. The image below and info is from a recent paper that summarizes KDIGO's 2021 home dialysis controversies conference on topics including (i) policy factors; (ii) research priorities; (iii) global access; and (iv) economic drivers. -- Sources: [1] KDIGO Paper: https://lnkd.in/eKz5nPwm [2] AAKH: https://lnkd.in/ethXQpgX [3] AJKD: https://lnkd.in/eWWFn7At
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Assisted PD is having a moment! More evidence and support for feasibility and benefits of staff-assisted PD in the United States to expand access to home dialysis modalities: Published last week -- Follow-up of short-term PCT-led staff-assisted PD at sixteen Satellite Healthcare / WellBound centers showed 93% of patients were discharged independently performing home dialysis with 71% remaining on PD assistance-free at 6 months. And recent ISPD position paper supporting the development and funding of staff-assisted PD programs to promote equity, reduce caregiver burden, and increase use of home dialysis: https://lnkd.in/gvstFqc5
Description and outcomes of a staff-assisted peritoneal dialysis program in the United States - Wael F Hussein, Shijie Chen, Paul N Bennett, Jugjeet Atwal, Graham Abra, Eric Weinhandl, Sijie Zheng, Leonid Pravoverov, Brigitte Schiller, 2024
journals.sagepub.com
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Patients on dialysis with poor quality of life and prognosis tend to be recommended dialysis withdrawal and a transition to palliative care. However, making this kind of decision can be complicated, especially due to the common lack of awareness and conversations on end-of-life care among patients, caregivers, and providers. New research featuring DPHS’ Semra Ozdemir and Eric Finkelstein aims to better understand these multi-stakeholder perspectives and what information and support is required for decision-making: https://lnkd.in/ehYcHpDZ #kidneyhealth #kidneyfailure
Unravelling complex choices: multi-stakeholder perceptions on dialysis withdrawal and end-of-life care in kidney disease - BMC Nephrology
bmcnephrol.biomedcentral.com
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Exciting news for #ESKD #Dialysis patients in Georgia! What does this mean for those who live in The Peach State? Dialyze Direct and Northeast Georgia Health System will allow: - SNF-bound dialysis patients to experience fewer rehospitalizations and infections - SNF-bound dialysis patients to experience dramatic reductions in their dialysis session recovery time, allowing them to heal, recover and rehab more quickly - SNF-bound dialysis patients to avoid transportation and its resultant negative impact on compliance and quality of life - SNF-bound dialysis patients can experience home hemodialysis, increasing the likelihood of continuing that therapy upon discharge - Increased access to better care for members of historically marginalized communities #kidneydisease #kidneyhealth #kidney #kidneycare #dialysis #hemodialysis #healthequity #sdoh #snf #nursinghome #nursinghomes #esrd #eskd #valuebasedcare #valuebasedhealthcare
📢 Exciting News! Dialyze Direct and Northeast Georgia Health Ventures are joining forces to transform dialysis care in Georgia! 🚀 https://bit.ly/3txeWgx We're thrilled to announce our partnership with Northeast Georgia Health Ventures (NGHV), which, through its hospitals and outpatient locations, cares for more than 1 million people across Georgia. As part of our continued partnerships with major health systems to improve care, together, we’re bringing our innovative home dialysis services to skilled nursing facilities (SNFs) across the state, streamlining patient care from the hospital to the dialysis setting. What this means for Georgia's dialysis patients: 🌟 Access to Dialyze Direct's patient-centric home hemodialysis services in SNFs 🌟 Improved outcomes, shorter recovery times (often < 1 hour), and enhanced quality of life 🌟 A seamless continuum of care between hospital systems and SNFs Dialyze Direct is committed to expanding access to high-quality home hemodialysis, and this partnership with NGHV is another step towards achieving this goal. We now offer onsite dialysis services in more than 170 SNFs across 13 states, with additional expansion into Georgia and other states underway. Stay tuned for more updates as we continue to lead the way in kidney care! Learn more about Dialyze Direct: www.dialyzedirect.com About Northeast Georgia Health System: www.nghs.com About Northeast Georgia Health Ventures: nghventures.com #NGHS #DialyzeDirect #KidneyCare #HealthcareInnovation #PatientCentricCare #GeorgiaDialysis #GeorgiaHealthcared #snfdialysis Stuart Bracken Henry Kauftheil Yehuda Markovits NxStage Medical, Inc. see link below 👇 https://bit.ly/3txeWgx
Dialyze Direct and Northeast Georgia Health Ventures Announce Strategic Partnership to Bring Home Dialysis Services to SNFs in Georgia
businesswire.com
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Did you know patient education is one key to improving diabetes outcomes? Diabetes management combines medical care, lifestyle changes, and technology for healthier lives and fewer complications. Physician education is essential for improved patient outcomes! https://hubs.li/Q028jPhL0 #medicalbilling #healthcare #diabetesawareness #diabetesawarenessday #innovation #management #diabetes
Patient education is the key to improving diabetes outcomes
https://www.hpiinc.com
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The field of renal healthcare is witnessing breakthroughs, yet dialysis clinic administrators are facing a crisis. Due to reimbursement issues, high costs, and staffing challenges, the Renal Healthcare Association (RHA) reports alarming closures of facilities, affecting thousands of patients. To address this, RHA has launched the Core Curriculum for Renal Healthcare Administrators, a comprehensive resource covering key aspects of clinic management to ensure safe and effective patient care. #renalhealth #renalcare #dialysis #kidneycare #kidneyhealth
Administrators need a game plan for crisis management in dialysis care
healio.com
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The Improving Access to Home Dialysis Act (HR-8075) was introduced in the US House of Representatives this week! Only 14% of patients in the US dialyse at home, it is over 25% in our neighbor Canada and over 70% in Hong Kong! And it is unimaginable that in today's age, "lack of information on home dialysis" is one of the major barrier in increasing the at-home patient population. This Act will: - Mandate that patients get sufficient education on all available dialysis options - Expand on who can provide home dialysis training (and the means of doing so, like telehealth) to remove the burden from the nursing staff - Cover the costs of in-home healthcare support staff for patients Exciting to see these positive changes in the US healthcare system and the fact that disruptive companies like AWAK Technologies are poised to support these initiatives by bringing ultra-portable patient-focused devices along with AI-enabled digital solutions to better manage patients at their homes without the need to go to the dialysis centers. Reference: https://lnkd.in/gNeGn92n
The NKF Urges Passage of New Home Dialysis Bill
kidney.org
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Co-Founder & CEO at IKONA
1moThank you for sharing, Paul D. Gordon. We're grateful for those involved in the IM-HOME study - and excited to dive in and learn more about their findings. I love this key takeaway from the article: The study findings suggest "patients/care partners and providers have distinct but potentially complementary perspectives about major barriers to home dialysis, which highlight the need to develop implementation strategies that simultaneously address major patient-, care partner-, and provider-perceived barriers to home dialysis." For those interesting, we wrote a paper in American Nephrology Nurses Association (ANNA)'s NNJ that talked about some of these barriers and ways we might improve home adoption and retention, using learning science immersive technologies to overcome these barriers. https://pubmed.ncbi.nlm.nih.gov/37983546/