Partners In Health’s Post

Check out the Center for Global Health Policy and Politics’s recent PLOS Global Public Health article: Facilitators and barriers to community-led monitoring of health programs: Qualitative evidence from the global implementation landscape: https://lnkd.in/eShSpBNj

Partners In Health is one of the many legacies from Dr. Paul Farmer. Here are 6 shocking Global Health facts.

For more than 30 years, PIH has been on the forefront of a global movement to fight inequities—training thousands of local doctors and nurses, funneling resources to government-run hospitals and clinics, enlisting community members to provide basic health services, and advocating for policy change at the local, national, and global levels. Despite the immense progress of the past decades, PIH’s fight for global health equity remains as crucial now as ever. Learn about the six global health facts that may surprise you: https://bit.ly/3NwR4jt

🌟 Tip #4: Surround Yourself with a Supportive Community 🌟 When sharing your video or audio testimony about your journey with a rare disease, it's best to surround yourself with reliable resources and a strong support network. Here's why: 1️⃣ Precise Explanation of Your Condition: Using the Orphanet database, ensure that your disease doesn't have different variants with different symptoms. Make sure to clearly specify in your video which variant you're affected by. Seek help from your community if you're unsure. Here's the Orphanet link: https://lnkd.in/edGHx_QW 2️⃣ Keeping Information Up-to-Date: Disease descriptions evolve. By collaborating with a reputable patient association or consulting a healthcare specialist, you can ensure that your disease explanation remains current. Even though it needs to be simplified for accessibility to teenagers or grandparents of sick children. 3️⃣ Enhanced Credibility: At EwenLife Maladies Rares, we've learned that including the name or logo of an association or the name of a healthcare specialist in a video adds extra credibility to a testimony. 4️⃣ Addressing Questions: You may receive very specific questions about your disease in the comments of your audio or video. To better respond, it's advisable to seek assistance from someone from an association or an informed healthcare professional. 🔍To find patient associations in Europe, you can check: Orphanet website: https://lnkd.in/eXSk6ZpH EURORDIS-Rare Diseases Europe website (federation of European patient associations). To find associations worldwide, you can visit the RARE DISEASES INTERNATIONAL website 🔍 🚨Friendly reminder: Patient associations are often run by patients or families affected by the rare disease, just like you. They are volunteers doing their best. However, they might be tired and not able to respond immediately. Therefore, kindness towards them is essential. 🚨 💪Remember that your story is powerful, and by surrounding yourself with a supportive community, you amplify your voice and impact. Together, we are stronger! 💪 #RareDisease #RareDiseases #RareDiseaseDay #Showyourstripes #RareIsStrong #RareWarrior #RareAware #RareAdvocate #RareCommunity #RareDiseaseAwareness #RareDisability #InvisibleIllness #Disability #InvisibleDisability #RareDiseaseAwareness #Testimony #Podcast #WrittenTestimony #Inclusion #Awareness #EwenLife #VideoFormat All followers

Syphilis Surge: A Growing Concern for Public Health #CDCdata #menwhohavesexwithmen #publichealthconcern #sexuallytransmitteddiseases #syphilisawareness #syphiliscases #syphiliscomplications #syphilissurge #syphilistesting #syphilistreatment

Syphilis Surge: A Growing Concern for Public Health #CDCdata #menwhohavesexwithmen #publichealthconcern #sexuallytransmitteddiseases #syphilisawareness #syphiliscases #syphiliscomplications #syphilissurge #syphilistesting #syphilistreatment

Key things you need to know about Mpox have been summarized in this link by the World Health Organization Stay safe Remember to appreciate God today!

Recent media coverage of the proactive steps taken by young people living with Long Covid (Post Covid Condition) raises important questions about representation and understanding of this condition. My daughter, featured in a Daily Mail News article about Long Covid, found her experience misrepresented. She told me, "I wanted to get across that I shouldn't have to wear a mask so that I can go to Uni. I talked about the lack of ventilation in lecture halls... I don't want to wear a mask, but there isn't much choice in busy indoor spaces." Kitty went on to say "They used my words but they have been twisted, they haven’t said exactly what I said, & why didn’t they speak to an expert on Long Covid or read recent mask research, the World Health Organization recommend masks" As a family, we've become acutely aware of the impact of COVID infection and reinfection. Our lives have been fundamentally changed, but with the support of the patient community, we've educated ourselves on effective mitigations and made informed decisions. These steps have allowed us to improve our daily quality of life, enabling us to enjoy life around the challenges of Long Covid. More about masks here. https://lnkd.in/eWHz5cHe The scale of Long Covid in young people is staggering: • Office of National Statistics reports 111,800 children aged 3-17 are affected with Long Covid in England and Scotland, over 55,000 of whom have had symptoms for more than a year For context: There are around 1,800 new childhood cancer cases in the UK every year (Cancer Research UK (CRUK)) Approximately 30,000 children & young people in England and Wales have Type 1 Diabetes (United Kingdom National Paediatric Diabetes Audit) As a mother and patient advocate, I'm proud to see young women like my daughter advocating for themselves and the Long Covid community. But this highlights a crucial issue: How can we ensure accurate reporting on Long Covid, especially for young people? In collaboration with Chloe Connor and Prof Nisreen A Alwan MBE, our recent study identified discursive practices in journalism that contribute to epistemic injustice. We've developed recommendations for reporting on Long Covid in children and young people, which may also improve practices in reporting on other diseases affecting this age group. Read recommendations here: https://lnkd.in/e8aDF9-r The burden of Long Covid on children and young people is significant. Accurate representation is the very least young people can expect. How can organisations contribute to better understanding and representation of chronic health conditions in the media, educational settings and the workplace? As someone directly affected by this issue, I'm keen to hear your thoughts and experiences. #LongCovid #MediaRepresentation #ChronicIllness #WorkplaceInclusion #University #CleanAir

Some of the best enablers are the perhaps also the most technically straightforward. Rapid outbreak financing is one such innovation...timely detection close to source helps reduce harm and manage response efficiently. #outbreakresponse #rapidresponse

In an outbreak response, speed matters. In my latest piece, I discuss how access to early, flexible funds changes the game for public health officials working on the ground. As little as $5,000 USD at the first sign of an outbreak can save tens or even hundreds of thousands later on. Read more about our approach to "rapid outbreak financing" here: