National Multiple Sclerosis Society UAE’s Post

At WeHealth, the patient journey comes first. Our approach begins by identifying patient communities in key geographies, tailoring our outreach to connect with the people who matter most to each clinical trial. We empower patient ambassadors to engage their peers with empathy and active listening, creating strong social ties that build trust and lasting support. By fostering real-world connections and empowering grassroots advocacy, we reach underserved populations often missed by traditional outreach. Together, we’re reshaping clinical trials to be more inclusive, patient-driven, and impactful. #PatientCentricity #InclusiveHealthcare #ClinicalTrials #HealthcareInnovation

Your healthcare journey doesn’t have to be a solo one. Start by building not just a care community, but a network of compassion and support with people who truly understand what you’re going through. Even in the advocacy world, we know that only about 40-50% of patients are reached by these organizations. That’s why it’s essential to do the outreach yourself—identify local groups that can provide the support you need and engage with them. Share your struggles and experiences, because it really does take a village to navigate healthcare. Together, we can #bridgethegap and ensure that no one is left behind.

🔗 https://lnkd.in/eEzpVg-M || Are you curious about what being an "advocate" entails? Do you want to advocate but aren't sure where to start? Learn how becoming an advocate can make a difference in the lives of people with Alzheimer's and their loved ones. Join us for a virtual webinar, "ALZ Advocacy & Ways to Get Involved," on 8/12!

🔗 https://lnkd.in/eEzpVg-M || Are you curious about what being an "advocate" entails? Do you want to advocate but aren't sure where to start? Learn how becoming an advocate can make a difference in the lives of people with Alzheimer's and their loved ones. Join us for a virtual webinar, "ALZ Advocacy & Ways to Get Involved," on 8/12!

The only constant you are guaranteed as a rare patient is unpredictability. In the face of so much ambiguity, Global Genes decreases the burden of uncertainty on a patient through education, support, and community. There is still time to register for Week in Rare! You can use code FriendsofKenz at checkout for 15% off! I found Global Genes in 2018, 3 years after my diagnosis, and knew then that this organization was not like any other. From finding my community and sharing my story at The Rare Advocacy Summit to utilizing the toolkits created for advocates, to most recently needing the services of Rare Concierge, I couldn’t imagine what my health would look like had I not learned about Global Genes early in my journey. My family and I want to use our knowledge and experience in this space to help others, and Global Genes has enabled us to do just that. #PatientAdvocate #CareAboutRare #WeekinRARE #RAREHealthEquity #BeCounted #RARESummit #PatientCentricity #clinicaltrials #patientadvocacy #patientengagement #mentalhealth #cPTSD #PTSD #medicalgaslighting #research #livedexperience #advocate #advocacy #championsofhope #patientsupport #research #treatment #patientvoice #biotech #pharma #healthtech #realworldevidence #realworlddata #researchanddevelopment #patientexperience #patientsolutions #orphandrugs #raredisease #ChronicIllness

Grow & Tell Speech & OT So what do you do in speech/OT? PARENT: umm, You know... like stuff 🤔 Values: They show why you do, what you do. One of our values is Collaborative Care 🤝 ❤️ Especially with Parents Parents need: ✅️ Support ✅️ Information ✅️ Advocacy ✅️ Direction ✅️ Accountability #slplife #speechtherapy #speechpathology #Occupationaltherapy #occupationaltherapy #OT #slp2b #speechpathologystudent #occupationaltherapystudent

Want to know why we get results in therapy? Parents are involved with roles and responsibilities clearly outlined. #collaboration #familycenteredtherapy #familyfocusedtherapy #collaborativecare #transdisciplinary

Meet the experts behind our Breaking Barriers to Bias series! The founders of Align and Embrace are clinicians with over 50 years of combined experience. Their social work advocacy contributes to transforming clinical care by providing education, resources, training, coaching, consulting, and technical assistance to individuals and organizations. #C4C #AlignAndEmbrace #BiasTraining #Healthcare #Explore

A strong support network can include educators, therapists, other parents, and advocacy groups. Building this network involves reaching out, attending workshops, and joining parent forums. https://lnkd.in/exeTbxpy #IEPGoals #SpecialEducation #AutismAdvocacy #ParentalSupport #EducationalRights #InclusiveEducation #AutismAwareness #ParentingJourney #IEPMeetingTips #EmpowermentInEducation

Advocacy Engagement Week - DAY 1 ACTION: Urge Congress to increase Alzheimer’s and dementia research funding at The National Institutes of Health by $321 million and fund the #BOLDAlzheimersAct at $35 million in FY24. Take today's action: p2a.co/Z6Vk0HX