Lipedema Health’s Post

Exciting Announcement! I'm presenting at the upcoming National Case Management Society of America (CMSA) Conference. Join us for our National Presentation on Lipedema Advocacy: A Case Manager's Role to Enhance Patient-Centered Care! Lipedema affects millions worldwide, yet remains under-recognized. Let's shed light on this chronic tissue disorder and its impact on patients and healthcare systems. Together, we'll explore strategies for early diagnosis and proactive interventions to improve patient care. Program Objectives: 1. Participants will recognize the significance of lipedema advocacy and its impact on early diagnosis, enhancing the understanding of the condition and impact of late-stage disease. 2. Participants will identify evidence-based best practices and standards of care for managing lipedema, focusing on a multidisciplinary approach for improved patient-centered outcomes. 3. Participants will apply knowledge and skills to identify and address biases in healthcare, utilizing effective strategies to improve the quality of patient care and address healthcare disparities. Don't miss out on this opportunity to make a difference in patient care! Register now at cmsa.org #LipedemaAwareness #PatientCare #HealthEquity #Advocacy #HealthcareDisparities #CaseManagement #NationalPresentation #EmpowerPatients #CMSA

Join us live on Instagram on Tuesday, February 6 at 6:30 pm EST! Topic: Patient Advocacy in Accessing and Understanding Rare Disease Treatments Join our live Q&A session on Instagram: https://lnkd.in/gmc9TT5j Dr. Elena is a Board Certified Patient Advocate. She has worked in healthcare for over 25 years. Dr. Elena will be our host as she will be here to answer all of your questions to be enlightened on accessing and understanding rare disease treatment. While the term Private Patient Advocacy is becoming known, many wonder what the difference are between patient advocates, healthcare advocates, medical advocates, or professional advocates. These are all the same. We are experienced healthcare professionals dedicated to helping you navigate through the complexities of our healthcare system. It is our compassion, experience, and determination that sets Pathway Patient Advocates - A Private Patient Advocate Company apart from the rest. Call us anytime: (947) 517-8395 [email protected] #pathwaypatientadvocates #advocates #professionalhealthadvocate #medicaladvocate #patientsadvocate #healthcareadvocate #professionaladvocate #patientadvocacy #teleadvocacy #independentpatientadvocate #raredisorders #rarediseases #MSA #MultipleSystemAtrophy #endometriosis #cholangiocarcinoma #MCAS #MastCellActivationSyndrome #POTS #FloridOsseusDysplasia #AVN #Akathesia #Hyperlipidemia #dysautonomia #chronicfatiguesyndrome #CRMO #osteomyeltitis #undiagnosed #Dercums

Join us live on Instagram TOMORROW NIGHT, February 6 at 6:30 pm EST! Topic: Patient Advocacy in Accessing and Understanding Rare Disease Treatments Join our live Q&A session on Instagram: https://lnkd.in/gmc9TT5j Dr. Elena is a Board Certified Patient Advocate. She has worked in healthcare for over 25 years. Dr. Elena will be our host as she will be here to answer all of your questions to be enlightened on accessing and understanding rare disease treatment. While the term Private Patient Advocacy is becoming known, many wonder what the difference are between patient advocates, healthcare advocates, medical advocates, or professional advocates. These are all the same. We are experienced healthcare professionals dedicated to helping you navigate through the complexities of our healthcare system. It is our compassion, experience, and determination that sets Pathway Patient Advocates - A Private Patient Advocate Company apart from the rest. Call us anytime: (947) 517-8395 [email protected] #pathwaypatientadvocates #advocates #professionalhealthadvocate #medicaladvocate #patientsadvocate #healthcareadvocate #professionaladvocate #patientadvocacy #teleadvocacy #independentpatientadvocate #raredisorders #rarediseases #MSA #MultipleSystemAtrophy #endometriosis #cholangiocarcinoma #MCAS #MastCellActivationSyndrome #POTS #FloridOsseusDysplasia #AVN #Akathesia #Hyperlipidemia #dysautonomia #chronicfatiguesyndrome #CRMO #osteomyeltitis #undiagnosed #Dercums

This year's World Patient Safety Day theme, ‘Engaging Patients for Patient Safety’ is a driving force for our teams at Bionical Emas. Our dedicated Patient Advocacy team works closely with patient advocacy groups to better understand each unique patient community’s needs, concerns, and experiences. This direct engagement helps to inform the design and delivery of a clinical trial or early access program. When considering participating in a clinical trial or early access program, every patient will be taken through an informed consent process. Patients will discuss with their treating physician about the investigational medicine, and whether potential benefits outweigh the potential risks. https://lnkd.in/e5RJJsfd #WorldPatientSafetyDay #PatientSafety #PatientAdvocacy 

Addressing the digital divide in healthcare is crucial. Digital therapeutics and strong advocacy are key to breaking down barriers and improving patient access to care. It's essential to push for these advancements to ensure equitable health outcomes for all. Link: https://lnkd.in/exySTw-G #DigitalHealth #HealthcareAccess #PatientCare

Patients and patient advocacy groups (PAGs) are vital to include and collaborate with at every touchpoint of treatment development, from clinical trial protocols and peer review of research to creation of programs and initiatives intended for their use. We believe that active and ongoing patient engagement results in more effective and beneficial treatments, and ultimately helps improve patient outcomes and overall health. That’s why our patient advocacy and engagement strategies are so important to us—and to you. In honor of National Patient Advocacy Day, we want to highlight the importance of listening to patients, their carers, and the patient advocate community. Watch the highlights from our webinar on the importance of engaging patients and patient advocates throughout the medicine development cycle at https://buff.ly/45eD59s and for more on our work in patient advocacy and engagement, visit https://buff.ly/3P11eL0 #NationalPatientAdvocacyDay #PatientAdvocacy #PatientAdvocates #PatientEngagement #PatientsFirst #PatientAdvocacyGroups

How will the #IRA and other key regulatory and policy activities shaping benefit design and cost sharing impact patients? In a recent webinar, #AvalereExperts discussed #patient access and affordability efforts from manufacturers, foundations, and patient advocacy organizations. Watch the full conversation here: https://lnkd.in/eb-aB-x9 Moderated by Ayesha Azam, with speakers Mark Gooding, Lisa Joldersma, Brigit Kyei-Baffour, MBA, and Kylie Stengel.

55% of patients seek certified expertise and prefer to work with a board-certified patient Advocate. Trust and quality in every step. The data presented here is derived from a detailed survey conducted by the Coalition of Health Care Advocacy Organizations (CHCAO) between late 2022 and early 2023. This study, involving over 500 healthcare professionals, Advocates, patients, and caregivers, was conducted without any honoraria for participation, ensuring unbiased insights. It sheds light on the essential role of Patient and Health Care Advocacy in health care. Discover more in CHCAO's Special Report at https://lnkd.in/gUWVyTGC

63% of providers report experiencing less burden when Advocates are involved in patient care. Together for better care. The data presented here is derived from a detailed survey conducted by the Coalition of Health Care Advocacy Organizations (CHCAO) between late 2022 and early 2023. This study, involving over 500 healthcare professionals, Advocates, patients, and caregivers, was conducted without any honoraria for participation, ensuring unbiased insights. It sheds light on the essential role of Patient and Health Care Advocacy in health care. Discover more in CHCAO's Special Report at https://lnkd.in/gUWVyTGC

61% of patients feel more informed and confident in making shared decisions with their care team when working with an Advocate. The data presented here is derived from a detailed survey conducted by the Coalition of Health Care Advocacy Organizations (CHCAO) between late 2022 and early 2023. This study, involving over 500 healthcare professionals, Advocates, patients, and caregivers, was conducted without any honoraria for participation, ensuring unbiased insights. It sheds light on the essential role of Patient and Health Care Advocacy in health care. Discover more in CHCAO’s Special Report at https://lnkd.in/eTBqn8BU