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Today, on International #DravetAwarenessDay, we are supporting charities, families and organizations around the world in raising awareness of #DravetSyndrome (DS). DS is a rare, severe and lifelong form of epilepsy that usually begins in the first year of life and leads to some level of developmental disability and dependency on caregivers. Isabella Brambilla, Chairperson of Dravet Italia Onlus, discusses the broader impact of DS on family life, drawing on her own experience caring for her son, who lives with the condition. Your local Dravet Syndrome foundation, such as Dravet Italia Onlus, is a great place to go to access resources for those living with DS, or visit the Dravet Syndrome Foundation.

USA and international Research .

Chief Executive Officer at USA and International Research Inc.

1mo

Raising awareness on International #DravetAwarenessDay is crucial for understanding and supporting families affected by #DravetSyndrome. Thank you for sharing Isabella Brambilla's perspective and valuable resources.

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