We have had the privilege to listen and learn from many outstanding members of the DMD community whose personal perspectives continue to shape and empower our work. Guided by the valued feedback that we have received from individuals living with DMD and their families, our team has been focused on developing a complete range of services designed to help meet their diverse needs and deliver new educational resources. We are excited to share that we will be participating in a special webinar with CureDuchenne on Wednesday, June 26 at 2-3 p.m. ET to provide updates on our support program and answer questions from the community. This virtual event is free to attend and open to the public – to join us, register here: https://lnkd.in/giQu5Whi #CureDuchenne #Duchenne #DMD #RareDiseases
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Another insanely amazing story to share. When I sat down with Elliot he put all his cards on the table. He’s a young and ambitious System Clinical Manager who’s passionate patient safety and making a difference every in the field of pharmacy! Check out his story in celebration of #pharmacyweek
✨Pharmacy Week Spotlight✨ In celebration of Pharmacy Week 2023, today we are sharing Elliot Marino's inspiring story. In September 2021, CompleteRx System Clinical Manager, Elliot Marino became the patient when he was diagnosed with Stage IV Rectal Cancer. Despite his diagnosis, Elliot continues to defy the odds and today shows no signs of disease and is back in his pharmacy role. Check out Elliot's incredible story and learn about his journey and the incredible impacts he has made in the world Pharmacy! https://bit.ly/3QpzHny #PharmacyWeek #Inspiration #Resilience #CompleteRxStrong #PharmacyStrong
Pharmacy Week Profile: Elliot Marino, CompleteRx System Clinical Manager | CompleteRx
https://www.completerx.com
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Incredible results in a challenging study proves #Dermtech can accurately rule out melanoma greater than 99% of the time. Trust II is a follow up study on an already successful trial; which is rarely done. The reason being that the possibility of contradicting your initial positive results is a risk very few companies are willing to take. #Dermtech enrolled 8,000 more patients than Trust I to validate its claims as a first in class melanoma rule out test. The outcome provides concordance to TRUST 1 that the NPV for this test is still greater than 99%
The Trust 2 Study, initiated in 2021, enrolled over 20,000 patients tested with the DMT in a real-world clinical setting.
DermTech Announces Positive Topline Results From Trust 2 Study Evaluating the DermTech Melanoma Test (DMT) — Business Wire
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Clinical trial treatments at UW Health | Carbone Cancer Center have given Gary Davey more time to create new memories with his family. About 14 years after he was first diagnosed with prostate cancer, Gary now has no evidence of disease and leads an active lifestyle. Check out this video to hear more about Gary's treatments: https://lnkd.in/gdSz8EdR #prostatecancer #clinicaltrials #cancerresearch
Gary's clinical trial success
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"In Gary's situation, he was one of the first 20 patients who was enrolled and treated with this [#drug] combination. And it's because of Gary's participation in that trial that we figured out that not only is this effective, it can be effective for years and years of time. And now it's FDA approved across the world." - Dr. Joshua Lang, UW Carbone Cancer Center "They gave me an opportunity to live, and we've created a drug that's going to give those people with the same condition as me an option." - Gary Davey View the video below to learn more about Mr. Davey's inspiring journey. #cancer #clinicaltrials #clinicalresearch #university #Wisconsin #FDA
Clinical trial treatments at UW Health | Carbone Cancer Center have given Gary Davey more time to create new memories with his family. About 14 years after he was first diagnosed with prostate cancer, Gary now has no evidence of disease and leads an active lifestyle. Check out this video to hear more about Gary's treatments: https://lnkd.in/gdSz8EdR #prostatecancer #clinicaltrials #cancerresearch
Gary's clinical trial success
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WATCH: Experts discuss several recent data updates in polycythemia vera and myelofibrosis in the context of the treatment landscape and its impact on clinical practice. #oncology https://lnkd.in/e3eHM6K7
MAJIC-PV: Clinical Implications in PV
onclive.com
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OnCusp Therapeutics, Inc. has queued a Phase 1, first-in-human study of CUSP06, a cadherin-6 (CDH6)-directed antibody-drug conjugate, in patients with platinum-refractory/resistant ovarian cancer and other advanced solid tumors. CUSP06 is composed of a proprietary antibody with high CDH6 binding affinity, a protease cleavable linker, and an exatecan payload (a potent and clinically validated topoisomerase-1 inhibitor). The study has an estimated enrollment of 180 patients and start date in Feb 2024. #mabs https://lnkd.in/eH56GPSE
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Clinical trials can be used to study a variety of different cancer drugs and medical treatments, and real-world evidence can play an important role in supporting these trials. Watch this video blog featuring Dr. Nicholas Robert and Dr. Paul Conkling to learn more. #Oncology #ClinicalTrials #Healthcare #RWE
A Principal Investigator Perspective: Real-world Evidence Is a Powerful Tool in Bolstering Clinical Trials | Ontada
ontada.com
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I run a consultancy that empowers drug developers to navigate crowded treatment landscapes with confidence and achieve market success.
The process of finding and participating in a clinical trial can be crazy hard, as Bess Bess Stillman, M.D. and Jake Seliger capture so well in each of their descriptions of Jake's experience with head and neck cancer. Making this process easier is obviously a win-win-win (patients-investigators-sponsors). What can we do, as an industry, to make this happen? In the very-near term, for starters, I hope we'll see more sponsors revising traditional inclusion criteria to make studies more inclusive, facilitating easier access (e.g., childcare, transportation, flexible clinic hours) and gathering more patient input on trial designs. 84% of large Pharma companies currently have a public policy commitment to increase diversity in clinical trials. When it's this hard for a white guy to find and enroll in the study of his choice, expanding diversity is clearly a heavy lift. This is an all-hands-on-deck call to action for the clinical research ecosystem.
Phyisican, Writer, Clinical Trial Guidance @ bessstillman.substack.com & helpmefindaclinicaltrial.com
https://lnkd.in/ePKABvdP Why is the clinical trial process I’ve been writing about so broken? What can we do about it? Join me in part three…
Please be dying, but not too quickly, part 3: the end of the journey
bessstillman.substack.com
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