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In this interview, Dr. David Putrino shares the multifaceted research efforts focused on understanding and supporting individuals living with #LongCOVID. He delves into ongoing studies aimed at identifying specific symptoms, understanding long-term impacts, and developing targeted treatments to enhance patient care and support. Dr. Putrino also discusses future research directions, including long-term impacts and personalized medicine, and conveys key messages to patients about the importance of research, advocacy, and self-care. #AspenIdeasHealth #AspenIdeas

Advocacy groups urge Congress to create pathways to cover AI in healthcare More than a dozen patient advocacy groups on Monday urged Congress to help create a pathway for the Centers for Medicare & Medicaid Services to cover AI in radiology and other specialties. Patient groups want Congress to “formalize a payment pathway” for AI devices in the 2025 Hospital Outpatient Prospective Payment Systems rule. Those signing the letter included Patients Rising, ZERO Prostate Cancer and Practicing Physicians of America, among others. Imaging lobbying group AdvaMed also promoted the letter this week. Excellent article detailing the efforts of patient-centric stakeholders addressing the policy conundrum - complexities of establishing new payment pathways for a fast emerging sixth wave disruptor as AI. It will take continued collaboration across all stakeholder groups and hats off to all who are engaged and bringing innovative ideas to the mix to address this gap in health policy. https://lnkd.in/e8JXCcN3

Join us on August 21 for an insightful webinar where we'll break down the fundamentals of generics vs. biosimilars. Psychologist Roz Kalb, Neurologist Nancy Sciotte, and EVP, Advocacy and Healthcare Access from the National MS Society, Bari Talente will cover what they are, how they’re developed and FDA-approved, and whether they’re as effective as other treatments. Don't miss this opportunity to get informed about MS treatments! Learn more here: https://lnkd.in/ef_mFsms

Loved sitting down with Scott Schliebner to record this episode of the Clinical Research Coach! We discussed so many great topics, including: the importance of a growth mindset, building passionate teams, patient advocacy and patient centricity, building trust, reducing friction for patients and demonstrating ROI to gain support. Enjoy this episode! https://lnkd.in/eSmDDx5A #patientcentricity #patientinput #patientvoice #patientadvocacy #raredisease #drugdevelopment #clinicaltrials #clinicalresearchcoach

As this #HSAwarenessWeek begins, join me in recognizing this often misunderstood and underrepresented condition. UCB has been at the forefront of HS research and development, and we’re committed to working with the HS healthcare community to educate, advocate, and innovate on behalf of those impacted by the disease. Read more about our work to empower people living with HS through science, education, and advocacy: https://lnkd.in/eYEZZV48

This is an important message at a critical time in the management of medicine and health budgets in Australia. There is a delicate balance that we must strike in creating sustainable competition in the market through Biosimilars, appropriate pricing levels, improved efficiencies in accessing medicines, and investment in new medicines, all with the intended outcome of improving access to medicines for patients. https://lnkd.in/gsEk9ygB

Nicole Richie shared some valuable insights on Enhancing Diversity in Clinical Trials. One of the common false beliefs is that enrolling underrepresented populations will slow down enrollment. However, her company found that partnerships with physicians serving these communities have resulted in enrollment going 3x faster. They also witnessed a 60-80% increase in enrollment for studies from underrepresented populations. What are other myths you have heard around recruiting for a clinical trial from underrepresented populations? Let's work towards achieving diverse clinical trials. #diversetrials #clinicaltrials #minorityhealth

Our client had three objectives: - Strengthen commitment to patients - Gain access to unprompted insights - Increase therapy awareness among HCPs Learn how they achieved all three with us: https://hubs.la/Q02D2B0R0

The landscape of American medicine is shifting! A recent study shows nearly 80% of physicians are now employed by hospitals or corporations, with private practice on the decline. What's driving this trend? # Increased administrative burdens for independent practices. # Potential for better financial stability and resources with larger entities. # Consolidation within the healthcare industry. This shift raises questions about the future of #physician-patient relationships and #healthcare delivery.

✨Today we celebrate #ClinicalTrialsDay!✨ My daughter and I are proud to say we’ve participated in #ClinicalTrials. We’re just two faces of #ClinicalResearch. We join many of our family members and countless other individuals who participated over the years, all playing a key role in paving the way for #MedicalAdvancements. Thank you to those participants and their families. Your contributions and sacrifices have been significant but bring hope to others. Thank you to the #PatientAdvocates, #Researchers, #GeneticCounselors, #SiteCoordinators, and so many others who work tirelessly to fight for, design, implement, and oversee clinical trials. Thank you to the people working behind the scenes to support those efforts. Your commitment to advancing science, improving patient care, and saving lives is invaluable. We’ve come a long way in the evolution of #ClinicalResearch, but so much more needs to be done. Too many unnecessary barriers remain. Education and awareness initiatives must continue, especially in underrepresented communities. Financial burdens must be alleviated. Trust needs to be built. However, all of these are possible if we work together. Reach out to each other. Share ideas. Support one another. Above all….look to the patients. They are the experts needed to succeed. Let’s join forces to improve healthcare for all. 💪🏽🙌🏽 #FabryDisease #EhlersDanlosSyndrome #Neurofibromatosis #RareDiseases #ThankYou #HealthcareHeroes #BreakingBarriers #ClinicalTrialsForAll #PatientEngagement