Living with ALS - The Essential Role of Psychosocial Support: A Story from the BRAINTEASER Community of Practice #ALSpatients face gradual motor function loss, deeply impacting daily life. Families often become primary #caregivers, significantly affecting their well-being. Comprehensive #psychosocial support is crucial from #diagnosis through end-of-life stages, addressing emotional and behavioral needs. Key areas include: ✅ Initial coexistence with ALS ✅ #Therapeutic decisions ✅ End-of-life stages The BRAINTEASER Project - which InSilicoTrials is part of - is a #datascience project that seeks to exploit the value of #bigdata to support patients with Amyotrophic Lateral Sclerosis #ALS and Multiple Sclerosis #MS as well as their #clinicians.
#BRAINTEASER #CommunityofPractice stories 🆕 ⤵ #Patients with #AmyotrophicLateralSclerosis face gradual loss of #motorfunction that significantly impacts the quality of their daily life. In parallel, family members often become the primary #caregivers for #ALS patients, assuming the responsibility for their daily care and well-being. ➡ Navigating the challenges of #ALS requires a comprehensive approach that addresses both the physical and psychosocial aspects of the disease. From the initial diagnosis to the end-of-life stages, tailored #psychosocialsupport is essential for enhancing the well-being of patients and their caregivers. 👉 Read more: https://lnkd.in/dJhBeiFm ➡ And JOIN US: https://lnkd.in/dj7GHNSG #HorizonEurope European Health and Digital Executive Agency (HaDEA)
