INSIGHTEC’s Post

We are thrilled to see this crucial research published https://lnkd.in/g6Kyvc24 by in the Medical Journal of Australia, and appreciate the hard work of Dr Cecilia Ng and A/Prof Mike Armour and Donna Ciccia in shedding light on the research priorities for #endo The authors state "We developed priority areas for endometriosis research by polling members of the Endometriosis Australia’s closed Facebook group. We surveyed online not only people with a diagnosis of endometriosis but also their friends and family. The survey was circulated via Endometriosis Australia’s social media platforms (Facebook, Instagram) and their mailing list. People were asked to rank the 16 identified research areas (five general and 11 specific) in order of importance from 1 (most important) to 16 (least important).We received 1169 completed responses, from those with endometriosis (91.3%), family members (4.7%), partners (2.4%) and friends (1.6%). The top 10 (in order) were: Does repeat surgery for endometriosis improve patient outcomes? What is the effect of moderate to severe endometriosis on fertility? What early life factors may predispose to endometriosis? What is the financial burden of living with endometriosis? Can ultrasound reliably detect early endometriosis without surgery? Is there a blood test that could screen for endometriosis early? What is the efficacy of using medical cannabis for endometriosis-associated symptoms? What is the quality of life and psychological impact of endometriosis? What is the effect of diet and lifestyle interventions (like engaging in regular, graded exercise) on the symptoms of endometriosis? What is the efficacy of using melatonin for endometriosis-associated symptoms?" Western Sydney University UNSW #pelvicpain #womenshealth #morethanjust #endoawareness

In all that we undertake it is crucial that we first establish: how does this benefit those with #endometriosis, as highlighted by A/Prof Mike Armour and Cecilia Ng below ⬇️ #womenshealth #womenshealthmatters

Congratulations to Elsevier book editors Pere Clave (Universitat Autònoma de Barcelona, CIBERehd, Consorci Sanitari del Maresme, Instituto de Salud Carlos III) and Omar Ortega (Hospital de Mataro, CIBERehd, Instituto de Salud Carlos III) for the publication of "A Multidisciplinary Approach to Managing Swallowing Dysfunction in Older People." This new book provides a comprehensive examination of oropharyngeal dysphagia (OD) within the geriatric context. Key Features: 🔍 Thorough coverage of swallowing impairments in older adults 🔍 Exploration of OD as a newly classified geriatric syndrome 🔍 State-of-the-art research on pathophysiology, diagnosis, treatment, ethics, and potential complications Whether you seek to refine your clinical practice or engage in translational research, this publication provides essential knowledge and tools for effectively managing OD in older patient populations. Secure your copy today and enhance your approach to addressing swallowing dysfunction in the elderly. #GeriatricHealth #DysphagiaResearch #HealthcareInnovation

Attn: Clinicians, Researchers and Advocates. Got IDEAS for federal funding for the epilepsies? Please share them by 8/12 https://lnkd.in/eKZ77Tv3  If you are reading this - consider submitting your priorities no matter how big or small! Learn more about this initiative at https://lnkd.in/esB7nVHD

Geographic Atrophy (GA), the advanced form of dry age-related macular degeneration, is a leading cause of legal blindness. The condition presents a substantial burden to patients and their caregivers alike. To date, however, this burden has gone largely undocumented.   Modus Outcomes collaborated on MOSAIC, a multi-country, mixed-methods research project aimed at better understanding and documenting the burden of disease experienced by GA patients and their caregivers.   The findings of this pioneering study are being presented at multiple meetings of relevant professional associations this year. Country-specific results from Germany were shared last month at the DOG Deutsche Ophthalmologische Gesellschaft 2023 congress in Berlin. On November 14, 2023 MO's Senior Statistician Stéphane Quéré will present pooled European results at ISPOR—The Professional Society for Health Economics and Outcomes Research Europe 2023 Congress in Copenhagen.   Will you be attending ISPOR? If so, please reach out to Tara Willoughby, Business Development Coordinator, Modus Outcomes (a THREAD company), to set up a meeting with Stéphane Quéré or members of the MO leadership team Stefan Cano, Antoine Regnault, or Grégoire Desplanques.   We look forward to seeing you at #ISPOREurope!   #ISPOREurope #PCOR #patientvoice #PRO #outcomesresearch #conferencing #Ophthalmology #GeographicAtrophy

Resharing this insightful article from Ceclia Ng and A/Prof Mike Armour from our Endometriosis New Zealand Clinical Advisory Committee, that sheds light on the importance of patient-centred approaches in the management of endometriosis. Well worth a read when you have the time. 

Calling ALL Epilepsies Stakeholders! Clinicians, Researchers and Advocates. Please share this invite with your thought leaders, Boards, advocates and constituents! If you are reading this - consider submitting your priorities no matter how big or small! Got IDEAS for federal funding for the epilepsies? Please share them by 8/12 https://lnkd.in/eKZ77Tv3 Learn more about this initiative at https://lnkd.in/esB7nVHD

Our third Research Funding Sandpit will be an opportunity to hear more about the Hub’s upcoming funding call for collaborative research projects up to £100k themed around Frailty, fall prediction and fall prevention. Over the afternoon, attendees will hear from key problem owners, collaboratively develop new project ideas, and network with potential partners from companies, academia, NHS, social care, and VCSEs across the Digital Health community. We will also be announcing the application process for the Hub’s fellowship schemes (https://lnkd.in/ewjkxayG) at this event. Key information: Monday 10 June 2024 14:00 - 18:30 Venue: M Shed, Princes Wharf, Wapping Rd, Bristol BS1 4RN Application deadline: Tuesday 28 May Application form: https://lnkd.in/eDM6xNZA Theme 3: Frailty, fall prediction and fall prevention Falls are a leading case of hospital admission in older adults and a major priority for the Hub’s partner organisations. Predicting and thereby preventing injury such as hip fracture could help many older adults remain independent and well in their own homes. Digital Heath (and care) opportunities include: 1. Wearable and video analytics to predict risk of falling. 2. Technologies that support the delivery of interventions, including physiotherapy, rehabilitation, social care and support. Places for this event will be limited, and in order to achieve appropriate representation across sectors and across the region we will need to review applications prior to registration.

New paper on ALS/MND with Isabel Vandenbogaerde, Aline De Vleminck and collaborators at the End-of-Life Care Research Group: Thank you for our collaboration on this superb qualitative longitudinal work in a patient population close to my heart. Some take aways: "A variety of factors related to coping with the disease or relational dynamics play a role in constructing people’s ideas, thoughts, and feelings about future care and treatment preferences." "Psychological, social, and medical factors are interwoven and cannot be seen as separate entities in advance care planning." "Advance care planning is complex, and patients, family carers and healthcare professionals all play an important inter- twined role in the construction of these experiences." "More attention to these complexities of advance care planning is needed in future research, policy, and practice."

🧠 Today is #WorldEpilepsyDay, a day to celebrate innovation and raise awareness about #epilepsy, a condition that affects over 50 million people worldwide. 🌎 💡 At CSEM, we are proud to collaborate with Insel Gruppe to advance individualized treatment for epilepsy. ➡ Explore how continuous ambulatory long-term monitoring is revolutionizing care: https://lnkd.in/eAzGjsyF Launched in 2023, in the frame of the Bern Medtech Collaboration Call, CSEM and Universitätsspital Bern, Inselspital are now preparing a clinical study in which late(r)-onset-epilepsy patients will be monitored with the “ULTEEMNite” solution. The overarching goal is to individualize epilepsy treatment and find connections between sleep and epilepsy. Let’s empower patients and clinicians to actively manage epilepsy together! Together, we can pave the way towards a brighter future, a future of personalized, effective care. Share your thoughts on this topic and join the conversation. 👇 💙 #WorldEpilepsyDay #EpilepsyAwareness #InnovationInHealthcare