Great Ormond Street Hospital for Children NHS Foundation Trust’s Post

We're delighted to see the impact of this UK first for #epilepsy treatment. ✨ A multi-disciplinary team from GOSH, the University of Oxford, UCL and the Royal Academy of Engineering recently came together to deliver the first UK clinical trial in children of deep brain stimulation for a type of severe epilepsy called Lennox-Gastaut Syndrome. 13-year-old Oran was the first patient to benefit from this clinical trial, which began here at GOSH. Watch his journey in the video below 👇 Surgical, nursing, neurology, imaging, anaesthetics, neurophysiology and many more teams have worked tirelessly to deliver this life-changing research and Innovation for the first patient, led by Martin Tisdall, Consultant Paediatric Neurosurgeon at GOSH and Honorary Associate Professor at UCL. Martin said: “Every single day we see the life-threatening and life-limiting impacts of uncontrollable epilepsy. It can make school, hobbies or even just watching a favourite TV show utterly impossible. “Deep brain stimulation brings us closer than ever before to stopping epileptic seizures for patients who have very limited effective treatment options.” Oran’s seizures started two weeks after his third birthday and up until the trial he hadn’t had a single day without a seizure. He needed round-the-clock care. Oran’s Mum Justine said: “We’ve tried everything, but this is the first real shot we’ve been given in years, there has been no ‘what next’ until now. “Unless somebody takes the first step on a trial like this, there is never going to be a better, and there has to be a better for our family. "We’ve seen a big improvement; seizures have reduced and are less severe. That’s been great but the quality-of-life improvement has been invaluable for Oran. “The team really do have your back. We never felt alone, from last August [when we joined the trial]. We were made to feel part of the team and so was Oran.” “The future looks hopeful which I wouldn’t have dreamed of saying six months ago. For Oran, having hope brings excitement. It makes the future brighter and more attainable even. I’m really pleased that Oran gets to experience that.” #DBS #Epilepsy #Research

Ula Nec

Operations and Business Administration Officer

2w

Epilepsy is a beast that not many people understand. My son was a patient of GOSH, it was a very scary time for the family especially in Covid times. Good luck to Oran! hopefully the medicine will answer all questions around epilepsy and will be able to help many children and adults ❤️

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Jasmin Heer

Supporting private & NHS healthcare providers to build a efficient & long-term workforce

2w

Amazing contribution to healthcare as always Great Ormond Street Hospital for Children NHS Foundation Trust

Kirsty Storey

Learning Disability Nurse

4d

Great work team

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Michele McIntyre

Radiographer at Dr Burger Radiologists

2w

Awesome 👏

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