Fulcrum Therapeutics’ Post

When you are diagnosed with a complex illness like Long COVID or ME/CFS, it often feels as if you are fighting this battle alone. 👤 The RTHM Community brings together other patients navigating a similar health journey and allows you to connect, ask questions, and form bonds that can help you better navigate your journey. 👥 The RTHM Community is free ━ and delivers the latest research & educational content to help you become an informed patient and better understand the conditions affecting your quality of life. 👉But it is not limited to just patients.👈 The RTHM Community provides a wealth of knowledge for family members, caregivers, and even other medical professionals who are looking to learn more about these often misunderstood conditions. Join the RTHM Community! 🔗: https://lnkd.in/g2Z2vrwg #rthm_health #pwLC #longhaulers #longcovid #MECFS #pwME #SevereME #InvisibleIllness #POTS #MCAS #ChronicIllnessWarriors #SpoonieLife #ZebraStrong #MillionsMissing #YouAreNotAlone

This #NationalChildsDay we want to share the impact of the Systems of Care framework: 👉 Improvements in child functioning; 👉 Reductions in internalizing and externalizing symptoms; 👉 Decreases in suicide attempts by 81%; 👉 Decreases in unlawful activities by 48%; 👉 Increases in school attendance by 18%; and 👉 Increases in the proportion of children receiving C grades or better by 28%. TxSOC is dedicated to giving children the tools to grow to their fullest potential through the Systems of Care framework. Learn more about the initiatives of TxSOC: https://lnkd.in/gJiXBcji #systemsofcare #TxSOC #mentalhealth #mentalhealtheducation

According to the LBDA, "LBD affects every aspect of a person – their mood, the way they think, and the way they move. People with LBD and their families will need considerable resources and assistance from healthcare professionals and agencies. The combination of cognitive, motor and behavioral symptoms creates a highly challenging set of demands for continuing care. LBDA was formed to help families address many of these challenges." Empowering Care Partners CARE with Compassion, Acceptance, Reliability, and Education. To learn more, register for a FREE 30-minute initial consultation! https://lnkd.in/gSE7U27f #empoweringcarepartners #dementiacare #caregiversupport #empoweringCAREtips #puttingthepiecestogether

A systematic review of 57 studies into palliative care (PC) best practices recently appeared in Age and Ageing journal. It identified standardized interdisciplinary team meetings, volunteer involvement, and early intervention as the keys for successful PC intervention. Community health workers were also identified as impactful. These components led to more home deaths, less hospitalizations, and higher patient and family satisfaction. It is vital to understand the mechanics of why PC works. To dive deeper, please check out my blog: https://okt.to/0Qw3Vy Research Identifies the Most Essential Components of Palliative Care Programs - Hospice News https://okt.to/HzChwc

MRFF 2024: “Promoting Safer Families: Strengthening primary care to sustainably address domestic and family violence”   We are proud to announce we will be leading this world-first trial on generating evidence for DFV women victim-survivor's outcomes from a primary care system intervention.     Funded through the Medical Research Future Fund Primary Health Care Grant we will evaluate the impact on women’s mental health and sense of safety from implementing novel interventions in general practice (including Medicare item for family safety assessment planning, clinical decision tool for GPs and peer care navigator to support affected women) #DFV #research #primarycare #generalpractice

Research shows that people experiencing domestic and family violence (DFV) tend to speak about their situation to family or friends first, and then their GP. Women are twice as likely to disclose DFV and abuse if they’re asked by their GP or nurse in the general practice. That’s why – in partnership with Wentworth Healthcare Limited, provider of the Nepean Blue Mountains Primary Health Network – we offer free training to better equip GPs and health professionals to recognise DFV in their patients, respond safely to disclosures, and refer them to appropriate services in their area. Our DFV Linker service provides free, safe and confidential support to anyone experiencing DFV in the Blue Mountains, Hawkesbury, Lithgow and Penrith Regions, via their local GP or health professional. To access the service, anyone can book an appointment with their GP and let them know they’d like a referral to DFV Linker. If you're a GP or allied health professional, visit our website to learn how our training can help you provide potentially life-saving support to your clients. #enddomesticviolence #domesticviolenceawareness

🎥 2 mins: Rosie Gaston, MSW, LICSW, APHSW-C of A Better Ending and Rick Aizpuru, MD, RVT of Thanacare speaking on the significance of April 16th #NationalHealthcareDecisionDay and importance of ✍ 📝 #advancecareplanning #advancedirectives and #endoflifeplanning

A new open access article from Nova Fellow Carley Riley and colleagues investigates barriers to interventions such as Infant Well Child Visits (WCVs) and underscores the importance of caregiver perspectives when designing interventions. WCVs provide an opportunity for children and families to receive support and prevent adverse health outcomes, however, babies of low-income and Black families often do not receive the recommended schedule of visits. Community peer researchers interviewed caregivers who were primarily Black and insured through Medicaid, finding that they often relied on family and community guidance for healthcare decisions and cited racism, perceived judgment, and being rushed as significant barriers to WCV attendance. This study highlighted themes of trust, empathy, shared decision-making, and racial concordance between medical providers and caregivers as critical factors in promoting WCV attendance. Authors also point to several opportunities for systemic improvements in intervention design and implementation and future directions for research. Read: https://ow.ly/8TlY50RKjTr

The HEADs Up Act 🧩🌟 This piece of legislation will play an incredibly crucial role in helping individuals with intellectual and Developmental Disabilities get access to healthcare, oral healthcare, and behavioral healthcare. Here’s what you need to know 👇 🌟 The HEADS UP Act is legislation that was introduced to Congress May 16, 2023. It was introduced by US Representatives Seth Moulton (D-MA-06), Brian Fitzpatrick (R-PA-01), Debbie Dingell (D-MI-06) and Joseph Morelle (D-NY-25) There will be a Lobby Day at the US Capitol July 23, 2024, to advocate for the HEADs UP Act! We are honored that one of our board members, Sean B., will be in attendance. 🌟 If the HEADs UP Act is passed, it will allow the United States Department of Health and Human Services to award grants to health centers that provide care to individuals with I/DD. 🌟 Many individuals with I/DD need access to specialized care making it incredibly difficult to get basic primary care. The HEADs UP Act aims to fund organizations making treatment better, more personalized, and more readily available to these underserved communities.