enGenome’s Post

I am thrilled to share an article I had the pleasure of writing in collaboration with enGenome, where we tackle a highly relevant and timely issue: genetic discrimination. In this piece, we examine the ethical, legal, and social implications of genetic discrimination, exploring how genetic information can be used and what measures can be taken to protect individuals from discriminatory practices. A huge thank you to Giovana Herold for her invaluable support and collaboration. Read the full article here: https://lnkd.in/dtwnKEYk #Genomics #GeneticDiscrimination #enGenome #Ethics #Genetics 

Integrating precision medicine into clinical practice offers immense benefits for patient care but also poses significant challenges and ethical considerations that need careful navigation in the coming years. 🔎 Our newest blog post summarises key issues, including genetic discrimination, data sharing, and legislation. 👇 https://lnkd.in/e3nKvssZ #Genetics #PrecisionMedicine #ClinicalTrials

So... how should you get your genes tested?? Before getting your tested, consider the following: 1. Purpose: Consider what information you want (ancestry, health risks, carrier screening). 2. Accuracy & Coverage: Research company reputation and test comprehensiveness. 3. Privacy & Security: Understand how your genetic information will be used and protected. 4. Cost & Insurance: Compare costs and explore potential insurance coverage. 5. Genetic Counseling: Consider seeking guidance from a professional to interpret results and understand implications. You can read more about some pros and cons between genetic tests you can buy on your own vs. those ordered by your healthcare provider here: https://lnkd.in/gu6HmNcS Overall, if you are curious about your genetics, consider some of the direct-to-consumer products. However, if you are worried about cancer genetics or family planning, talk with your healthcare provider. Good luck with your self-discovery!

At Genetic Support Foundation, we advocate for improvements in the sustainability and accessibility of genetic counseling services, which is hindered by a lack of equitable reimbursement by insurance. GSF Executive Director Katie Stoll writes about the history and current reality of this problem in her new article, "Financial Challenges in the Fight for Independent Genetic Counseling Services." 🏦 Read now by visiting www.blog.genetic support foundation.org! #GeneticCounseling #InsuranceReimbursement

The FAAA has backed life insurers being able to self-regulate on genetic testing albeit subject to three-year regulatory reviews. https://lnkd.in/gaSKvG7Y #asic #cali #faaa #fsc #lifeinsurancecodeofconduct

Important resource for parents with babies. Read below and learn how you can get free genetic testing and counseling and also contribute to a study about the value of genetic testing. Please read and share! Thank you to Effie Parks from Once Upon A Gene for always sharing such important information. #genetictesting #raredisease

Genetic testing scams are on the rise in the US. With the increasing number of testing companies manufacturing direct-to-consumer testing kit, the issue is only expected to rise further as it will become easier for lab owners to get access to genetic testing kits and scam Medicare beneficiaries. Interesting to hear out views from my diagnostics friends. #genetictesting #diagnostics #healthcareindustry #perspectives  #eosintelligence #diagnosticservices #medtech #medtechindustry https://lnkd.in/dCSKY9gS

BlueCross BlueShield of Tennessee Update: Important Changes for Genetic Testing Approvals (Applies to commercial plans only) Starting from June 1, 2023, there are some new rules you should know if you work with commercial insurance plans. They affect the process of getting approval for certain genetic tests, and you'll need to get approval through the EviCore Genetic Testing Program. Here's a list of the new codes that now require approval: ·       0364U ·       0365U ·       0366U ·       0367U ·       0368U ·       0369U ·       0370U ·       0371U ·       0372U ·       0373U ·       0374U ·       0375U ·       0376U ·       0377U ·       0378U ·       0379U ·       0380U ·       0381U ·       0382U ·       0383U ·       0384U ·       0385U ·       0386U There are also some changes to the descriptions of these codes: ·       0022U: They updated this one to remove information about testing for cholangiocarcinoma (a type of cancer) in OncomineDX Target testing.   ·       0095U: They made some small changes to the wording, but nothing major. Here's some good news: They're removing these two codes from the list that needs approval from the Evicore Genetic Testing Program: ·       0324U ·       0325U (These are related to 3D Predict tests) If you have questions or need more info, you can reach out to their team. #winwithbestwishes #rcm #rcmindustry #arcallers #InsuranceUpdates #SharingKnowledge #GeneticTesting #ApprovalProcess

We're pleased that a number of states have enacted legislation to include rapid Whole Genome Sequencing (rWGS) for critically ill infants since RCIGM completed Project Baby Bear in 2021. Additionally, major insurance carriers have incorporated it into their covered procedures. In 2023, the number of states in which rWGS is covered grew to 14. As we head into 2024, we hope more states and insurers will join the efforts to enhance support for families with children facing uncertain diagnoses. More: https://lnkd.in/gYZ9mjvp #RareDisease #RapidPrecisionMedicine #WholeGenomeSequencing #NewbornScreening