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Advocacy is crucial!

Carl Lander is on the latest episode of Just Listen sharing the value of The Peak Registry in helping doctors and researchers better understand PK deficiency by collecting and assessing information on how patients of all ages are affected. Tune in wherever you get your podcasts to hear the entire episode! .. Available now: www.JustListenPod.com .. Just Listen: Voices of PK deficiency is a podcast about pyruvate kinase (PK) deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PK deficiency. Each episode of the Just Listen: Voices of PK deficiency podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community.  .. Just Listen: Voices of PK deficiency is sponsored by Agios Pharmaceuticals. Visit Agios.com to learn more. .. Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD. .. This podcast is not intended as medical advice. Please consult your healthcare team with any treatment-related questions. The Peak Registry is a global longitudinal study of patients diagnosed with pyruvate kinase deficiency sponsored by Agios Pharmaceuticals, Inc. .. #PKDeficiency #RedBloodCellDisorder #HereditaryDisease

Because PK deficiency is rare, it can be difficult to collect information on how the disease and its treatment affect different people. On this episode of Just Listen: Voices of PK Deficiency, Dr. Grace speaks with Carl Lander about how The Peak Registry seeks to help doctors and researchers better understand #PKdeficiency by collecting and assessing information on how patients of all ages are affected. Tune in here: https://lnkd.in/emwJZZPy Just Listen: Voices of PK Deficiency is a podcast about PK deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by #PKdeficiency. Each episode of the Just Listen: Voices of PK Deficiency podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community. Just Listen: Voices of PK Deficiency is sponsored by Agios Pharmaceuticals Inc. Visit Agios.com to learn more.   Listen, rate, review, and subscribe wherever you get your podcasts! This podcast is intended for informational and educational purposes only, and is not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD.

Our latest podcast of The Life Science Report is live! 🎙️    Join colleagues Peter Bak and Christian Thienel as they delve into the dynamic world of renal development. This brief yet comprehensive conversation explores the latest in healthcare development news, spotlighting the ongoing evolution of #kidneydisease treatments and recent commercial activities in the field.     Don't miss out on the insights, tune in to the full episode here: https://bit.ly/3G127hE      #LifeSciences #HealthcareInnovation #PodcastAlert #BBLSA #HealthcareNews 

🩸 Unlocking the Secrets of Blood Transfusions: Prepare to be Amazed! 🌟 😍 Get ready for a mind-blowing journey into the world of blood transfusions in our latest episode! 🎙️ bit.ly/47QmyKT 🎧 Join us as Carly Newton and Lori Harada, the dynamic duo of registered nurses and managers at Terumo Blood and Cell Technologies, take us behind the scenes. 🌟 💉 These healthcare trailblazers unravel the mysteries behind blood transfusions, shedding light on their significance, the benefits of blood donation, and how they positively impact sickle cell patients. 🩸 🔍 Explore the varied landscape of transfusion therapies, from urgent life-saving interventions to enhancing overall well-being. 🏥 🎙️ Tune in for an enlightening conversation that will reshape your understanding of this medical marvel. 🍏 You can also listen to the full episode on Apple Podcasts 🍏: apple.co/30PvU9C . . . #TransfusionTherapy #SickleCellAnemia #RedBloodCellExchange #HemoglobinS #Anemia #PainCrisis #IronOverload #ChelationTherapy #GeneTherapy #BloodTypes #Plasma #Platelets #BloodShortages #BloodDonation #CrossMatching #Antibodies #BloodCenters #BloodInventory #HealthcareAdvancements #Findinggeniuspodcast #Healthpodcast #InternalMedicinepodcast #Biosciencespodcast

On this episode, Dr. Rachael Grace is in conversation with Dr. Sujit Sheth about iron overload. You’ll learn about iron overload and why it occurs in pyruvate kinase deficiency. Dr. Sujit Sheth explains the potential complications as well as the importance of managing and monitoring iron overload.  .. Listen, rate, review, and subscribe wherever you get your podcasts! Or by clicking here: www.JustListenPod.com .. Just Listen: Voices of PK deficiency is a podcast about pyruvate kinase (PK) deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PK deficiency. Each episode of the Just Listen: Voices of PK deficiency podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community.  .. Just Listen: Voices of PK deficiency is sponsored by Agios Pharmaceuticals. Visit Agios.com to learn more. .. Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD. .. This podcast is not intended as medical advice. Please consult your healthcare team with any treatment related questions.  .. #RedBloodCellDisorder #HereditaryDisease

I recently had the chance to sit down with @Ian Wendt and Dr. @Na-Ri Oh on the RealPharma podcast. You can hear the episode here: https://lnkd.in/gVtzdPG3 We cover a variety of topics related to public health, including Operation Warp Speed, diversity in clinical trials, improving healthcare access and outcomes, addressing health inequities, collaborative approaches in healthcare, challenges with pricing models, the importance of prevention and health literacy, and lessons learned from COVID-19. We also discuss the impact of political pandering on public health messaging and the erosion of trust in the CDC. We consider the need for proper funding and communication in the CDC to effectively respond to public health crises. This discussion also highlights the importance of practical information and listening to the public, as well as supporting public health workers. The conversation also touches on the reputation of the pharma industry and the paradox of trust and distrust in public health organizations. I hope you can join us for this thoughtful conversation.

💡 Three members of the RWE4Decisions Steering Group discuss the opportunities and challenges for stakeholders' collaboration to develop robust Real-World Evidence that can inform healthcare decision makers. “We need to continue to think about the lifecycle approach to RWE generation, identifying very early when we might need RWE for evaluation of medicines by regulators or HTA and then for conditional reimbursement and treatment optimization.” - Karen Facey “Another critical issue is transparency. So far, data are not public and only reports on each and every drug is published whenever possible. A shift to an interactive dashboard within our sysem is in production to make timely data available to everybody.” - Carlos Martín Saborido, about Valtermed 🇪🇸 “The European Health Data Space (EHDS) has the potential to accelerate the use of RWE, however in order for it to do so it will be important to reach a critical mass of data – something which can only be achieved if enough citizens consent to sharing their health data. Therefore, an opt-out mechanism for consent should be included in the proposal rather than an opt-in mechanism, as the latter could lead to too low participation.” - Alexander Natz 🎙 Listen to the podcast here: https://lnkd.in/eJ69fpv2 EUCOPE - European Confederation of Pharmaceutical Entrepreneurs

FeNO testing and spirometry can make a valuable pairing in asthma care. In our latest podcast episode, we’re looking at how these two pieces of the respiratory puzzle can help to complete the picture. Listen today: https://lnkd.in/euzVHw-P