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NEW ASPE OS-PCORTF Report Highlights Projects Advancing Patient-Centered Outcomes Research Data Capacity Conducting health services research requires access to longitudinal data on a variety of health care topics. A new report from the Assistant Secretary for Planning and Evaluation (ASPE) highlights 36 projects that offer resources developed for researchers by researchers to support patient-centered outcomes research (PCOR). Funded by the Office of the Secretary’s Patient-Centered Outcomes Research Trust Fund (OS-PCORTF), projects are working to strengthen data infrastructure by addressing data needs for priority topic areas, developing data standards and data linkage methods, improving data access and interoperability, and building capacity for generating patient-centered evidence. Learn more about these projects and see how they can support your work in the OS-PCORTF 2023 Annual Portfolio Report here: https://lnkd.in/eyz6aA-w

If you want to brush up on your implementation, knowledge mobilisation and impact skills, check out our cross-ARC guide. This guide signposts you to a variety of resources created either by one of the Applied Research Collaborations (ARCs) or by our funder the NIHR (National Institute for Health and Care Research). #KnowledgeMobilisation #KM #Implementation #Impact #ResearchImplementation #ResearchImpact #Research https://lnkd.in/etD5bi_4

Great to see the first paper in this series published! The series will be an important resource for health preference researchers.

Our #deidentified health information can help you improve scientific research with over 20 years of long-term and post-acute care (LTPAC) data. Please follow our new Life Sciences by PointClickCare page for educational information about data, long-term care, upcoming events, and more! 🌎 🧬

The International Conference on Health Research 2024 (ICHR-24) is happening on April 26-28th, but before the main event, boost your clinical trial expertise with our pre-conference workshop, "Nuts and Bolts of Clinical Trials." Become an expert in conducting high-quality research in low- and middle-income countries. This workshop equips you with: • Proven strategies for designing pragmatic trials. • Secrets to differentiating high-quality research. • Mastering the art of writing and registering protocols. • Solutions for overcoming financial hurdles in research. • Skills to develop and adapt interventions effectively. • Effortless recruitment and follow-up techniques. • Simplified data management and statistical analysis methods. • Crafting a winning publication plan to share your research. Don't miss this opportunity to elevate your research game! Register now: https://shorturl.at/BNQR1 For inquiries: • Call/WhatsApp: 0312-9646526 • Email: [email protected] #RMI | #ichr24 | #HealthcareExcellence | #ClinicalTrials

Real-world intelligence on patient diversity and social drivers of health is crucial for life sciences organizations aiming to achieve diversity goals in their studies. The challenge lies in the difficulty researchers face in collecting and interpreting SDOH data effectively. Diverse and representative data is a key component for the success of any study. Our team has recently outlined strategies to help ensure that your study meets its diversity objectives. Learn more about powering diverse and representative clinical planning and protocols here: https://lnkd.in/euUYFPmu

New paper is out! Special congratulations to Patricia Cervera de la Cruz for publishing her first paper resulting from her PhD project on fairness in secondary uses of health data. In this paper, our review shows that balancing individual and public interests, reducing power asymmetries, setting conditions for commercial involvement, and implementing benefit sharing are essential to guarantee fair secondary use research. https://lnkd.in/ei_hMfnG

As health IT innovations advance at a rapid pace, enhancing patient-centered outcomes research (PCOR) data infrastructure is more critical than ever. A new report from the Assistant Secretary for Planning and Evaluation (ASPE) highlights 36 projects funded by the Office of the Secretary’s Patient-Centered Outcomes Research Trust Fund (#OSPCORTF) that are building data capacity, expanding longitudinal data resources, leveraging technology to advance research, and advancing person-centeredness, inclusion, and equity. Learn more about these projects and see how they can support your work in the OS-PCORTF 2023 Annual Portfolio Report here: https://lnkd.in/eyz6aA-w

Work with Health Improvement Assessment for developments? To support our set of insight films Edward Kirton-Darling outlines our research in this area with a set of recommendations in a new blog: ▶ A clear statement of the HIA requirement in Local Plan policy wording. ▶ An unambiguous trigger for an HIA within policy wording. ▶ A clear scope for an HIA within policy wording. ▶ Be explicit about proportionality, with precision about the scale of HIA required depending on the size and/or type of development proposed. ▶ Consider setting out the HIA process. ▶ Consider the outcomes of HIAs. ▶ Include explicit metrics. Thanks to all our interviewees and Beeston Media for the production. 🔗 Link to blog: https://lnkd.in/evTv8NN9

At today‘s conference on „Data usage in the EHDS“ at the Bavarian Academy of Science, Inderpal Bhandari shared some learnings why Watson failed to deliver against the very high expectations. Main reasons are rooted in data complexity, integration issues and contextual understanding of the data. EHDS will face similar challenges with regard to data fragmentation and integration. Great example from Finland during the panel moderated by Christian Dierks from Päivi Sillanaukee how to do it right: only 200 of 5 mio citizens opted out from the Finnish national health record. Kenneth Ahrensberg shared a success case from Denmark: they keep control over health data but allow access to central health data via their national Research Data Platform. Both panelist emphazised the high relevance of trust that patients need to have in the data management in particular for secondary use of health data. Finland had a vivid public debate involving patients and researchers to build consensus. It will be interesting to see if the EU follows a similar approach for the EHDS. Looking forward to the next panel moderated by PD Dr. med. Dominik Pförringer on how to get it right in Germany. #EHDS #digitalhealth