AcademyHealth’s Post

A community is also a place where you know that 𝐩𝐞𝐨𝐩𝐥𝐞 𝐡𝐚𝐯𝐞 𝐚 𝐬𝐢𝐦𝐢𝐥𝐚𝐫 𝐬𝐭𝐨𝐫𝐲 𝐭𝐨 𝐲𝐨𝐮, 𝐚𝐧𝐝 𝐭𝐡𝐚𝐭 𝐭𝐡𝐞𝐲 𝐮𝐧𝐝𝐞𝐫𝐬𝐭𝐚𝐧𝐝 𝐰𝐡𝐞𝐫𝐞 𝐲𝐨𝐮’𝐯𝐞 𝐛𝐞𝐞𝐧. For years, we’ve had our own TAPS-specific space online, which started as a space for 10 people who felt lost in the twin groups, as there was not much information about TAPS. As we move towards 2024, we are 𝐚𝐛𝐨𝐮𝐭 𝐭𝐨 𝐡𝐢𝐭 𝟏𝟎𝟎𝟎 𝐦𝐞𝐦𝐛𝐞𝐫𝐬, and this includes not only families with a TAPS diagnosis, but also their friends, grandparents, aunts, etc, and medical professionals eager to learn more about our rare disease, and the questions patients ask. 𝐎𝐮𝐫 𝐜𝐨𝐦𝐦𝐮𝐧𝐢𝐭𝐲 𝐢𝐬 𝐚 𝐬𝐚𝐟𝐞, 𝐞𝐯𝐢𝐝𝐞𝐧𝐜𝐞-𝐛𝐚𝐬𝐞𝐝 𝐩𝐥𝐚𝐜𝐞 to ask your questions, and to 𝐠𝐞𝐭 𝐩𝐞𝐞𝐫 𝐬𝐮𝐩𝐩𝐨𝐫𝐭 – in fact, we’ve even been interviewed by the Times/Raconteur about how we work. Read more here: https://lnkd.in/ezWQ9mZg   Find our TAPS community here: https://bit.ly/3dqdeTR   #tapssupport #tapstwins #imbaw2023 #community #multiplebirths

🚀 By developing privacy-first software and making the code freely available, our mission remains to enable public health authorities, researchers, and community groups to implement secure digital solutions for a variety of public health challenges - pandemics and beyond. As you think about your #GivingTuesday plans, we ask for your support as we embark on a new project that addresses the challenges of healthcare access and coordinated care for those experiencing #homelessness. Our new framework will enhance coordinated care and connect patients to medical and service providers, improving upon the practice of Street Medicine, and leading to better health outcomes and quality of life. 🤝 Thousands of people like you make it possible for us to deliver public health solutions with greater transparency and security. We rely on these donations to keep our code open and free. Together, we can build a future of healthcare equity and access for all! Link to read about NOSH in the comments! https://buff.ly/40NDFtw

Orygen has developed world-first guidelines to provide clinicians and service providers with clear and practical recommendations for integrating digital tools into clinical care for young people at risk of suicide. Co-developed with suicide prevention researchers, clinicians, and young people with lived and living experience of suicide, the guidelines aim to promote the uptake of potentially helpful digital tools into clinical care. Access for free: https://bit.ly/3xvV0ge

****JSM CORNER: JSM Corner - Several Announcements!***** 1. CWS Members get the discounted rate for the Joint Statistical Meetings (JSM) Did you know that CWS has a special relationship with ASA? That means our members get the “member rate” for the conference, even if you’re not an ASA member. The cost varies by when you register (Early Registration=$520. Regular Registration=$578. Late Registration=$635). Update your CWS membership here: https://lnkd.in/ecXFg2vU! 2. Be a Docent If this isn’t your first time at JSM and you’re willing to lend a helping hand, consider being a docent to help others. We need your assistance sharing your experiences at the “First Timer’s Reception” at noon on Sunday 8/4. Learn more here: https://lnkd.in/e45PbdX4 3. Tell us about your JSM presentation! Use this link: https://lnkd.in/eU32eHqx to tell us when you’re presenting. We’re pleased you were accepted and look forward to publicizing the sessions that feature our members. 4. Apply for the NISS Junior Researcher Writing Workshop A CWS member will be selected to participate in this popular short-course with both online and in-person (at JSM) sessions. Learn more about this opportunity here: https://lnkd.in/eS227R5T The registration deadline is June 30th. 5. JSM and Caregiver Grants - Apply starting May 1! As seen in the recent JSM acceptance emails: To encourage and support members attending JSM who have child and other care responsibilities, grants are now available to assist with these expenses. The ASA will reimburse members for the cost of privately arranged child or elder care up to $250 USD per family. Priority will be given to those presenting on the official JSM program. Up to 25 grants are available, and applications will open May 1.

When you are diagnosed with a complex illness like Long COVID or ME/CFS, it often feels as if you are fighting this battle alone. 👤 The RTHM Community brings together other patients navigating a similar health journey and allows you to connect, ask questions, and form bonds that can help you better navigate your journey. 👥 The RTHM Community is free ━ and delivers the latest research & educational content to help you become an informed patient and better understand the conditions affecting your quality of life. 👉But it is not limited to just patients.👈 The RTHM Community provides a wealth of knowledge for family members, caregivers, and even other medical professionals who are looking to learn more about these often misunderstood conditions. Join the RTHM Community! 🔗: https://lnkd.in/g2Z2vrwg #rthm_health #pwLC #longhaulers #longcovid #MECFS #pwME #SevereME #InvisibleIllness #POTS #MCAS #ChronicIllnessWarriors #SpoonieLife #ZebraStrong #MillionsMissing #YouAreNotAlone

As a Ugandan and a health enthusiast, I am deeply concerned about the number of preventable deaths happening not only in my country but worldwide due to the lack of funds for medical treatment. My heart bleeds seeing lives lost needlessly. I believe there is a way we can combat this. Nobody should have to die from a treatable disease because of financial constraints. By harnessing the power of research and data, we can drive innovation and make informed decisions to address these inequalities. Together, let's work towards a future where everyone has access to the medical care they need, regardless of their financial situation. Braehtl Analytics Touched Minds Charity Iniative - TMCI #HealthEquity #GlobalHealth #ResearchForChange #EndHealthDisparities #HealthcareAccess #PublicHealth #DataDrivenHealth

For posterity: five reports covering the breadth of Public Health Pathways' accomplishments. Free to download, share, and use. 1. Cov360 - Voice of the Future report 2. The Age of Public Health Magazine: Communities Build Trust 3. Pathfinders Program Guidebook 4. Safe Mothers in Low-income Emergency Settings (SMiLES) 5. Closing the Charity - The Story of Public Health Pathways Enjoy.  https://lnkd.in/egPy6dPf

NHS England, Department of Health and Social Care and DWP are running a series of engagements to shape how the next years of MSK funding is used and to support local leaders and innovators. When? Tuesday 20th February: Innovation and Emergent Practice. Why we’re here and what we want to achieve? Where are we now? What innovation and best practice exists and what are barriers? What key choices will need to be made? What might the next steps be? Wednesday 21st February: The Future of MSK Leadership. How are we going to do it? How can we support local and regional MSK leadership?   Where? Both days will be in central London and the location and exact times will be confirmed shortly. Please RSVP by the 9th of February.   Who? This event is aimed towards anyone working at a local, system or regional level with an interest in Musculoskeletal care. There are no ‘right’ or ‘wrong’ people, but it may include clinicians & professionals with an interest or focus on MSK; commissioners in health or local government; service providers; the physical activity sector; members of the public with an interest in MSK; local charities; provider; system and regional leads; employers; businesses and/or Academics. Please note colleagues can choose to attend either or both days. Register here: https://lnkd.in/evsr5ymb

Register now! https://lnkd.in/eStKvR9Q This webinar will highlight multifaceted scenarios where the survivor may undergo an MFE in a state different from their resident state or the state where the assault occurred. Through a detailed exploration of core scenarios, this webinar aims to equip clinicians with the necessary steps and tools to navigate the complexities of payment and reimbursement for MFEs that are conducted and state lines become an issue. Ensuring not only that survivors continue their journey to healing without the re-traumatization of receiving a bill, but also offering solutions to reimbursement to assist in maintaining clinician sustainability. This webinar was supported by Grant No. 15JOVW-22-GK-04021-STOP awarded by the Office On Violence Against Women, U.S. Department of Justice. The opinions, findings, conclusions, and recommendations expressed in this presentation are those of the author(s) and do not necessarily reflect the views of the U.S. Department of Justice.

Most people living with #MAFLD can be managed in #PrimaryCare. We need to raise the awareness of primary care providers on non-invasive tests & have pathways in place for when to make a referral. 📌 APASL Referral care paths for MAFLD. Read more 👉 https://rb.gy/pmx1rp   A didactic slide deck summarising the latest APASL CPG on the management of #MAFLD are out now  https://lnkd.in/dYQuZuw3