USTMA Consortium and Alliance

Check out some incredible photos from the 2024 USTMA Patient Meeting! More to come, and we encourage attendees to share their photos here. Thank you to all physicians, volunteers, patients, supporters, and partners who joined us. We are grateful for our sponsors,Alexion Pharmaceuticals, Inc. , Sanofi ,and Takeda for making this event possible. Looking forward to 2025 in North Carolina! If you attended please submit feedback here: https://lnkd.in/eP3vWAWn

Check out some incredible photos from the 2024 USTMA Patient Meeting! More to come, and we encourage attendees to share their photos here. Thank you to all physicians, volunteers, patients, supporters, and partners who joined us. We are grateful for our sponsors,Alexion Pharmaceuticals, Inc. , Sanofi ,and Takeda for making this event possible. Looking forward to 2025 in North Carolina! If you attended please submit feedback here: https://lnkd.in/eP3vWAWn

Exciting News! 🎉 Join us at the 2024 USTMA Patient Meeting for an incredible day of learning, sharing, and support. Our morning and afternoon sessions are packed with key events featuring expert insights and the latest advancements in TTP and TMA. Morning Highlights: 🔍 Unraveling iTTP: cTTP Diagnosis Decoded & aHUS/CM-TMA Discussion 🔬 iTTP Insights: cTTP Challenges & CM-TMA Research Revolution 🧬 Mastering iTTP Management: Unlocking the Genetics of cTTP & aHUS/CM-TMA Management Afternoon Highlights: 🤰 Ask the Experts, Pregnancy and TMA, Coping Strategies for Patients & More 💡 Ask the Experts: Coping Strategies Stations 🧪 Advancements in TTP: Newest Treatments in cTTP & iTTP Don't miss out on this opportunity to connect with experts and fellow patients. Register now at https://lnkd.in/e7__ysBK #USTMA2024 #PatientMeeting #TTP #TMA #Healthcare #PatientSupport #MedicalResearch

🌟 Join us at the 2024 USTMA Patient Meeting from August 16-18 in Dallas, Texas! 🌟 We're thrilled to announce just a few of the incredible expert speakers who will be sharing their insights and latest advancements in the management and treatment of thrombotic microangiopathy (TMA). ✨ Dr. Ara Metjian, Associate Professor, Medicine-Hematology at Duke University, will discuss "Mastering iTTP Management: Strategies to Prevent Relapse." ✨ Dr. Konstantine Halkidis, Assistant Professor, Hematologic Malignancies and Cellular Therapeutics at the University of Kansas, will delve into "Unraveling iTTP: Differentiating TMA and TTP with a Focus on ADAMTS13." ✨ Dr. Nattawat Klomjit, Assistant Professor of Medicine, Nephrology at the University of Minnesota, will cover "aHUS/CM-TMA Management: Living your best life with aHUS." ✨ Prof. Marie Scully, MBE, Professor of Haemostasis and Thrombosis at University College London, will present on "Advancements in TTP: Newest treatments in cTTP and iTTP." A special thanks to our Gold Level Sponsors: Alexion, Sanofi, and Takeda, for their support! Don't miss this opportunity to learn from leading experts and connect with the TMA community. Register now at https://lnkd.in/e7__ysBK #USTMA2024 #PatientMeeting #TTP #iTTP #aHUS #CMTMA #Thrombosis #Hematology #Nephrology #MedicalResearch

Watch the latest session from the 2024 ASPHO Conference on the diagnosis and management of pediatric thrombotic microangiopathy (TMA)! TMA is characterized by microangiopathic hemolytic anemia, thrombocytopenia, and end organ damage, with diverse syndromes marked by severe endothelial damage. Rapid assessment, diagnosis, and initiation of appropriate treatment are crucial to avoid permanent organ damage, high morbidity, and mortality. In this session, we delve into the integral role of the complement system in maintaining homeostasis between the endothelium, coagulation, and immune system. Loss of this balance can lead to complement mediated-TMA (CM-TMA). While atypical hemolytic uremic syndrome (aHUS) is the classic example of complement dysregulation, CM-TMA can also occur due to complement amplifying disorders, such as infection, drugs, cancer, sickle cell disease, and transplantation. Learn from experts in the field as they present current research and evidence-based strategies to address this complex group of disorders. Additionally, the session covers the creation of registries for Pediatric TTP and CM-TMA. Don't miss this opportunity to stay updated on these critical advancements! Watch the full session here: https://lnkd.in/eNHHYNgZ #ASPHO2024 #PediatricTMA #Healthcare #MedicalConference #TTP #CMTMA #aHUS #MedicalResearch #PediatricHealth

We are hiring! If you know an interested party please encourage them to apply. Position Summary: We are seeking a detail-oriented and strategic Research Project Manager to lead the coordination and management of multi-center research projects across the USTMA network. This role will collaborate with investigators, research coordinators, and consortium members to ensure that trials are executed efficiently and in compliance with established guidelines. https://lnkd.in/eKe2xPGB

Come see us at booth 121 at the Pediatric Academic Societies Meeting in Toronto.

Another incredible advancement. We are so proud to be involved. Congratulations Dr. Yazan Abou-Ismail!

We just wanted to highlight this global effort made experts. Definitely enlightening to see the outcome. “This unprecedented, international academic effort on such a rare disease provides convincing evidence that caplacizumab added to TPE and immunosuppression prevents unfavorable outcomes during the acute phase of iTTP, including mortality, and alleviates the burden of care at the potential expense of rare, major bleeding events.” https://lnkd.in/ex_WggUt

What an amazing showing by the USTMA Alliance and Consortium at American Society of Pediatric Hematology/Oncology (ASPHO)'s 2024 Conference. Thank you to Dr. Chonat, Dr. Cohen, Dr. Agarwal, Dr. Chaturvedi, and Sara Graciaa, MSN, CPNP for all of your efforts! Here are the videos from the session held on 4/2/2024 https://lnkd.in/eP57zuj4