The IETF has just awarded its 100th scholarship through the Catherine Rice Scholarship Program! Each year, we present scholarships to college students with essential tremor to support their higher education goals. This program would not be possible without generous donations from our ET community. On behalf of our 100 student winners, THANK YOU!! https://lnkd.in/ebrx7xk
The International Essential Tremor Foundation
Non-profit Organizations
Lenexa, KS 573 followers
Providing hope to the essential tremor community worldwide through awareness, education, support and research.
About us
The International Essential Tremor Foundation (IETF) is a nonprofit organization that provides hope to the essential tremor (ET) community worldwide through awareness, education, support, and research. It is guided by an executive board of directors, a medical advisory board, and an executive director with a staff of two. The organization encourages and promotes research in an effort to determine the cause(s), treatment(s), and ultimately the cure(s) for ET. It is the only worldwide organization dedicated to meeting the needs of those whose daily lives are challenged by ET.
- Website
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http://www.essentialtremor.org
External link for The International Essential Tremor Foundation
- Industry
- Non-profit Organizations
- Company size
- 2-10 employees
- Headquarters
- Lenexa, KS
- Type
- Nonprofit
- Founded
- 1988
- Specialties
- Support for Essential Tremor Research, Resources for Essential Tremor Patients, Fundraising for ET Awareness and Education, Oversight of ET Support Groups Throughout the World, Manage a Listing of ET Specialists, Education Programs for People with ET, and Scholarships for Students with ET
Locations
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Primary
Get directions
13628 W. 95th St.
Lenexa, KS 66215, US
Employees at The International Essential Tremor Foundation
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Patrick McCartney
Executive Director at International Essential Tremor Foundation
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Tammy Dodderidge
Strategic Communications Leader, Marketer, Journalist
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Gezil Andrews
Experienced Advocate for Non-Profit venues. 30 years of sales, marketing and communication experience.
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Dawanna Fangohr
International Essential Tremor Foundation
Updates
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An at-home research study for people living with #essentialtremor is now enrolling. Learn more today: https://bit.ly/47i6QqF.
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The Camino de Santiago is a popular pilgrimage area drawing thousands of visitors each year. Karen walked the Camino to raise awareness about essential tremor, clocking 500 miles in just 35 days. Read about her experience in the preview of our June Tremor Talk magazine. https://bit.ly/4bTmYSa
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There is a need for additional studies to clarify cerebellar pathological findings in essential tremor (ET) in order to support or refute the hypothesis that ET may be a neurodegenerative disorder of the cerebellum. The IETF's 2024 Research Grant recipient will use enhanced methods to study findings in the human cerebellum. Congratulations to Dr. Holly Shill, principal investigator of this study. https://lnkd.in/gDX3W_C2
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We are so thankful for Helen's leadership as an essential tremor support group leader in Connecticut, and for her efforts to bring awareness to essential tremor. Congratulations on being named an Essential Tremor Awareness Champion by Praxis Precision Medicines! https://lnkd.in/gGWCssMw
#EssentialTremor Awareness Champion, Helen, actively serves the ET community. As a support group leader, she offers a safe space to talk openly about the impact of ET on daily life, share ideas and feel connected. And, as a person living with ET, Helen advocates for awareness. Each year, she works with the Governor’s office to declare ET Awareness Month in Connecticut. Her hope is to make others more accepting of #essentialtremor. Thank you, Helen, for speaking up and serving others! Learn more about the Connecticut ET Support Group: https://lnkd.in/esuCrWxs #essentialtremor #DareforMore
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This is the project coordinated by Brianna Matzke, assistant professor of music at Wilmington College in Ohio. She was diagnosed with ET when she was in graduate school. Through this project she is raising awareness to ET and the lived experience of ability and disability. Brianna was featured in our June 2023 issue of Tremor Talk magazine.
Celebrated pianist Brianna Matzke created The Response Project with a goal of commissioning composers and artists from a variety of media to create new works in response to a specific artwork or idea. This year, Matzke – a professor of music at Wilmington College (OH) – decided to make the Response Project more personal. Much more personal. It is called, very simply, “Tremor.” The title is in response to Matzke’s discovery that she has a neurological condition known as an essential tremor, which affects her hands. Part 1 of this year’s Response Project begins April 28. Matzke will perform on May 5. Read more in this piece by David Lyman.
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If you are a college student with essential tremor, be sure to get your application in for one of our $3,000 scholarships. May 1 is the deadline to apply. Students in trade schools and graduate and doctoral programs also qualify. Learn more on our website. bit.ly/3gxBMZ3
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Our latest Tremor Gram features stories about National Essential Tremor Awareness Month, a podcast with facts about the VILIM ball, information on the Essential3 research study, plus more! https://conta.cc/49OcIK1
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Brianna is a wonderful advocate for the #essentialtremor community. TREMOR The Response Project premieres April 28. https://lnkd.in/ghxXaNzM
Meet ET Awareness Champion, Brianna, a music professor, pianist and advocate who is using music to raise awareness and erase the stigma associated with tremor. To learn more about Brianna’s essential tremor story, and her ET Response Project, click the link below. https://lnkd.in/erwkDuM4 Thank you, Brianna, for all the work you do to help bring visibility to #essentialtremor! #ETAwareness2024 #essentialtremor #DareforMore
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March is National Essential Tremor Awareness Month and our 2024 theme is "Let's Take the Mystery Out of ET." Learn about ways to get involved by visiting our awareness page online. https://lnkd.in/dqxq-gy #ETAwareness2024
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