John was seven years old when he was officially diagnosed with essential tremor (ET). Despite his ET, he challenged himself with pursuits requiring fine motor skills and patience like sculpture, pottery and even origami. Although he struggles, he keeps trying and feels lucky to have teachers willing and able to help him learn. “Beauty can be formed even by those with broken hands,” he said. John is one of our 2024 Catherine Rice Scholarship recipients. He is a student at the University of North Georgia. https://lnkd.in/gJFFbSzT #scholarships #essentialtremor
The International Essential Tremor Foundation
Non-profit Organizations
Lenexa, KS 581 followers
Providing hope to the essential tremor community worldwide through awareness, education, support and research.
About us
The International Essential Tremor Foundation (IETF) is a nonprofit organization that provides hope to the essential tremor (ET) community worldwide through awareness, education, support, and research. It is guided by an executive board of directors, a medical advisory board, and an executive director with a staff of two. The organization encourages and promotes research in an effort to determine the cause(s), treatment(s), and ultimately the cure(s) for ET. It is the only worldwide organization dedicated to meeting the needs of those whose daily lives are challenged by ET.
- Website
-
http://www.essentialtremor.org
External link for The International Essential Tremor Foundation
- Industry
- Non-profit Organizations
- Company size
- 2-10 employees
- Headquarters
- Lenexa, KS
- Type
- Nonprofit
- Founded
- 1988
- Specialties
- Support for Essential Tremor Research, Resources for Essential Tremor Patients, Fundraising for ET Awareness and Education, Oversight of ET Support Groups Throughout the World, Manage a Listing of ET Specialists, Education Programs for People with ET, and Scholarships for Students with ET
Locations
-
Primary
13628 W. 95th St.
Lenexa, KS 66215, US
Employees at The International Essential Tremor Foundation
-
Patrick McCartney
Executive Director at International Essential Tremor Foundation
-
Tammy Dodderidge
Strategic Communications Leader, Marketer, Journalist
-
Gezil Andrews
Experienced Advocate for Non-Profit venues. 30 years of sales, marketing and communication experience.
-
Dawanna Fangohr
International Essential Tremor Foundation
Updates
-
Essential Tremor in Adult Patients is a practical, concise quick-reference tool for clinicians covering diagnosis, management, assistive devices, and more for ET. It was authored by IETF Board President Dr. Kelly Lyons, IETF Medical Advisory Board Chair Dr. Holly Shill and Kelli Reiling Ott, OTD, OTR/L. https://lnkd.in/eZqsxMqG #clinicians #essentialtremor
-
Brylie has had essential tremor since she was a little girl and she often referred to her shaking hands as her "dancing hands." Today, she is focused on earning a degree in law so she can be a voice for others with disabilities. Kylie is one of our 2024 Catherine Rice Scholarship winners. She is a student at the University of Oklahoma. Learn more about her on our website. https://bit.ly/4deQmTl #scholarships #essentialtremor
-
-
Living in the moment is important to Megan, but she also has hope for the future – hope for research leading to improved treatment for essential tremor. “My tremor reminds me to both hold on to hope for tomorrow, and also to appreciate my body and its capabilities today,” she said. Megan is one of our 2024 Catherine Rice Scholarship winners. Read more about her and offer her your congratulations! https://lnkd.in/eJuMYetd
-
-
The IETF has just awarded its 100th scholarship through the Catherine Rice Scholarship Program! Each year, we present scholarships to college students with essential tremor to support their higher education goals. This program would not be possible without generous donations from our ET community. On behalf of our 100 student winners, THANK YOU!! https://lnkd.in/ebrx7xk
-
-
An at-home research study for people living with #essentialtremor is now enrolling. Learn more today: https://bit.ly/47i6QqF.
-
-
The Camino de Santiago is a popular pilgrimage area drawing thousands of visitors each year. Karen walked the Camino to raise awareness about essential tremor, clocking 500 miles in just 35 days. Read about her experience in the preview of our June Tremor Talk magazine. https://bit.ly/4bTmYSa
-
-
There is a need for additional studies to clarify cerebellar pathological findings in essential tremor (ET) in order to support or refute the hypothesis that ET may be a neurodegenerative disorder of the cerebellum. The IETF's 2024 Research Grant recipient will use enhanced methods to study findings in the human cerebellum. Congratulations to Dr. Holly Shill, principal investigator of this study. https://lnkd.in/gDX3W_C2
-
-
We are so thankful for Helen's leadership as an essential tremor support group leader in Connecticut, and for her efforts to bring awareness to essential tremor. Congratulations on being named an Essential Tremor Awareness Champion by Praxis Precision Medicines! https://lnkd.in/gGWCssMw
#EssentialTremor Awareness Champion, Helen, actively serves the ET community. As a support group leader, she offers a safe space to talk openly about the impact of ET on daily life, share ideas and feel connected. And, as a person living with ET, Helen advocates for awareness. Each year, she works with the Governor’s office to declare ET Awareness Month in Connecticut. Her hope is to make others more accepting of #essentialtremor. Thank you, Helen, for speaking up and serving others! Learn more about the Connecticut ET Support Group: https://lnkd.in/esuCrWxs #essentialtremor #DareforMore
-
-
This is the project coordinated by Brianna Matzke, assistant professor of music at Wilmington College in Ohio. She was diagnosed with ET when she was in graduate school. Through this project she is raising awareness to ET and the lived experience of ability and disability. Brianna was featured in our June 2023 issue of Tremor Talk magazine.
Celebrated pianist Brianna Matzke created The Response Project with a goal of commissioning composers and artists from a variety of media to create new works in response to a specific artwork or idea. This year, Matzke – a professor of music at Wilmington College (OH) – decided to make the Response Project more personal. Much more personal. It is called, very simply, “Tremor.” The title is in response to Matzke’s discovery that she has a neurological condition known as an essential tremor, which affects her hands. Part 1 of this year’s Response Project begins April 28. Matzke will perform on May 5. Read more in this piece by David Lyman.
‘Tremor’ – pianist Brianna Matzke takes control with unique response to adversity - Movers & Makers
https://moversmakers.org