We want to hear from you! #ALSFocus surveys bring the perspectives of people with #ALS to the forefront of research, care, and advocacy. Our latest survey focuses on genetic testing and counseling for people living with ALS. Respond today: alsfocus.org!
The ALS Association
Non-profit Organizations
Arlington, Virginia 23,307 followers
Fighting ALS on every front through research, care services, and advocacy.
About us
Established in 1985, The ALS Association is the only national non-profit organization fighting ALS on every front. By leading the way in global research, providing assistance for people with ALS through a nationwide network, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure. Join us at ALS Nexus: als.org/als-nexus
- Website
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http://www.als.org
External link for The ALS Association
- Industry
- Non-profit Organizations
- Company size
- 51-200 employees
- Headquarters
- Arlington, Virginia
- Type
- Nonprofit
- Founded
- 1985
- Specialties
- Research, Public Policy, Care Services, and Education
Locations
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Primary
1300 Wilson Blvd
Suite 600
Arlington, Virginia 22209, US
Employees at The ALS Association
Updates
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For people living with #ALS, the physical therapist is vital member of the care team. National Physical Therapy Month is the perfect time to explore how physical therapists help people maintain as much independent function as possible throughout the disease and improve overall quality of life. https://bit.ly/3Y6FvpO #PTMonth
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Casey and his sister Breanna started ballet dancing when they were young, and both pursued dancing professionally, at least for a while. But when Breanna learned she had ALS they decided they needed one last dance, together. https://lnkd.in/e9q2uuPi
Dancing with ALS: Breanna’s Story
als.org
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Sharing your story with legislators can be powerful and impart real change. Participate in #ALSAdvocacy by sharing today: https://lnkd.in/eBmE-kzf
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There isn’t a cure for ALS yet, but there are ways to help manage the symptoms. Learn more about the different types of care for people with ALS: https://lnkd.in/gzJeH_WX
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The ALS Association reposted this
Please join us on Thursday, September 26th, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD, will present updates on the Platform Trial, share ways to stay connected to news in ALS research, and answer questions from the audience. Register:https://lnkd.in/eMV9vfGE *Please note, for the remainder of 2024, we will be hosting one dedicated HEALEY ALS Platform Trial webinar per month rather than a weekly webinar.
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Join us for the Walk to Defeat ALS and help us take steps toward a world without ALS. Every stride counts in the fight against this disease. Together, we can raise awareness, fund research, and support those affected. Register TODAY: walktodefeatals.org
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Telehealth has proven to be beneficial to the ALS community, but for many existing regulations can make it difficult to access the care they need. Learn how we are working across public and private sectors to bring this valuable tool to everyone, everywhere. https://lnkd.in/eeKmQQEe
Telehealth: Exploring Ways to Provide ALS Care for Everyone, Everywhere
als.org
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Congress must pass legislation to fund the government by Oct. 1 to prevent a shutdown. Federally funded research into ALS is critical to develop new treatments and finding a cure. Specifically for the 2025 budget, we are asking for: ✅ $80 million for the Department of Defense ALS Research Program ✅ $160 million for the National Institutes of Health ✅ $100 million for the ACT for ALS ✅ $15 million for the National ALS Registry and Biorepository Your Members of Congress need to hear from you TODAY about the importance of funding ALS research: https://lnkd.in/dZxwHrTB #ALSAdvocacy #FundALSResearch
Tell Congress: Increase ALS Research Funding NOW
als.quorum.us
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A new #ALSFocus survey is open! If you are living with #ALS, share your thoughts and perspectives about genetic testing and counseling with us. No experience with either is needed to participate. Learn more: alsfocus.org