Pediatric Brain Tumor Foundation

Today marks the first day of #BrainTumorAwarenessMonth, an important time of year to call attention to brain tumors and the unique challenges patients face. As part of the Pediatric Brain Tumor Foundation’s continued commitment to make children with brain tumors, survivors and their families a national priority, we are excited to welcome neurosurgeon and CNN chief medical correspondent Dr. Sanjay Gupta to our Board of Directors.  Dr. Gupta brings extensive clinical, research and journalism experience, including as associate chief of Grady Health System's neurosurgery service, associate professor of neurosurgery at the Emory University School of Medicine's, and as CNN’s chief medical correspondent, to the Pediatric Brain Tumor Foundation community, and we look forward to the many ways he will help drive forward our mission as a valuable and expert advocate for pediatric brain tumor patients, survivors, and their families.  Read the full announcement at https://lnkd.in/eKJCAM85, including quotes from Dr. Gupta, PBTF President and CEO Courtney Davies, and Board Chair Jeffrey Gelfand, and join us in warmly welcoming Dr. Gupta to the Pediatric Brain Tumor Foundation community! #CNN #nonprofitnews #philanthropy

This year's Mason's Twenty-Fore Straight was another hole-in-one, as the community came together for a 24-hour golf marathon to raise critical funds for families facing brain cancer. Hosted annually by TPC Sugarloaf's team, this event honors Mason, who passed away from a pediatric brain tumor and had a love for sports and the outdoors. We are extremely grateful for the unwavering dedication and support of every golfer, family, and fundraiser who made the event a success. From goodie bags filled with glow-in-the-dark golf balls to midnight treats from Waffle House and the Kona Ice truck, every moment was filled with togetherness and joy. We also want to give a special shoutout to Mason's family for creating this meaningful event and to Aden's family, who fundraise and participate each year in memory of their son Aden, who also passed away from a brain tumor. Thanks to the funds raised during this event, we can continue to drive research toward a future free of pediatric brain tumors.

Navigating the loss of a child or sibling to a pediatric brain tumor can feel incredibly overwhelming and isolating. But know that you don't have to face bereavement alone. As #NationalBereavedParentsMonth continues, the Pediatric Brain Tumor Foundation is here to provide you and your family with resources like our peer-to-peer mentoring program that matches parents, caregivers, siblings, and others affected with mentors who have experienced similar challenges. Become a part of this supportive community that offers empathy, personal connection, and a safe space to share your emotions. Learn more about becoming a mentor or joining our program at https://lnkd.in/eBupMQtK

Today is #NationalVideoGameDay and the Pediatric Brain Tumor Foundation is here to celebrate all of the video game streamers and content creators we've collaborated with through PBTF GameON! Being a part of PBTF GameON means helping kids like Jayden, a 16-year-old brain tumor survivor and gamer, find the resources and support they need to thrive during their brain tumor journey and beyond. If you're interested in hosting a charity stream for PBTF GameON or want to become a part of this passionate community, visit https://lnkd.in/ecZ9iT8J. Together, we can use the power of gaming to bring joy and support to families facing this devastating disease.

We had an incredible time at #ISPNO2024 connecting with clinicians, researchers, passionate advocates, and more. We're so grateful for the collaboration with Martin Bell and Katie Bernard who spearheaded the Everest in the Alps fundraiser which was inspired by their son, "Siren." Together, we look forward to raising awareness and funds to help children with DLGNT worldwide. From Saturday's kick-off celebration with partners like Children's Brain Tumor Network and Dana-Farber Cancer Institute to Sunday's low-grade glioma session, we look forward to future collaborations that will bring us closer to a world without pediatric brain tumors!

No parent should have to say goodbye to their child. Today on #NationalBereavedParentsDay, a mother shares her personal story of losing her son to a pediatric brain tumor while acknowledging that each parent's and caregiver's journey is unique. Remember that there is no timeline or single path for bereavement. The Pediatric Brain Tumor Foundation is here to walk alongside you and your family, providing a community of support so that you know that you are not alone on this journey. Learn more about the resources and programs we offer to help you navigate bereavement at https://lnkd.in/dMm5EimV

Join us on July 24 at 3 p.m. ET for an important Town Hall featuring Senator Chuck Grassley. Together with other lead sponsors, we will discuss the Accelerating Kids’ Access to Care Act, a vital piece of legislation that aims to improve and simplify out-of-state medical care and processes for children with complex medical conditions like pediatric brain cancer who need to travel across state lines for care. This act recently passed unanimously through the House’s Energy and Commerce Committee, thanks to the relentless efforts of childhood cancer advocates like Charlie who testified to the U.S. Senate. Don't miss this chance to be part of this crucial conversation and learn how you can support this legislation's journey through Congress. Register now at curethekids.org/webinar.

Today marks the beginning of #BereavedParentsAwarenessMonth. Bereavement can be immense, overwhelming and isolating, but know that you don't have to face these feelings alone. Although a family should never be faced with saying goodbye to their child, the Pediatric Brain Tumor Foundation community is here to support you today and every day. If you've lost a child due to a pediatric brain tumor and need support, please don't hesitate to reach out to our family support team anytime at [email protected] or visit https://lnkd.in/dMm5EimV to find resources and connect with others who are walking a similar path.

#ISPNO2024 is underway and we are thrilled to be part of this incredible event, connecting with dedicated clinicians, researchers, and advocates from around the world. This evening, the Pediatric Brain Tumor Foundation is proud to sponsor a session dedicated to improving treatment and outcomes for children facing low-grade gliomas. Join us from 3-5 PM to hear from experts in the field and learn more and engage in meaningful discussions that could shape the future for children facing pediatric low-grade gliomas. We look forward to seeing you there! Come by and connect with PBTF President and CEO Courtney Davies, Vice President of Research Ryne D., and Director of Advocacy Michael Henry.

Life after treatment for a pediatric brain tumor is complex and it can be difficult for survivors and their families to know where to turn to navigate the road ahead. The Pediatric Brain Tumor Foundation is dedicated to providing critical resources that help survivors and their loved ones feel empowered and supported. Your donation today will support families, while accelerating research into safer ways to diagnose and treat pediatric brain tumors. Make your gift today at curethekids.org/give.