📝 ABSTRACT SUBMISSION UPDATE! The deadline to submit an abstract for the 2024 Annual NEALS Meeting has been extended to Wednesday, July 31st! Don't miss out on this is a fantastic opportunity to showcase your research and engage with fellow professionals in the field at the 2024 #NEALSMtg.
About us
In 1995, the Northeast ALS Consortium (NEALS) was founded as an independent, non-profit group of research sites that collaboratively conduct clinical research in Amyotrophic Lateral Sclerosis (ALS) and other motor neuron diseases. While retaining its original acronym and focus on ALS trials, NEALS has since developed into an international, consortium of ALS clinical research centers. Together, the scientists at these centers work to improve the efficiency and quality of ALS clinical trials and research, expand access to clinical research, support biomarker development with a robust biorepository, innovate ALS clinical care, and educate the community about ALS research. Through these efforts, NEALS strives to rapidly translate scientific breakthroughs into new therapies and help people with ALS live longer and maintain a higher quality of life.
- Website
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http://www.neals.org
External link for Northeast ALS Consortium (NEALS)
- Industry
- Research Services
- Company size
- 2-10 employees
- Headquarters
- Boston, Massachusetts
- Type
- Nonprofit
- Specialties
- Clinical Trials and ALS
Locations
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Primary
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Boston, Massachusetts 02114, US
Employees at Northeast ALS Consortium (NEALS)
Updates
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🌟 Exciting Announcement and Abstract Presentation Opportunity!🌟 We're thrilled to announce the Science Symposium topic for the 2024 Annual NEALS Meeting: AI is NOW: Bringing AI into ALS Research. This session will focus on leveraging the rapidly growing data sets from ALS patients, including clinical data, genomics, biological data, and technology assessments, to enhance ALS understanding, improve research, and accelerate disease outcome transformation. Up to two abstracts will be selected for 10-minute presentations during the Science Symposium. Submit your abstract by July 19th 11:59 PM ET and indicate your interest in being considered for the session! For more details ➡️ https://lnkd.in/eWbWeTDy #NEALSMtg #ALSResearch #AI #ClinicalResearch
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Northeast ALS Consortium (NEALS) reposted this
We are excited to continue our Summer Webinar series this week with our monthly platform trial update! Please join us at 5pm on 6/27 to hear from Drs. Merit Cudkowicz and Sabrina Paganoni, as they share the latest updates from the HEALEY ALS Platform Trial, ways to stay connected to news in ALS Research, and answer questions from the audience. Register: https://lnkd.in/eMV9vfGE
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👏 Congratulations to NEALS co-founder, Merit Cudkowicz, MD, MSc, on receiving the Harvey and Bonny Gaffen Advancements in ALS Award for her incredible contributions to #ALS research and patient care! #ALSAwarenessMonth
Merit Cudkowicz, MD, MsC, Chief, Mass General Neurology, and Director, Sean M. Healey and AMG Center for ALS, received the Harvey and Bonny Gaffen Advancements in ALS Award. This award recognizes those spearheading the fight against ALS and making an impact on the lives of patients and families. #ALSAwarenessMonth
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Quick reminder that registration is now open for the 2024 NEALS Annual Meeting! This is your chance to connect with peers and stay informed about the latest progress in ALS research and treatment. The event serves as a pivotal gathering for sharing innovative research, discussing new therapies, and preparing for upcoming clinical trials. Register now to secure your spot and be part of the ongoing collaboration that drives the ALS research community forward! ➡ www.meeting.neals.org
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Don't forget to join the Inaugural ALS Publication Review Webinar today at 4:00PM ET. We are thrilled to collaborate with ALS ONE on this series! ▶ Registration for the webinar: https://lnkd.in/g2AXCx97 ▶ Read the article ahead of time: https://bit.ly/IGTICOPALS #ALS #NEALS #ALSONE #ALSPublicationReviewSeries #ALSPublication #GeneticTesting #ALSGeneticTesting #FamilialALS #FALS #ALSAuthors #ALSCommunity
Tomorrow at 4pm EST, join us for the first webinar in our new ALS Publication Review Series, on which we are gratefully collaborating with Northeast ALS Consortium (NEALS). We will be spotlighting "Incorporating Genetic Testing into the Care of Patients with Amyotrophic Lateral Sclerosis/Frontotemporal Degeneration Spectrum Disorders," and we're honored to joined by two of its authors, Laynie Dratch, ScM, CGC, from the UPenn Neurogenetics Therapy Center, and Lauren Lichten, MS, CGC, from the Emory ALS Clinic. Our panel for this review includes @Mandi Bailey from the NEALS Patient Advisory Council, Jennifer DiMartino, ALS ONE’s Executive Director, Justin Kwan, MD, Director of the Neurodegenerative Disorders Clinic at the National Institute of Neurological Disorders and Stroke (NINDS), and NEALS member, and David Shulman, who is a NEALS Research Ambassador and International Patient Fellow. Registration for the webinar is free, and you may log in by going to: https://lnkd.in/g2AXCx97. We also invite you to read the article ahead of time if you have yet to, by clicking: https://bit.ly/IGTICOPALS. . #ALS #ALSONE #NEALS #ALSONECommunityConnect #ALSPublicationReviewSeries #ALSPublication #GeneticTesting #ALSGeneticTesting #FamilialALS #FALS #ALSAuthors #ALSCommunity #EndALS
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Are you a clinician looking to deepen your knowledge of respiratory care for ALS patients? Explore the ALS Respiratory Care Course, an accredited online resource with 19 engaging multimedia lessons. This course, presented by leading experts, allows you to earn CME credits and up to 10 MOC credits while gaining valuable insights into respiratory management, home-assisted ventilation, palliative care, and more. The course is free and continuously available through December 2026, providing a flexible opportunity to boost your expertise and enhance the care you offer ALS patients. Visit the link to learn more and register today! ➡ www.alsrespcare.com #ALS #RespiratoryCare #CME
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NEALS Co-Chair, Dr. Jinsy Andrews, will be participating in the Congressional ALS Caucus briefing today at 2 PM ET. 📅 Join virtually for an update on the latest #ALS research and to support the ALS community. ▶Livestream Link: https://lnkd.in/gahFKb8R
Director of Neuromuscular Clinical Trials at Columbia University in the City of New York
The Congressional ALS Caucus is hosting a public briefing tomorrow to update the community on ALs research. Grateful for the opportunity to participate! Congressman Mike Quigley’s You Tube channel will livestream the event: https://lnkd.in/eCurg43P
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We are thrilled to partner with ALS ONE on the #ALS Publication Review Series! Join the first segment on May 14th at 4p ET ➡ https://lnkd.in/d53Vs-nj
We are thrilled to announce that the first segment of our ALS Publication Review Series will be aired on May 14th at 4pm EST. Our new initiative aims to help bridge the gap between the ALS community and the brilliant minds behind important ALS research publications, helping to provide and gain a broader and clearer understanding of the content therein. Our first review will spotlight the publication entitled, "Incorporating Genetic Testing into the Care of Patients with Amyotrophic Lateral Sclerosis/Frontotemporal Degeneration Spectrum Disorders," and we're honored to delve into it with two of its authors, Laynie Dratch, ScM, CGC, from the UPenn Neurogenetics Therapy Center, and Lauren Lichten, MS, CGC, from the Emory University School of Medicine ALS Clinic with us, along with our panel for this review, which includes Mandi Bailey from the NEALS Patient Advisory Council, Jennifer DiMartino, ALS ONE’s Executive Director, @Justin Kwan MD, Director of the Neurodegenerative Disorders Clinic at the National Institute of Neurological Disorders and Stroke (NINDS), and NEALS member, as well as David Shulman, who is a Northeast ALS Consortium (NEALS) Research Ambassador and International Patient Fellow. Registration for the webinar is free, and we hope you'll join us on May 14th at 4pm EST by clicking: https://lnkd.in/g2AXCx97. We also invite you to read the article ahead of time if you have yet to, by clicking: https://bit.ly/IGTICOPALS. . #ALS #ALSONE #NEALS #ALSONECommunityConnect #ALSPublicationReviewSeries #ALSPublication #GeneticTesting #ALSGeneticTesting #FamilialALS #FALS #ALSAuthors #ALSCommunity #EndALS
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It's #ALSAwarenessMonth. Join us in raising awareness, sharing information, and supporting research to find a cure for #ALS ! Learn about our mission and how you can get involved.
Learn About NEALS
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