NEW PODCAST! Season 4: Episode 5 This season we are dedicated to telling our family’s stories. On this episode we sit down with Ashley Lightaul, Mom to Ivy who lives with Jordan’s Syndrome. Ashley is so refreshing, so honest and so optimistic with a whole lot of realistic blended in too. Don’t miss our convo! Please click and listen! https://lnkd.in/g6Jj67Na Also Streaming on: Apple, Spotify & Google #JGAInt #JGAtogetherwestand #poweredbyangels #jgaangelpower
Jordan's Guardian Angels
Non-profit Organization Management
SACRAMENTO, California 261 followers
Working to raise awareness regarding variations in PPP2R5D, connect with families, and drive funding to enable research.
About us
Testing for variation in PPP2R5D was enabled in late 2014. This page sheds light on the variation and the exciting research underway. Follow us to learn more and get to know our families. If you have a loved one experiencing this variation (known as Jordan's Syndrome), you will be added to the closed PPP2R5D Facebook group where families globally come together for support and to discuss various topics.
- Website
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http://jordansguardianangels.org
External link for Jordan's Guardian Angels
- Industry
- Non-profit Organization Management
- Company size
- 2-10 employees
- Headquarters
- SACRAMENTO, California
- Type
- Nonprofit
Locations
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Primary
Get directions
1121 L ST STE 100
SACRAMENTO, California 95814, US
Employees at Jordan's Guardian Angels
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Nils Marchand
Rare Disease Advocate, Technology Growth Executive, & Advisor
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Carole Bakhos
Rare Disease Advocate, Rare Mom leading Research to Finding A Cure, Executive Director at Jordan’s Guardian Angels, Founder and Owner of 2villages LLC
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Jessica Laliberte (Hovde)
ND Chapter at Jordan's Guardian Angels
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Christina Janes
Director of Outreach & Content Development at Jordan's Guardian Angels; COO, J Comm, Inc.; Former CBS13 Anchor
Updates
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⚡️📰HOT OFF THE PRESS📰⚡️ JGA Stakeholder Newsletter See what an amazing year we had and what's to come! We couldn't do any of this without the love and support from all of you! From the bottom of our hearts, THANK YOU! 💙💙💙 #jgaint #jgatogetherwestand
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Keep Your Life Simple! #JGAInt #JGAtogetherwestand
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💙 No Words Just Love 💙 #nonverbal #JGAInt #JGAunitedwestand
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2024 is Going to Be Our Year! 💙 💙💙 #jgaint #jgatogetherwestand
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🪩💙 ANGEL ALERT 💙🪩 Magical Night Supporting @jordansguardianangels raising over $500,000.00 in Houston Tx. Thank you Team Huber and Houston for supporting this great cause! We feel the love! #angelpower #jgaint Timothy Huber Candice Fogg Huber
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4 ways to have an inclusive Halloween! 💙 Offer items besides candy 💙💙 Make your walkway accessible 💙💙💙 Do not demand the kid to say “trick or treat” 💙💙💙💙 Stick to simple decorations #jgaint
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Have you heard? Our Co-Founders Cynthia and Joe Lang were featured on CBS Saturday Morning! Watch as Jordan's Guardian Angels makes its network news debut. Hope you enjoy! #poweredbyangels #jgaint #angelpower CBS News
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BIG NEWS!! Jordan’s Guardian Angels is making its national news debut tomorrow morning on CBS SATURDAY MORNINGS! Tune in at 7:25 am as the world learns about our Co-Founders Cynthia and Joe Lang and their daughter Jordan, our incredible community and the efforts to find a treatment or a cure for Jordan’s Syndrome! We can’t wait! CBS News and Stations https://lnkd.in/gEwx8YRK