Hypersomnia Foundation

REGISTRATION IS OPEN! Join us in beautiful Atlanta, Georgia for the Hypersomnia Foundation's #BeyondSleepySatellite one-day hybrid conference for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin syndrome and their supporters. ⁠ The conference is in Atlanta, Georgia on Saturday, October 19, 2024, from 10:00 a.m. to 4:00 p.m. (ET) at the Emory Conference Center Hotel. ⁠ The day kicks-off with breakfast at 9:00 a.m. with presentations beginning at 10:00 a.m. Lunch and snacks will be provided during a day of breakout sessions, ample Q&A, and a panel discussion. Dinner will be provided at the conclusion of the day. REGISTER here - https://lnkd.in/eD3QxeUf Registration for #BeyondSleepySatellite: Together in Atlanta is $20 per person. Coming with your family? Each additional family member is $5 per person. For those traveling to Atlanta, we have secured a room reservation block at the Emory Conference Center Hotel. ⁠ We look forward to getting #BeyondSleepy together in Atlanta! ⁠ #ih #narcolepsy #kls

I have no more fingers to put down. ✊️ If you are in the same boat, check out the Hypersomnia Foundation for my information and support. go to hypersomniafoundation.org.

How does non-restorative sleep affect your mental health? @SleepDocShelby details the long term poor quality sleep can set you up for a mood issue. She encourages people with hypersomnia to address their sleep issues and manage their symptoms as they are seeking support for their mood issues. Addressing mood issues won’t resolve the sleep issues. #hypersomniaawareness #cbt #sleepdocshelby #sleep #sleephealth

We are delighted to have partnered with Project Sleep on the Jack & Julie Scholarship again this year. FIVE students of the 37 recipients have IH. @HypersomniaFoundation was able to fund their scholarships. Join us in congratulating Amelia. 🎓Amelia, River Heights, UT: Amelia was diagnosed with idiopathic hypersomnia in the middle of her sophomore year of high school. Her family is a great help in her efforts to live life to the fullest; many experiencing sleep disorders themselves. During high school, Amelia participated in chambers music groups, school theater productions, and started a jazz club with a fellow student. She plans to study music education at Southern Utah University. To learn more about all the Jack & Julie Narcolepsy Scholarship recipients, go to: https://lnkd.in/eSF4u3AW

Working with Your Doctors Pt 3. What should I do after my doctor's appointments? To learn more go to: https://lnkd.in/e22kkyfm

Do you ever wish sharing your story would create change in treatments, relationships, symptom management, and more? Do you have uneasiness about sharing your reality?⁠ ⁠ Join us next week, Monday, July 29th via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for a discussion with Josh Andrews on “Using Your Voice For Change.”⁠ ⁠ UNIGHT is a free virtual get-together for people with sleep disorders, family, and friends.⁠ ⁠ Josh Andrews became NFL Superbowl Champion while playing for the Philadelphia Eagles as an offensive lineman in 2017. Josh started playing football at a young age. After high school, he went on to play college football at Oregon State University. After college, his athletic talents landed him positions on NFL teams including the Minnesota Vikings, Indianapolis Colts, New York Jets, Atlanta Falcons, and New Orleans Saints. Josh and his lovely wife Amber have 3 children and Josh is also a person living with narcolepsy.⁠ ⁠ Click here to register- https://lnkd.in/eaJVZcuY⁠ ⁠ Let’s get #BeyondSleepy!⁠ ⁠ UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.⁠

Do you or your child have Narcolepsy or Idiopathic Hypersomnia? Do you want help navigating relationships with friends, family, teachers etc.? Researchers at Boston Children’s Hospital are recruiting families to review a website designed to improve social relationships and you could earn $50. If you are interested, please contact 617-919-6212 or [email protected] #BeyondSleepy #idiopathichypersomnia #narcolepsy #forthesleepyones #excessivedaytimesleepiness

Here is a simple tool to help manage your daily medication intake. As Haley (@thesleepy_ot) says — IH brain fog and forgetfulness is very common. The amount of times I have found myself thinking so hard about whether I took my meds already is honestly too many times to count. Using a pill organizer gives me a physical reminder, per day, if I did in fact take them or not! It can be especially beneficial so you 1. Don’t skip a dose unintentionally and 2. So you don’t accidentally double a dose in a short timeframe (which can potentially even be dangerous) Taking a few minutes to re-supply your pill organizer each week ALSO serves as a reminder when you’re starting to get low on your prescription, reminding you to call your doctor for a refill and avoiding missed doses when you’re all out. Thanks for the helpful tip, Haley! #ThisIsIH #forthesleepyones #hypersomniaawareness #idiopathichypersomnia #sleepdisorder #FakeAwake

Our goal is to shed light on the realities of living with idiopathic hypersomnia. And, waking up can be one of the most difficult parts of the day for a person with IH. Thank you, Katie, for sharing with us your reality. #thesitdown #wakingup #fakeawake #idiopathichypersomnia #narcolepsy #kls #forthesleepyones #hypersomnia #sleep

We are delighted to have partnered with Project Sleep on the Jack & Julie Scholarship again this year. FIVE students of the 37 recipients have IH. @HypersomniaFoundation was able to fund their scholarships. Join us in congratulating Lucas. 🎓Lucas, Dallas, TX: Lucas was diagnosed with idiopathic hypersomnia in eighth grade after dealing with symptoms for several months. Although the symptoms related to IH made life more difficult, he did not let these challenges stop him from pursuing his goals. Lucas participated in many service leadership activities in high school and co-founded Border Mercy Initiative, Inc., a non-profit organization focused on providing humanitarian assistance to immigrants. Lucas will attend Texas A&M University and major in business. To learn more about all the Jack & Julie Narcolepsy Scholarship recipients, go to: https://lnkd.in/eSF4u3AW