HDSA Awards two Berman Topper Family HD Career Development Fellowships and six 2024 Donald A. King Summer Research Fellowships. Visit the HDSA News section at www.HDSA.org for full press release. #Familyiseverything #hdsa #HDResearch
About us
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
- Website
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http://www.hdsa.org
External link for Huntington's Disease Society of America
- Industry
- Non-profit Organizations
- Company size
- 11-50 employees
- Headquarters
- New York
- Type
- Nonprofit
- Founded
- 1967
Locations
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Primary
New York, US
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Employees at Huntington's Disease Society of America
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Amy Turner LaDow
Seeking creative and challenging work experience while improving people’s lives. Especially, pursuing opportunities to combine my empathy/advocacy…
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Marcella Junco
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Kim Ayres
Volunteer at Huntington's Disease Society of America
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Wendy Vaughan
Marketing Consultant at WCMH-TV, NBC4, nbc4i.com
Updates
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The 39th Annual HDSA Convention brought the global #HuntingtonsDisease community together in Spokane, WA, May 30 - June 1, 2024. The Volunteer Awards video is now available on our YouTube channel. Check it out by using the url below: https://lnkd.in/ejF2HB8V #OneHDSA #LetstalkaboutHD #HDSAFamily #familyiseverything #Huntingtonsdisease
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REMINDER! THERE IS STILL TIME TO SIGN-UP! Our HD Advocates are preparing for the HDSA August Congressional Recess In-District Meeting Campaign. To help in the preparation, HDSA will be holding a training webinar TODAY at 6: 30 p.m. ET and again at 5:30 p.m. PT. Join us and learn how HDSA and HD advocates can help raise awareness and demand access to quality health care and equitable financial support for HD families. • Register for 6:30 ET here: https://lnkd.in/eZcszGx7 • Register for 5:30 PT here: https://lnkd.in/eCN8AT-z You can also participate in the HDSA Externally-led Patient Focused Drug Development (EL-PFDD) Meeting for Pre-symptomatic and Early to Mid-Stage Adult Onset of HD, on November 13, 2024. Information on this meeting and how to register will be available at the HDSA advocacy hub later this month. #LetsTalkAboutHD
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Skyhawk Therapeutics announces the first results from our SKY-0515 Huntington's Disease Phase 1 clinical trial. For full press release please visit: https://lnkd.in/eYBJAnUH #HDSA #HDResearch #Familyiseverything #Huntingtonsdisease
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At the 39th Annual #HDSAConvention Awards Dinner & Gala we had the opportunity to recognize a compassionate leader who is committed to improving the lives of all persons living with HD, both nationally and locally. Congratulations to the 2024 recipient of the award given in honor of our founder, Marjorie Guthrie. The 2024 Marjorie Guthrie Award winner, and Iowa's very own, Lisa Hubbard!
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uniQure Announces Positive Interim Data Update Demonstrating Slowing of Disease Progression in Phase I/II Trials of AMT-130 for Huntington’s Disease. Visit https://lnkd.in/ey6mFkCv for full press release. #Huntingtonsdisease #HDResearch #partofthefamily #familyiseverything
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HD Advocates are preparing for the HDSA August Congressional Recess In-District Meeting Campaign. To help in the preparation, HDSA will be holding a training webinar on Wednesday, July 10 at 6: 30 p.m. ET and again at 5:30 p.m. PT. Join us and learn how HDSA and HD advocates can help raise awareness and demand access to quality health care and equitable financial support for HD families. • Register for 6:30 ET here: https://lnkd.in/e6z7HDqX • Register for 5:30 PT here: https://lnkd.in/ebuhp9U8 You can also participate in the HDSA Externally-led Patient Focused Drug Development (EL-PFDD) Meeting for Pre-symptomatic and Early to Mid-Stage Adult Onset of HD, on November 13, 2024. Information on this meeting and how to register will be available at the HDSA advocacy hub later this month. #LetsTalkAboutHD
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The 39th Annual HDSA Convention brought the global #HuntingtonsDisease community together in Spokane, WA, May 30 - June 1, 2024. The Opening Ceremony is now available on our YouTube channel. Check it out by using the url below: https://lnkd.in/eubV-ENk
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At the 39th Annual #HDSAConvention Community Awards Luncheon we had the opportunity to recognize a Chapter who has gone above and beyond to raise awareness about HD through various initiatives. Their commitment and dedication to raising awareness and fostering understanding has made a profound difference in and round their state. Congratulations to the 2024 HDSA Let's Talk About HD Award recipients, the Michigan Chapter!
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aloha kaiaulu! Check out the latest installment of the HDSA Research Blog! #LetsTalkAboutHD📚💡 Share your thoughts, spread the word! 👉Click the link below!👇 https://hdsa.org/blog
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