GACI Global

We'll be cheering for The Archivists on the night!! We're so grateful to the band for nominating GACI Global as their charity.

Are you ready to see LifeSize (Cytiva / Susan G. Komen), The Archivists (Inozyme Pharma / GACI Global), and Supernova (Alexion Pharmaceuticals, Inc./AstraZeneca / Children's Services of Roxbury, Inc.) take the stage to compete in the 9th Annual Battle of the Biotech Bands! They're bringing their A-Game to win half of the nights proceeds for their chosen charity. Purchase tickets to see who takes home the title of champion at https://lnkd.in/eVsVr7Sd Date: May 8, 2024 Time: 6:00pm - 10:30pm Location: Royale Boston #biotechbattle

I was proud to participate for my third year in the 72-hour Sea to Sea Expedition Race last month. The weekend expedition race sent us across the state of Florida, from the Gulf Coast to the Atlantic Ocean.    My team, #CirculatingHope, raised awareness for the GACI Global community and the amazing work they do for individuals and families living with #RareDiseases. At Inozyme, we support GACI Global’s mission to connect people affected by #GACI and #ARHR2, help improve lives, and offer resources.   Congrats to all the teams that completed this race! Hope to see you all next year.  

🎶Behind the Music: The Archivists repping Inozyme Pharma 📅Date Formed: October 2022 🌎Location:  Boston, MA 🎼What is your favorite song to perform? "Old Familiar Way by The New Rockwells" ❤️Why did you chose to play for charity, GACI Global? "Inozyme and The Archivists are so grateful to be able to support the GACI Global community through the Battle of the Bio\Tech Bands competition.  We believe in GACI Global’s mission of hope, education and connection for patients and families affected by ENPP1 and ABCC6 Deficiency.  #CirculatingHope" 🎸What artist(s)/band(s) influences your playing style/ genre? Joan Jett, Dream Theater, dEUS, Rush, Death Grips, Steve Goodman Band Members: Jean-Christophe FRANCOIS, Chris Masciarelli, Martin Boyle, CPA, Matthew Bandel, Hannah Crowell, Sarah Myers, & Jeanfranco H. See them take the stage at Royale Boston at the 9th Annual Battle of the Bio\Tech Bands on May 8, 2024! Purchase tickets at https://lnkd.in/eVsVr7Sd #biotechbattle #bio #tech #lifescience #charities #boston #fundraising #givingback #community #music #bands

Our team came together to wrap gifts for #RareDisease families around the world in honor of #RareDiseaseDay. We were thrilled to welcome our friends from GACI Global for the activity!    These communities continue to inspire our work. 

On February 27th, as a highlight of our #RareDiseaseDay2024 campaign, GACI Global is thrilled to announce our takeover of Rare Revolution Magazine’s platforms for their #TuesdayTakeover series. Join forces with us as we team up with RARE Revolution Magazine to spread awareness about GACI across Facebook, Instagram, and Twitter. Your support is invaluable, so please share and engage with our posts to amplify our message far and wide.💙 #GACI #ENPP1Deficiency #ABCC6Deficienc

Our co-president, Christine O'Brien, and Inozyme Pharma's chief scientific officer, Yves Sabbagh, PhD, were on a recent episode of the DNA Today Podcast. Listen here: https://bit.ly/3vXgVf8

We are so grateful to The Archivists, representing Inozyme Pharma, for choosing GACI Global as their charitable foundation for this event. Best of luck on May 8th!!

Today is GACI/ARHR2 Awareness Day, and through our work we honor the patients and families who are impacted by this devastating disease. Tragically, 50% of infants born with GACI do not survive past six months, making a timely diagnosis crucial for better outcomes. We are proud to partner with the GACI Global community to spread awareness for GACI and ARHR2 and engage with patients and families to understand their needs. You can learn more by watching the patient story videos we created with GACI Global here: https://lnkd.in/efy6Yywj   #CirculatingHope #GACIARHR2AwarenessDay

GACI Global is proud to partner with Inozyme Pharma as our mission aligns seamlessly with Inozyme's dedication to developing potentially life-saving treatments for GACI and ARHR2. Together, we remain committed to creating positive change and fostering hope for the patients and families facing these challenging conditions. #RareDiseaseAwareness #PatientAdvocacy #GACI #ARHR2 #circulatinghope