FARE

Learn more about food allergies from experts Drs. Kim and Chinthrajah in “New Horizons in Food Allergy: Best Practices & Treatment Advances for Unmet Needs.” Register here https://lnkd.in/e-uyaiWh for a time that works for you. #MedEd #CME #FoodAllergies #FoodAllergyAwareness

"Being diagnosed at 10 months old with severe food allergies, I’ve always been used to overcoming challenges and adversity with anaphylactic allergies. Over my childhood, it began to fluctuate, and in high school, I noticed a huge change in my health. Going from a straight A’s, overachieving, honor student to a student who dropped half of my classes and both jobs I held during senior year, began to take a toll on me. Thankfully, after months of tests and hospital visits, I was diagnosed with celiac’s disease and EoE (in addition to my severe anaphylactic allergies) Over the past two years it has been a fight to figure out the best way to treat all of this, and it’s severity increasing and decreasing- to the point that I couldn’t walk through a bread aisle without a reaction- but thankfully I’ve been helped by amazing doctors and had a small community who has stood by me, and supported and included me in all that they could. This year I started @sheeatsmorethanair to provide the community and hope that I wished I’d have had in this process- for patients, parents, friends and families. I want to prove that just because food restrictions can be really difficult, we can still eat more than air (a common question I get when listing my allergies is, ‘what do you eat?? Just air??’) and that there is so much creativity and hope in working around food restrictions and chronic illness!"-Christyn Judy Submit your story for a chance to be featured on an upcoming #FARESundayStory: https://bit.ly/3WNio3g

What do Teal Pumpkins mean? Sung Poblete, PhD, RN, CEO of FARE told PEOPLE Magazine | PEOPLE.com: “No child should ever be excluded from a celebration because of a disease. Food allergies are a disease of the immune system — not a diet — not a choice," Sung Poblete, PhD, RN, CEO of FARE, tells PEOPLE. "We are grateful that Teal Pumpkin Project, which was created by one food allergy mom working to provide an inclusive experience for her child and other children with food allergies, is now a national initiative." "Food allergies are a silent epidemic affecting more than 33 million people in the U.S. almost 6 million of whom are children,” adds Poblete. https://lnkd.in/ghPdxbCW

Sung Poblete, PhD, RN, CEO of FARE met with SAG-AFTRA Foundation Executive Director, Cyd Wilson saying after the meeting, "Love collaborations with like-minded organizations and individuals where 1 1=11..."

Sung Poblete, PhD, RN, CEO of FARE, was pleased to be invited to the FDA's Center for Food Safety and Applied Nutrition (CSFAN) for the first in-person meeting since before the start of the pandemic. FARE is grateful for the leadership of CSFAN's Deputy Director of its Office of Nutrition and Food Labeling, Dr. Patricia A. Hansen, and the opportunity to discuss food allergy issues with her, FARE colleagues, and other FDA colleagues. 

We’re thrilled to share a major milestone in patient care! ARS Pharmaceuticals, Inc.'s Neffy®, the first epinephrine nasal spray, is now available by prescription across the U.S.! This milestone has been a long time in the making, thanks to the efforts of allergy advocates, healthcare professionals, and our dedicated community. We couldn’t have reached this point without your ongoing support! #foodallergyawareness #foodallergy #neffy

"Hi, my name is Ada and I’m 32 years old. My food allergy story begins as a small child. My dad gave me a bar with walnuts and I broke out in hives. It wasn’t soon after that I was having my first allergy panel at 5 years old. I discovered I was allergic to all nuts and peanuts, along with mild asthma and eczema. My parents allowed me to eat foods that said possible cross contamination and school still allowed peanuts and nuts during those years. My first serious reaction was when I was 20 and accidentally ate a peanut butter cookie, and was rushed to the ER with a purple face. I then always carried an epi-pen with me. Many years later I moved in with a new boyfriend and was having severe allergies and hives every day. My allergist put me on Xolair shots ( before the approval for CC reaction but just for chronic hives ) came to find out one of his family members had been putting nuts in the food the whole time, trying to test my allergy. If it wasn’t for the Xolair I think I could have died. Thankfully they moved out not too soon after I received my first shot, and my hives disappeared. I discovered later that she still tells people to this day I’m not actually allergic. I now have a daughter who also has food allergies to dairy, eggs, and soy. I hope she will outgrow them all, but until then I continue to advocate for her, sharing the knowledge I have gained through the years. Some days it’s so hard having a little one with eczema and allergies, making sure her nutrition is always at its best. We do not eat out and have yet to make a family vacation due to her allergies, but in time we will. My dream is to take her to Disneyland, and I’ve heard they are great with allergies. But she is healthy, happy, and thriving! The allergy community has come so far in the last ten years and I’m excited to see what progress it will continue to make and in what ways it will benefit my family. Food allergies are real but they do not define my life nor my child! Submit your story for a chance to be featured on an upcoming #FARESundayStory: https://bit.ly/3WNio3g

Join Vindico Medical Education in Orlando at #AAP2024 OR virtually from anywhere for this #CE symposium on IgE-Mediated #FoodAllergies featuring a Wheel of Knowledge Challenge!    Doctors Ruchi Gupta, MD, MPH, Kelly Cleary and Anna Nowak-Wegrzyn will explore the latest clinical evidence and treatment options, emphasizing the importance of shared decision-making and interprofessional collaboration to improve patient outcomes.   Plus, participants will have the chance to test their knowledge in the interactive, educational gaming session, Wheel of Knowledge Challenge!   We look forward to seeing you on Saturday, September 30 at 7PM ET, in Orlando or virtually!    For more information and to register, use this link: https://lnkd.in/dUgfpEPv     American Academy of Pediatrics #CME #AAPA #pediatrician #pediatrics #foodallergy

FARE had the honor of hosting the Congressional Food Allergy Research Caucus Staff Briefing on “Back to School, Innovation, and Opportunities in Developing Treatment of Childhood Food Allergies.” We were thrilled to see such meaningful engagement from policymakers and the food allergy community. From hearing Rep. Glenn Grothman discuss the impact of Dillon's Law (H.R. 3910) on the food allergy community to the compelling perspectives shared by Dr. Kelly Cleary, a parent and medical doctor, the briefing shed light on the real challenges faced by families dealing with food allergies—especially during the back-to-school season. The panel also featured Dr. Sung Poblete, CEO of Food Allergy Research & Education, and Daniel Tasse, CEO of DBV Technologies, who highlighted exciting innovations and potential solutions for allergy treatments. It's inspiring to see how advocacy, research, and legislation are working together to address the needs of children with food allergies. 💡 Looking forward to seeing how these innovations will shape the future!

"A year ago at school, I had the worst allergic reaction I had ever experienced. I went straight into anaphylactic shock. My face was swollen, I was covered in hives and I couldn’t breathe. I was given an epipen and taken to the hospital. After a few hours they went to discharge me when I had a delayed reaction. Once again going into anaphylaxis, not being able to breathe. This was the scariest moment of my life because my reactions had never been this bad. As I have gotten older my allergy has become harder to manage. I used to eat things that came into contact with tree nuts but now that would send me into anaphylaxis. Luckily I have a very supportive family, school and girlfriend who all keep epi pens with them to ensure my safety. I’m so lucky to have such understanding people in my life. I hope one day people will take food allergies more seriously so more kids with allergies can stay safe." -Sophia Tufillaro Submit your story for a chance to be featured on an upcoming #FARESundayStory: https://bit.ly/3WNio3g