endoQueer

Today, Representative Murphy introduced a Bill in Congress to “Ban DEI in Medicine.” According to the bill, it would “cut off federal funding to medical schools that force students or faculty to adopt specific beliefs, discriminate based on race or ethnicity, or have diversity, equity, and inclusion (DEI) offices or ANY functional equivalent.” This isn’t just bad policy, it will actively harm and lead to worse outcomes for minority patients, and set back the little progress that has been made in medicine. Studies show that having increased diversity in medicine leads to better care for all. #healthcareonlinkedin https://lnkd.in/g25DWxfE.

March marks Endometriosis Awareness Month, a time to understand and learn more about a condition that affects millions of individuals worldwide. The Center for Endometriosis Care provides a lay-friendly definition of endometriosis: "a disease characterized by tissue somewhat resembling the native endometrium found elsewhere in the body."   Historically, endometriosis wasn’t taken seriously — and that’s unfortunately still the case in many areas to this day. The more we work together to raise awareness and highlight the diverse experiences within the endometriosis community, the more we can dispel misconceptions about this painful condition.   In commemorating this month, we want to call attention to the remarkable work of the health equity-focused organizations EndoQueer and EndoBlack.   endoQueer: This pioneering organization led by Lessie “Les” Henderson focuses on advocating for and supporting individuals within the LGBTQ community who are affected by endometriosis. Prior to Henderson’s work, the LGBTQ community was often left out of discussions about pain, healthcare access, and more. By amplifying diverse voices and addressing unique challenges, EndoQueer is creating a more inclusive and supportive environment for all. https://endoqueer.com    Endo Black, Inc.: Dedicated to raising awareness and providing resources for Black and African American individuals navigating the complexities of endometriosis. EndoBlack, and its founder Lauren K., are committed to addressing disparities in healthcare access and support, ensuring that the voices of women of color are heard and valued within the endometriosis community. https://www.endoblack.org/    These organizations, alongside many others, play a vital role in advancing awareness, research, and support for individuals with endometriosis. Their dedication to diversity and empowerment ensures that all individuals, regardless of background or identity, receive the care and support they deserve.   As we observe Endometriosis Awareness Month, let's stand in solidarity with EndoQueer, EndoBlack, The Center for Endometriosis Care, and all organizations working towards a future where individuals with endometriosis can thrive. #EndometriosisAwareness #SupportInEndo #EndoQueer #EndoBlack #HealthEquity 

It Took a Ruptured Cyst for Me to Get the Endometriosis Care I Needed “My endometriosis symptoms started when I was around 13. During my high school years, I experienced heavy bleeding and terrible cramps, to the point that my mother would break up Percocet (oxycodone and acetaminophen) and put it in applesauce for me to eat. I didn’t know anything was wrong and that my symptoms weren’t normal. Growing up as an African American woman, we did not have conversations about our cycles and periods. The attitude was that it’s just pain, and you must deal with it, take some ibuprofen, and get through it.” - Founder Lauren K. https://lnkd.in/e-_J86s5

Every person's presentation of endometriosis will be different. It should be noted that the severity of pain does not correlate with the severity of endometriosis and a person with mild disease may still experience crippling pain whereas a person with severe disease may have very little pain. Source: John Hopkins University #endometriosis #endo #endoawareness #endoaware #endomonth2024 #endomonth

Endometriosis is truly a public health crisis; it’s time we start treating it as such. Please join us on January 30th for this important and timely conversation! Register here! https://lnkd.in/g_QCv3Hx #endometriosis #womenshealth #patientadvocate

Advanced Imaging Techniques and Endometriosis Join Dr Mauricio Abrao from São Paulo, Brazil as he discusses emerging and advanced imaging techniques to detect endometriosis.

Remember that you can show your support to your loved ones and yourselves for better healthcare. Our shop is in the link below! Since today is #cybermonday, there’s discounts! Thank you all for your continued support! And welcome to those that are new to the space. #lgbtqia #lgbtqhealth #healthcare #endometriosis https://lnkd.in/dF2ZuzWT

Today we released a new report documenting major flaws in the standard math used to calculate the value of medications. This is an urgent problem, because CMS is going to begin negotiating the prices that the government will pay for drugs — and if the agency adopts a flawed methodology to determine the “maximum fair price” of a medication, that could have devastating consequences for patients across the country, both today and in the future. Our report, powered by Darius Lakdawalla and EntityRisk, looked at 20 drugs that had previously been reviewed by the Institute for Clinical and Economic Review (ICER) using the traditional approach to cost-effectiveness analysis. ICER found that only eight of the 20 were cost effective. But updating the math to incorporate widely-accepted components of value while accounting for the fact that drugs go generic and will be used by many future ‘cohorts’ of patients shows that at least 17 of the drugs were cost effective. ICER’s mistakes happen because their model doesn’t accurately reflect the value of drugs to patients and society in the real world. Our report identified three significant failings in that traditional approach, and we showed how to update the methodology to fix them. It’s important to get this right. CMS has indicated that it intends to adopt a form of cost-effectiveness analysis to help set drug prices, and it’s not an overstatement to say that it would be a disaster if the federal government adopted a flawed, out-of-date methodology to determine whether Americans will have access to the medications they need at a low out-of-pocket price. And beyond that, appropriately valuing the medicines of today is critical to the successful development of the life-saving medicines of tomorrow. Read the full report below to learn more about what’s wrong with traditional cost-effectiveness analysis and, critically, how we can fix it: https://lnkd.in/e3ECXJtF

🚨 We’re in a state of emergency for trans communities which is why we’re partnering with Lyft to offer free rides to trans and non-binary communities in an effort to increase public safety. https://lnkd.in/eK3fGPQW