Cutaneous Lymphoma Foundation

***PLEASE NOTE THE EARLIER START TIME (4:15 p.m. Eastern) FOR THURSDAY'S VIRTUAL FORUM*** The Cutaneous Lymphoma Foundation is offering a virtual Patient Educational Forum (PEF) on Thursday, July 25, 2024, from 4:15 pm - 8:00 pm ET. We are excited to have the cutaneous lymphoma specialists from the Yale School of Medicine as presenters for this evening event. This is an opportunity to learn more about the disease, treatments, clinical trials and current research. We end the evening with a Q&A with the clinicians so be sure to bring your questions! To view the agenda and register: https://lnkd.in/gdg3Devx #cutaneouslymphoma #CutaneousLymphomaFoundation

DON'T MISS THIS GREAT OPPORTUNITY! REGISTER TODAY! Patient Educational Forum (Virtual) The Cutaneous Lymphoma Foundation is offering a virtual Patient Educational Forum (PEF) on Thursday, July 25, 2024, from 5:00 pm - 8:00 pm ET. We are excited to have the cutaneous lymphoma specialists from the Yale School of Medicine as presenters for this evening event. This is an opportunity to learn more about the disease, treatments, clinical trials and current research. We end the evening with a Q&A with the clinicians so be sure to bring your questions! To view the agenda and register: https://lnkd.in/gdg3Devx #cutaneouslymphoma #CutaneousLymphomaFoundation

Register Today! Patient Educational Forum - Seattle, WA (In Person) The Cutaneous Lymphoma Foundation offers FREE Patient Educational Forums (PEF) to help patients, caregivers and others affected by cutaneous lymphoma receive accurate information about the disease. Forums are an opportunity to learn about current treatment options and research, connect with other people who share similar experiences, and obtain information about resources and support available. Date and Time: Sunday, August 4, 2024 11:00 am - 3:00 pm (registration begins at 10:15 am) Guest Clinicians: Caitlin Crimp, MD, Fred Hutch Cancer Center Elizabeth Loggers, MD, PhD, Fred Hutch Cancer Center Christina Poh, MD, Fred Hutch Cancer Center Michi Shinohara, MD, Fred Hutch Cancer Center For more information, including how to register, click on https://lnkd.in/gMSfpECr We hope to see you there! #cutaneouslymphoma #CutaneousLymphomaFoundation

Would You Like to Learn More about Cutaneous Lymphoma? The Cutaneous Lymphoma Foundation offers a variety of informative publications. Besides the various disease-specific Fast Facts, most people find "A Patient's Guide to Understanding Cutaneous Lymphoma" and "Understanding Treatment Options in Cutaneous Lymphomas" to be very valuable resources. The mycosis fungoides and Sezary syndrome Fast Facts are available to download in Spanish. Select Fast Facts are also now available in Arabic! All publications are available to view online at https://lnkd.in/gB5MPE8k or you can request hard copies at https://lnkd.in/gbBKrTUF #cutaneouslymphoma #CutaneousLymphomaFoundation

Video Mini-Series - Shining a light on rare cutaneous lymphoma variants Rarer variants of cutaneous lymphoma don’t always receive the same attention as the more common forms of the disease - this series is to help fill that gap. We've asked expert clinicians to respond to some basic questions about specific variants. We hope you will find their responses informative. This time we look at primary cutaneous anaplastic large cell lymphoma. https://lnkd.in/gwN5r7F2 If you missed one of the prior videos, subscribe today to the Cutaneous Lymphoma Foundation YouTube channel CutaneousLymphomaFnd to receive notifications as new videos are shared and posted. #cutaneouslymphoma #CutaneousLymphomaFoundation

Patient Educational Forum - Seattle, WA (In Person) The Cutaneous Lymphoma Foundation offers FREE Patient Educational Forums (PEF) to help patients, caregivers and others affected by cutaneous lymphoma receive accurate information about the disease. Forums are an opportunity to learn about current treatment options and research, connect with other people who share similar experiences, and obtain information about resources and support available. Date and Time: Sunday, August 4, 2024 11:00 am - 3:00 pm (registration begins at 10:15 am) Guest Clinicians: Caitlin Crimp, MD, Fred Hutch Cancer Center Elizabeth Loggers, MD, PhD, Fred Hutch Cancer Center Christina Poh, MD, Fred Hutch Cancer Center Michi Shinohara, MD, Fred Hutch Cancer Center For more information, including how to register, click on https://lnkd.in/gMSfpECr We hope to see you there! #cutaneouslymphoma #CutaneousLymphomaFoundation #patienteducation

The Cutaneous Lymphoma Foundation office is closed in observance of the 4th of July holiday.

CTCL and Intimacy/Sexual Health Research   Cutaneous lymphoma specialist, Dr. Michi Shinohara from the University of Washington is continuing to conduct a research study investigating the impact of cutaneous T-cell lymphoma on patient’s intimacy and sexual health and is in need of study participants. Participating in this study involves completing a one-time interview conducted over a health privacy-protected audiovisual platform (e.g., Zoom). Completion of the interview is expected to take approximately 1 hour. In the interview, we will ask you to tell us about the treatment you have had and how CTCL has affected your sexual relationships. Participants may refuse to answer or skip any question they feel uncomfortable answering. Participation is completely voluntary, and responses will be kept anonymous. This study has been reviewed by the University of Washington IRB, a committee that oversees research studies to make sure they follow the rules and regulations for research with people. If you would like to participate in this study or would like to find out more about participating, please email Michi Shinohara, MD at [email protected] #cutaneouslymphoma #cutaneousTcelllymphoma

PATIENT EDUCATIONAL FORUM (Virtual) The Cutaneous Lymphoma Foundation is offering a virtual Patient Educational Forum (PEF) on Thursday, July 25, 2024, from 5:00 pm - 8:00 pm ET. We are excited to have the cutaneous lymphoma specialists from the Yale School of Medicine as presenters for this evening event. This is an opportunity to learn more about the disease, treatments, clinical trials and current research. We end the evening with a Q&A with the clinicians so be sure to bring your questions! To view the agenda and register: https://lnkd.in/gdg3Devx #cutaneouslymphoma #CutaneousLymphomaFoundation

#NotJustMySkin Impact Report The World Skin Health Coalition issued an impact report of their #NotJustMySkin campaign held in March and April 2024. The campaign's purpose was to raise global awareness about the significant impact of skin diseases and conditions. Some of the achievements of the #NotJustMySkin campaign included: - Reaching over 5 million people - Over 17.8 million views of the campaign materials featuring data and stories of real people living with skin disease and conditions - Over 6800 individuals from 130 countries signed the open letter urging health policy leaders to act To read the full impact report and read the open letter to health policy leaders, click on https://lnkd.in/g9vXwR35