Every 1 September, on 𝐖𝐨𝐫𝐥𝐝 𝐂𝐋𝐋 𝐃𝐚𝐲, the global #CLL community unites to raise awareness about Chronic Lymphocytic Leukemia (CLL) and give those affected a much-needed voice. Learn more about the #WCLLD24 campaign theme, toolkit and how you can get involved: https://lnkd.in/dTGTw_Rt #LetsLevelUp
CLL Advocates Network
Health and Human Services
Connecting CLL patient groups worldwide with the mission of enhancing CLL patient care and improving outcomes.
About us
The CLL Advocates Network (CLLAN) was founded in 2014 by representatives from Canada, Czech Republic, France, Ireland, Italy, Portugal, UK and the United States. It is hosted under the umbrella of the Leukaemia Patient Advocates Foundation (LePAF), a patient-led non-profit foundation based in Switzerland acting as a legal platform for self-sustained patient advocacy initiatives. The CLL Advocates Network is governed by a Steering Committee consisting of the 9 members, of whom 6 are patients and 1 is a carer. WHY IS CLLAN IMPORTANT? - CLL is the most common leukaemia in the Western world, with approximately 4 to 5 people in every 100,000 affected, but is poorly understood. - Many countries do not have a community or patient groups dedicated to supporting CLL patients. - A global network is indispensable to share knowledge, experience and best practices across countries, advocate for equitable standards of care and treatment standards and help improve patients´ understanding of clinical trials and the drug development process. CLLAN MISSION Improve CLL patient outcomes as a global network of CLL patient advocates.
- Website
-
https://www.clladvocates.net/
External link for CLL Advocates Network
- Industry
- Health and Human Services
- Company size
- 2-10 employees
- Type
- Nonprofit
Employees at CLL Advocates Network
Updates
-
𝐂𝐡𝐫𝐨𝐧𝐢𝐜 𝐋𝐲𝐦𝐩𝐡𝐨𝐜𝐲𝐭𝐢𝐜 𝐋𝐞𝐮𝐤𝐞𝐦𝐢𝐚 (#CLL) is a disease that affects countless individuals worldwide. Did you know CLL is the most common type of leukemia in adults, yet there is less awareness about CLL than other cancers. This 𝐖𝐨𝐫𝐥𝐝 𝐂𝐋𝐋 𝐃𝐚𝐲 - 1 September, let's dive deeper into understanding its impact, symptoms, and treatment options. Knowledge empowers us to advocate effectively. www.wclld.org #LetsLevelUp #WCLLD24
-
-
📢 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐍𝐨𝐰! Join us 𝐓𝐎𝐌𝐎𝐑𝐑𝐎𝐖 for a 𝐥𝐢𝐯𝐞 𝐰𝐞𝐛𝐢𝐧𝐚𝐫 on "Exploring the World CLL Day 2024 Campaign Toolkit: Strategies & Involvement". We’ll go through the 2024 Campaign Toolkit and discuss how you can get involved in advocating for equitable #CLL care. 🕕 Date & Time: August 15, 5PM BST / 6PM CEST 🔗 Register here: https://lnkd.in/d33t2JYD We look forward to your participation! #WCLLD24 #LetsLevelUp #CLL #Webinar
-
-
This 🌍 𝐖𝐨𝐫𝐥𝐝 𝐂𝐋𝐋 𝐃𝐚𝐲 - 1 September, our theme is “𝐋𝐞𝐯𝐞𝐥 𝐔𝐩” – ensuring all #CLL patients get equal care and treatment. Let’s tackle disparities between income levels, geographic inequalities, and access to supportive care. We advocate for improving health literacy for better decisions for fair and comprehensive care. 👉 Explore the #WCLLD24 Campaign Toolkit and how you can get involved: https://lnkd.in/dbtWkKA5 #WCLLD24 #LetsLevelUp
-
-
📢 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐍𝐨𝐰! - Join us for a 𝐥𝐢𝐯𝐞 𝐰𝐞𝐛𝐢𝐧𝐚𝐫 on "𝐄𝐱𝐩𝐥𝐨𝐫𝐢𝐧𝐠 𝐭𝐡𝐞 𝐖𝐨𝐫𝐥𝐝 𝐂𝐋𝐋 𝐃𝐚𝐲 2024 𝐂𝐚𝐦𝐩𝐚𝐢𝐠𝐧 𝐓𝐨𝐨𝐥𝐤𝐢𝐭: 𝐒𝐭𝐫𝐚𝐭𝐞𝐠𝐢𝐞𝐬 & 𝐈𝐧𝐯𝐨𝐥𝐯𝐞𝐦𝐞𝐧𝐭". We’ll go through the 2024 Campaign Toolkit and discuss how you can get involved in advocating for equitable #CLL care. 🕕 Date & Time: August 15, 5PM BST / 6PM CEST 🔗 Register here: https://lnkd.in/d33t2JYD We look forward to your participation! #WCLLD24 #LetsLevelUp #CLL #Webinar
-
-
1 September is World CLL Day and the start of #BloodCancerAwarenessMonth. Let's raise awareness and advocate for equal care for Chronic Lymphocytic Leukemia (#CLL) patients worldwide. Explore the #WCLLD24 Campaign Toolkit and how you can get involved: https://lnkd.in/dbtWkKA5 #LetsLevelUp
-
-
📢 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐍𝐨𝐰! - Join us for a live webinar on "𝐄𝐱𝐩𝐥𝐨𝐫𝐢𝐧𝐠 𝐭𝐡𝐞 𝐖𝐨𝐫𝐥𝐝 𝐂𝐋𝐋 𝐃𝐚𝐲 2024 𝐂𝐚𝐦𝐩𝐚𝐢𝐠𝐧 𝐓𝐨𝐨𝐥𝐤𝐢𝐭: 𝐒𝐭𝐫𝐚𝐭𝐞𝐠𝐢𝐞𝐬 & 𝐈𝐧𝐯𝐨𝐥𝐯𝐞𝐦𝐞𝐧𝐭". We’ll go through the 2024 Campaign Toolkit and discuss how you can get involved in advocating for equitable #CLL care. 🕕 Date & Time: August 15, 5PM BST / 6PM CEST 🔗 Register here: https://lnkd.in/d33t2JYD We look forward to your participation! #WCLLD24 #LetsLevelUp #Webinar
-
-
If you're attending #EHA2024 take some time to sign the wall to support CLL Advocates Network at the BeiGene stand. Don't forget the coffee 😀 ☕
-
-
#EHA2024 𝐤𝐢𝐜𝐤𝐬 𝐨𝐟𝐟 𝐭𝐨𝐝𝐚𝐲 𝐢𝐧 𝐌𝐚𝐝𝐫𝐢𝐝. One of the most important conferences in the world of haematology. We are looking forward to connecting with friends, especially at the patient advocacy booth. 𝐂𝐨𝐦𝐞 𝐬𝐚𝐲 𝐡𝐞𝐥𝐥𝐨 𝐭𝐨 𝐨𝐮𝐫 𝐭𝐞𝐚𝐦!
-
🌍 Today is 𝐖𝐨𝐫𝐥𝐝 𝐁𝐥𝐨𝐨𝐝 𝐂𝐚𝐧𝐜𝐞𝐫 𝐃𝐚𝐲 2024, a day dedicated to raising awareness and support those affected by blood cancers, including Chronic Lymphocytic Leukemia (CLL). Did you know that chronic lymphocytic leukemia (CLL) is a cancer? It is the most common leukemia diagnosed in adults. Leukemia is a type of blood cancer. Share and join us in spreading the word and supporting those affected by CLL and other blood cancers. #WorldBloodCancerDay #CLLAwareness #BloodCancerAwareness #CLL
-