Alliance for Headache Disorders Advocacy & The Headache Alliance

Paige is one of our Communications & Marketing Interns this summer! Paige currently attends American University and is studying Political Science and Interdisciplinary Studies, Communications, Legal Systems, Economics, and Government. She is expected to graduate in May of 2026! In her free time Paige enjoys skiing, reading, and knitting. Paige's favorite thing about interning for THA is getting the chance to learn about healthcare policy and patient advocacy.

📣 TAKE ACTION: Reliable data is crucial to understand headache disorders and create effective policy interventions. The Advancing Research for Chronic Pain Act (ARCPA) will mandate the CDC to collect, analyze, and publish, health data on chronic pain. By improving data collection and analysis, we can increase understanding and support for millions living with headache disorders, leading to more effective treatments and better quality of life. #ChronicPain #HeadacheDisorders #Advocacy Join AHDA to #TellCongresstoCountPain via our easy take action form! It takes just two minutes! https://lnkd.in/eS98p_qs

🌍🧠 Today is World Brain Day! 🧠🌍 This World Brain Day, we have a chance to unite and advocate for brain health and the prevention of neurological diseases, including headache disorders. Headache disorders, are not just simple aches—they are complex conditions that can profoundly affect daily life. Today, let's: 🧠 Raise Our Voices: Advocate for better understanding, treatment, and support for those living with headache disorders. 🧠 Support Brain Health: Call for more research to help us understand what causes headache disorders so we can prevent them from happening in the first place. 🧠 Stand Together: Show solidarity with those affected by neurological conditions, offering compassion and support. Together, we can create a brighter, healthier future for all. #WorldBrainDay #BrainHealth #HeadacheDisorders #NeurologicalDiseases #Advocacy #UniteForBrainHealth

We are so excited to announce the @us_pain_foundation has recently joined as a member of the Alliance for Headache Disorders Advocacy. The US Pain Foundation is a nonprofit organization dedicated to serving people with chronic pain. US Pain Foundation CEO Nicole Hemmenway has also joined us as a new Board Member of the AHDA! Nicole comes into this role with not only dedication to, but personal experience living with, chronic pain. Nicole’s journey with chronic pain has made her a steadfast advocate for the chronic pain community and we couldn’t be more excited to welcome her to the Board of Directors!

Happening today!

Today is the LAST DAY to apply for the Fall Virtual Headache on the Hill! Don't miss this opportunity to join the most influential day in headache advocacy, where your voice can shape policies impacting millions. Learn more about how becoming an advocate can provide you with: professional development, networking opportunities, and a chance to have their voice heard to make a difference in the lives of millions! Don't wait, apply now at https://lnkd.in/eXbCChtQ

We're thrilled to announce that the Facial Pain Association (FPA) is a member of the AHDA. The Facial Pain Association, with a mission to serve those with neuropathic facial pain through support, education, and advocacy, is an important partner in serving all those with headache disorders including those with orofacial pain disorders. Excitingly, Brandi Underwood, Manager of Development, Research, and Advocacy for the FPA, was also recently elected Board Secretary of the AHDA. Brandi brings a wealth of experience and passion to the role of Board Secretary, advocating tirelessly to the headache disorder community. We look forward to further deepening our partnership and collective work to make life better for all those living with headache disorders!

The bipartisan Improving Seniors Timely Access to Care Act would streamline prior authorization requirements under Medicare Advantage plans. Seniors living with headache disorders deserve better. Make your voice heard in support of this important piece of legislation via our easy to use take action form! Take Action Today: https://lnkd.in/eTDmxBd5

We’re excited to announce a significant milestone for HR 2630, the Safe Step Act! Thanks to the tireless efforts of advocates, patients, healthcare professionals and our coalition partners, the Safe Step Act has now garnered the support of more than 218 House cosponsors, more than half of all House members! This crucial piece of legislation aims to protect patients by ensuring timely access to the medications they need without unnecessary delays. Together, we are making strides towards a more compassionate and effective healthcare system. A huge thank you to our champions Rep. Brad Wenstrup (R-OH), Rep. Lori Chavez-DeRemer (R-OR), Rep. Lucy McBath (D-GA), Rep. Raul Ruiz (D-CA), and all 218 co-sponsors for your commitment to patient access to care. Your dedication and hard work are making a real difference. Speaker Johnson and Leader Jeffries, we look forward to working with you, Chairwoman Foxx, and the House Committee on Education and Workforce to ensure the successful passage of this bill. We finally want to thank all of our amazing advocates for the hard work they put into Headache on the Hill and beyond to get us here today! Your meetings, follow-up emails and continued engagement have made a huge impact in reaching this important milestone! Let’s keep the momentum going and continue to advocate for a safer, healthier future for all.

Today, July 10th is Chronic Disease Day! Chronic Disease Day raises awareness about the ways in which we can build a healthier community and expand access to care for those in need. The AHDA wants raise awareness about all chronic diseases today, including those who live with chronic headache disorders. Let's look at chronic migraine as an example. Chronic migraine is so much more than "just a headache." Chronic migraine patients experience 15 or more headache days per month and affects around 3-5% of the U.S. population. This condition can be extremely debilitating. You can participate in raising awareness on this Chronic Disease Day by sharing who motivates you to be your strongest self and live your best life while living with your chronic headache disorder with the hashtag #IStayStrong.