We are lucky to have Sharon King as an important part of our team!
As a voice for the rare disease community, a recent op-ed in STAT really hit home for me. The article focuses on how the FDA’s rare pediatric disease priority review voucher program will disappear unless Congress reauthorizes it before September 30. As NORD's Pamela Gavin shares in the byline, more than 30 million Americans live with a rare disease, and nearly half are children – the program disappearing would be a devastating end for patients and their families eagerly waiting for treatment. At Aldevron, we are committed to advocating for individuals with #rarediseases by helping develop the tools to create breakthrough treatments, and we understand how important increased funding and programming is in this often-forgotten space. We must continue to push the government to incentivize #drugdevelopment for rare diseases, ensuring that patients continue to have hope for their future. #PRVs #RareDisease #FDA