~SoulsPoison

Some of you that I talk to outside of public spaces know there's been A Thing going on. I have a limited spoon supply so please bear with me as I give the short version of the debacle.

August 2022 I had a seizure while watching tv with my partner. One minute I was laughing, the next I’m sitting up on the floor wondering how I got down there. Needless to say, I took a trip to the ER.

The ER visit was lackluster to put it mildly and after doing a blood test and checking my heart, they told me to see my primary care doctor. After assessing that the seizure (and subsequent seizures following) were not caused by any of my meds we agreed on getting a diagnostic CT scan without contrast. This is well after August and into the New Year as there were some complications with communication and scheduling.

On January 16, 2023 I had a CT scan and received the results the same day. What was found was an abnormal spot on the left side of my head in the mastoid region. The recommended next steps were to get a CT scan with contrast, meet with a neurologist, and go from there.

None of that happened.

Due to human error and negligence, communication setbacks, scheduling, and general PoC problems dealing with the Medical Field– it was months later before there was a resolution. It is a far more detailed story than I have the desire or energy to share in public, but just know that patient advocacy is extremely necessary and hard as hell to do for yourself. With all that settled and mostly behind me, I was finally able to schedule very much needed appointments. Which leads to the events of yesterday.

I had an MRI yesterday (April 27th), with and without contrast and the results conclusively showed a meningioma tumor on the left side (as suspected in the CT scan). Not sure how deep it is in there as I haven’t spoken to my primary doctor, but the size is about 1.5 x 1.4 x 1.3cm (a long grain of rice) according to the report from radiology. For months, I’ve read up on meningiomas and courses of treatment, risks, etc. and pretty much figured that’s what it was. After months and months of seizures and frustration, I have an answer and it feels FANTASTIC.

The good news is that this confirms I'm not having psychosomatic seizures related to CPTSD or trauma. Instead, the seizures and other episodes are because of this little shit causing them. I have a sense of relief and determination to face this thing like a lion.

The type of tumor (meningioma) is typically slow growing and benign with a 1% chance of being cancerous. We have a pretty extensive history of cancer in my family, so there is the worry in the back of my mind about it potentially being malignant. But I can’t stress myself out with the unknown and can only keep on moving forward until I meet with a neurologist.

With that said, next steps are seeing my PCP on June 8th and then the Neurologist on June 29th. They are both extremely booked up, so these are the soonest dates I could get unless there are cancellations. So until then, I really won't have much news to share, but I wanted to be transparent about what’s going on. I still have a commission backlog I am trying my best to finish, and I hope this doesn’t slow me down more.

If you are a client who is still waiting on a piece from me, please shoot me an email and we can discuss what to do from here. I apologize for the long wait and then this happening on top of it. You can email me at tempusobscura[at]gmail[dot]com.

Again, thank you all for your support and patience! I can’t begin to tell you all how much it really means. <3