Sarcoma UK

📣New Sarcoma Support Group The new Cardiff Sarcoma Support Group's first meeting will be on Monday 29 July at 4.30-6pm at Maggies in Cardiff . For more details please contact Maggies Cardiff: 029 224 080 24 For more information on Sarcoma Support Groups please visit https://lnkd.in/edaavEKh

Local support group meetings in August include: 📌 Aberdeen Sarcoma Support Group 📌 Cardiff Sarcoma Support Group 📌 East Midlands Sarcoma Support Group 📌 North West Sarcoma Support Group 📌 East Anglia Sarcoma Support Group 📌 Southampton Sarcoma Support Group Support Group details sometimes change, so always double-check with the organisers. https://lnkd.in/edaavEKh

📸 'The medium of photography can share so much that sometimes can never be spoken. This exhibition shows the experiences of people as they navigate their way through diagnosis, treatment and follow-up in a way that is brave, honest, and heartfelt.' - Helen Stradling, Sarcoma Specialist Nurse and Support Line Manager at Sarcoma UK At Sarcoma UK, we're proud to support the powerful "Close to the Bone" photography exhibition alongside Bone Cancer Research Trust. This unique display by photographer Caroline Seymour offers an intimate look at the journey of primary bone cancer patients, reminding us that no one faces this isolating diagnosis alone. You can view Close to the Bone at The Royal College of Surgeons of England in London. - 15 August – 7 September 📅 - 10am – 5pm Get your free tickets here: https://ow.ly/1srg50SHUW1 If you are interested in attending the London launch night of the exhibition on Wednesday 14 August at 6pm please e-mail us directly: [email protected]

As we come to the end of this year’s Sarcoma Awareness Month, you can help make a valuable difference to the sarcoma community by setting up a direct debit. For just £5 a month, you could cover the cost of 60 texts to the Support Line, helping anyone affected by sarcoma reach this lifeline service and get the practical advice and emotional support they need. Visit sarcoma.org.uk/regulargift

‘My tumour was the size of a snooker ball!’ Yesterday, we introduced you to Jake, a patient diagnosed with synovial sarcoma. Jake’s journey began in 2015 when he first experienced pain in his hip. In 2016, he visited his GP, who suggested it might be sciatica. For the next two years, Jake struggled with lots of pain to the point where he collapsed in agony on his driveway. After being misdiagnosed and treated for months, he was referred to RNOH for a biopsy, which confirmed synovial sarcoma. By then, the tumour was around the size of a snooker ball. Find out more about Jake and his story at sarcoma.org.uk/sam #SarcomaUKAwarenessMonth #DontDelay

‘I was repeatedly misdiagnosed for 3 years!’ Meet Jake Spencer, a 26-year-old from Ashford in Kent. It took 941 days for Jake to get his diagnosis. Jake was diagnosed with synovial sarcoma, with a tumour the size of a snooker ball. Check back tomorrow for more on Jake's story. sarcoma.org.uk/sam #SarcomaUKAwarenessMonth #DontDelay

Almost one-third of sarcoma diagnoses come from a GP referral. Our Early Diagnosis Steering Group works to improve early detection and advance sarcoma education. We have developed an accredited online training module to enhance GPs' diagnostic skills and created a video to educate medical students and junior doctors. This initiative aims to reduce diagnostic delays and improve patient outcomes through focused education and training. Learn more about these initiatives and access the training resources here sarcoma.org.uk/sam #SarcomaAwarenessMonth #DontDelay

Sarcoma story hits airwaves: Desi Radio amplifies 'Don't Delay' message. Tarli Garcha shared how he had a 10kg liposarcoma removed from behind his kidney after originally going to A&E for a completely different reason. Read more at sarcoma.org.uk/sam #SarcomaAwarenessMonth #DontDelay #Charity #Sarcoma

Early diagnosis is critical. For Sarcoma Awareness Month this year, we're focusing on the critical issue of prompt diagnosis through our "Don't Delay" campaign. Our research shows that 1 in 3 people see a healthcare provider for over 6 months before being correctly diagnosed, causing immense anxiety and loneliness. By learning the signs of sarcoma and not delaying contacting your GP if you experience symptoms, we can work together to improve early detection and save lives. Learn more about our vital research, which aims to create a future in which sarcoma is diagnosed earlier, and patients receive the best possible care click here. https://lnkd.in/eNCwXVJs #SarcomaAwarenessMonth #DontDelay #Charity #Sarcoma

Creating a buzz on BBC Suffolk - families speak out about rare cancer… The article features stories from three sarcoma patients’ families, raising awareness of different types of sarcoma and the importance of getting an early diagnosis. Read the full article on sarcoma.org.uk/sam #SarcomaAwarenessMonth #DontDelay #Charity #Sarcoma