Today, on #WorldParkinsonsDay, we're launching our new #SummerOfSport campaign ❤️ 🌷 🏓 From today until the #Paris2024 Olympics, we'll be telling the incredible stories of #Parkinson's sporting communities across Europe, and helping every person with #Parkinsons to find a sport or exercise that's right for them. 👉 https://buff.ly/43PNk4t Share this video to help us spread the word about what people with Parkinson's can do! #ParkinsonsAwarenessMonth Huge thanks to the Parkinson's sporting communities who took part in this video, including: ACTION PARKINSON Popping For Parkinson's Fuerte es la Vida Parkinson No Limits YUVEDO Foundation Elisabeth Ildal
Parkinson's Europe
Non-profit Organizations
Orpington, Kent 4,471 followers
🌷The leading voice for #Parkinson's in Europe 🌷Supporting the 1.2m Europeans with #Parkinsons and their families
About us
Parkinson's Europe helps support over 1.2 million people with Parkinson’s and their families across Europe with a vision of enabling a full life with Parkinson’s while supporting the search for a cure. Non-political, non-religious and non-profit making, EPDA is an umbrella organisation with national members across 36 countries covering 28 European languages. It is the advocate for the rights and needs of 1.2 million European people with Parkinson’s and their families, aiming to raise awareness to ensure that all people with Parkinson’s and their families have access to the right management and the right treatment at the right time. In 1997 we also founded #WorldParkinsonsDay
- Website
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https://www.parkinsonseurope.org/
External link for Parkinson's Europe
- Industry
- Non-profit Organizations
- Company size
- 11-50 employees
- Headquarters
- Orpington, Kent
- Type
- Nonprofit
- Founded
- 1992
Locations
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Primary
Lynwood House
Crofton Road
Orpington, Kent BR6 8QE, GB
Employees at Parkinson's Europe
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antonella moretti
Founder, Moretti Management Consulting / International Associate Consultant, THINK Consulting
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Christy McGhee
Journalist, editor, copywriter
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Karl Wouters
Co-founder & Chief Editor Medinet.tv
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Dominic Graham
Operations Director with a project manager/journalist/editor background
Updates
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A great podcast episode for #Parkinsons researchers and clinicians 👇
A particularly active area of research is the development of molecular imaging biomarkers that can be used in combination with common neuroimaging approaches. In the latest episode of The Parkinson’s Research Podcast, Antonio P. Strafella, MD, PhD, FRCPC, director of clinical research and translation at Temerty Faculty of Medicine, University of Toronto shares how molecular imaging biomarkers are being used in research and in the clinic. He discusses the process of developing new biomarkers, promising biomarkers that are currently in development, limitations, implementation challenges and the potential use of AI to enhance diagnostics in the future. Listen now: https://bit.ly/4cUf4bA * This podcast is geared toward researchers and clinicians. If you live with Parkinson’s or have a friend or family member with PD, listen to The Michael J. Fox Foundation Parkinson’s Podcast: https://bit.ly/3W1iKBa
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Some interesting new #Parkinsons research here 👇
New MDS paper: Experts identify the major gaps that are barriers to understanding alpha-synuclein's role in PD. https://loom.ly/G3NHMR8
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This incredible video shows Damien Grath, a 52-year-old man with Parkinson's, and how a new drug has had a "life-changing" effect. You can find out more on the BBC News site: https://lnkd.in/ew5b3xyz
This is why we work in the NHS. At Sherwood Forest Hospitals, improving people's lives and experience of care is at the heart of what matters to us. We love this before and after video showing the life-changing impact that a new treatment for Parkinson's disease is making to one of our patients. We are the first hospital in the East Midlands to offer Produodopa, a new infusion therapy treatment that is administered via a portable pump under the skin, for patients with advanced-stage Parkinson's disease. Damien Gath, 52, of Derby, underwent the treatment at Sherwood Forest Hospitals. Damien’s condition had recently worsened and he had been taking four separate oral drugs six times a day to control the problematic involuntary movements which made those everyday activities a challenge. Damien said: “It’s been extraordinary and life-changing – just shortly after first having the treatment I was able make a cup of coffee more easily and go to the supermarket.” Dr Nishantha Silva, Consultant Geriatrician and Service lead for Parkinson’s disease and related movement disorders at SFH, said: “We are proud to be the first Trust in the East Midlands to offer this and aim to build on this success by expanding access to Produodopa, ensuring that more patients can experience its benefits, providing our patients with the highest quality of care and latest treatment options. “The successful implementation of Produodopa at SFH heralds a new era in the management of advanced Parkinson’s disease.” You can read more about Damien's experiences on our website at https://lnkd.in/gfEZdz-B If you'd like to join #TeamSFH, check out our vacancies for jobs at all levels and across all departments at https://lnkd.in/e8E76D_5. NHS England
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Lots of great research in neurodegenerative diseases like #Parkinsons on show at #AAIC24 - a hashtag (and event) well worth watching for the #Parkinson's community
Attending #AAIC24? Don't miss presentations on the latest EPND #biomarker research, from our partners Pieter Jelle Visser, Betty Tijms and Marianna Rizzo! 📍 Marianna Rizzo of Maastricht University will share the latest results from a collaborative EPND study on ATN #biomarkers, involving samples from 337 individuals with #Alzheimers, #Parkinsons or #dementia with Lewy bodies, from 6 centers across #Europe. ➡ Featured Research Session on fluid biomarkers in Lewy body disease: room 115ABC, Sunday 28 July, 14.30-14.45 📍 On Sunday afternoon, Betty Tijms of Amsterdam UMC will present her work on #Alzheimers disease subtypes, identified through #proteomics analysis of CSF samples. ➡ Featured Research Session on "The Atypical Alzheimer’s Disease Continuum: from Clinical Phenotypes to Disease Mechanisms": room 115ABC, Sunday 28 July, 16.45-17.00 📍 Next Tuesday, visit poster 342 to learn about the relationship between tau levels, proteomic #biomarker signatures and progression to #dementia in people with mild cognitive impairment - from EPND co-Lead, Pieter Jelle Visser. ➡ Tuesday 30 July, Exhibit Hall AB, 08.00 - 16.15 Innovative Health Initiative (IHI) EFPIA - European Federation of Pharmaceutical Industries and Associations Alzheimer's Association®
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Parkinson's Europe reposted this
From a lack of available specialists to fragmented care pathways there are too many gaps in healthcare systems for people living with a rare neurological conditions to fall through. Sign our Call to Action for Rare Neurology to show your support for the development of rare #neurology action plans at EU-level: www.efna.net/rnc-cta/ Your support will encourage engagement from policymakers ahead of #RareDiseaseDay 2025, through the MEP Interest Group on #BrainHealth and Neurological Conditions.
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This should be a useful session 👇
Join us on Tuesday, 8/13 to learn about future-proofing today's home for tomorrow's needs. Suz Klyber & Greg Sieb are the dynamic duo behind Live In Plaace which has helped over 5,000 families in need since 2007. They are going to discuss: - Good Body Mechanics - Importance of Fall Prevention - Energy Conservation techniques - Home modifications versus remodeling or doing a combination Suz has 40 year's experience as an occupational therapist with 26 years focused on in-hoe care. Greg has vast experience in construction, customer service and project management. Register Online Today: https://lnkd.in/euWAxpKk #yopd #parkinsons
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This nifty pie chart shows all the #Parkinsons drug trials taking place today. It's part of the 2024 report, released this week in Journal of Parkinson's Disease (and produced by Cure Parkinson's , The Michael J. Fox Foundation for Parkinson's Research & more), about the current state of #Parkinson's drug research. 👉 Read more: https://buff.ly/3LH9YDE
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Proud to see our President, Josefa Domingos, among the speakers at this brilliant event! #Parkinsons #Parkinson
Are you a healthcare professional interested in the journey of patients and caregivers dealing with Parkinson’s Disease? If so, join our international and national faculty on November 23 to discuss the many challenges involved! Registrations are now open: https://lnkd.in/di9m9Q3H The 6th edition of the MOVING ON SERIES also invites you to submit an abstract for a chance to be selected for an oral presentation, win a prize, and have your abstract published in SINAPSE. Please check our abstract submission details: https://lnkd.in/dUc_7cUc This edition of MOVING ON SERIES is a joint session by Sociedade Portuguesa de Neurologia (SPN), Sociedade Portuguesa das Doenças do Movimento (SPDMov) and BIAL. #BIAL #BIALKeepingLifeinMind #InspiredByTheFuture
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What an incredible achievement! 🚣♂️ #Parkinsons #Parkinson
“There's so much to take away from the experience of being in such a simple yet hostile environment, throwing everything at you, testing your very spirit, resolve and strength, but knowing you can do it,” says Brendan Cusick, captain of Team Human Powered Potential. “I knew I could do it because I had three amazing humans next to me and had what was in my heart, mind and spirit. It's untapped what any human can do if you just put your heart and mind to it.” Successfully completing the World's Toughest Row on July 19 after enduring over 41 days of rigorous rowing and unpredictable weather, Team HPP has proven that with determination, unity and compassion, extraordinary feats are possible. In the end, it was the team members’ unwavering spirit, combined with support from the Parkinson’s community, that propelled them to the finish line. With each stroke, Team HPP aimed to honor those living with Parkinson’s and raise $28 million for research. They set a race record, raising $9,000 per mile — totaling over $25 million raised to date — thanks to a historic 3:1 match from an anonymous donor. Learn more about their incredible journey and mission to find a cure for Parkinson’s: https://bit.ly/3yj92SQ 📽️: World's Toughest Row