NCBRS Worldwide Foundation

🗓 5 DAYS LEFT! #GlobalNCBRSAwarenessDay is almost here! Nicolaides-Baraitser Syndrome (#NCBRS) is an extremely rare genetic disorder that affects development, cognition, and various body systems. Raising awareness is crucial to support families and drive research forward. 🌍 Get involved: Share a post, learn more about NCBRS, or donate to support research and our global community! Visit our awareness day page for more info: https://buff.ly/3uj3ZLH #NCBRSRare 🧡💚💙 Gene People RARE DISEASES INTERNATIONAL RARE Revolution Magazine Healthinote FaceMatch Rare Patient Voice Sanford Research Genetic Alliance UK Beacon for Rare Diseases Patient Worthy Global Genes Dazzle4Rare

Join us in six days for #GlobalNCBRSAwarenessDay. Save the date and support us in raising awareness of #NCBRS in our local and wider communities. Don't forget to add our awareness day frame to your social media profile picture and rally your friends and family to do the same: https://buff.ly/3z7Ctb7. Visit our awareness day page for more ways to get involved and help raise awareness of NCBRS: https://buff.ly/3uj3ZLH. #NCBRSRare 🧡💚💙 Gene People RARE DISEASES INTERNATIONAL RARE Revolution Magazine Healthinote FaceMatch Rare Patient Voice Sanford Research Genetic Alliance UK Beacon for Rare Diseases Patient Worthy Global Genes Dazzle4Rare

ONE WEEK TODAY, on Wednesday, October 9th, it's #GlobalNCBRSAwarenessDay. Save the date and join us in raising awareness of #NCBRS in our local and wider communities. Don't forget to add our awareness day frame to your social media profile picture and rally your friends and family to do the same: https://buff.ly/3z7Ctb7. Head to our awareness day page for more ways to get involved and help raise awareness of NCBRS: https://buff.ly/3uj3ZLH... #NCBRSRare 🧡💚💙 Gene People RARE DISEASES INTERNATIONAL RARE Revolution Magazine Healthinote FaceMatch Rare Patient Voice Sanford Research Genetic Alliance UK Beacon for Rare Diseases Patient Worthy Global Genes Dazzle4Rare

Gather your friends and family to join us at Cambridge Rare Disease Network (CamRARE))'s #RAREfest24! We're thrilled to be media partners for this vibrant and vital event that puts those affected by #RareDiseases at the heart of the action. Explore talks, hands-on exhibits, art, and films showcasing pioneering research, life-changing tech, and inspiring real-life stories. For more info and FREE tickets, head to https://buff.ly/3Bq0eM4 🧡💚💙 #NCBRS #NCBRSRare #Science #Technology #RareDisease #PatientVoice #Advocacy

In just two weeks, on Wednesday, October 9th, we kick off #GlobalNCBRSAwarenessDay! Please save the date and join us in raising awareness of #NCBRS within our local and wider communities. How You Can Participate: 1. Want the latest NCBRS merchandise? Check out our shop to get yours today: https://buff.ly/3Lidd4L... 2. Add our awareness day frame to your social media profile picture/s to help raise awareness of NCBRS and please encourage your friends and family to do so as well: https://buff.ly/3z7Ctb7... 3. Check out our awareness day page for more ways to get involved and raise more awareness of NCBRS: https://buff.ly/3uj3ZLH... Let’s come together to make a difference for the global NCBRS community! #NCBRSRare 🧡💚💙 Gene People RARE DISEASES INTERNATIONAL RARE Revolution Magazine Healthinote FaceMatch Rare Patient Voice Sanford Research Genetic Alliance UK Beacon for Rare Diseases Patient Worthy Global Genes Dazzle4Rare

Have you signed up for your “This Is Me” #RarePatientPassport yet? 🌟 This innovative tool is designed to help you effectively communicate your #RareCondition to new healthcare providers, teachers, or anyone else who needs to understand your or your child’s medical needs. Having all the latest information in one place saves you time and ensures that critical details are always at hand. When signing up, be sure to select the NCBRS Worldwide Foundation for your condition-specific passport. You’ll receive a blank version you can complete, print, and use whenever necessary. Sign up for yours here: https://buff.ly/3xUE4k4 🧡💚💙 #NCBRS #NCBRSRare Cambridge Rare Disease Network (CamRARE)

3 weeks today on Wednesday, October 9th it is #GlobalNCBRSAwarenessDay... Please save the date and help us raise awareness of #NCBRS within our local and wider communities. Want the latest NCBRS merchandise? Check out our shop to get yours today: https://buff.ly/3Lidd4L... Add our awareness day frame to your social media profile picture/s to help raise awareness of NCBRS and please encourage your friends and family to do so as well: https://buff.ly/3z7Ctb7... Check out our awareness day page for more ways to get involved and raise more awareness of NCBRS: https://buff.ly/3uj3ZLH... #NCBRSRare 🧡💚💙 Gene People RARE DISEASES INTERNATIONAL RARE Revolution Magazine Healthinote FaceMatch Rare Patient Voice Sanford Research Genetic Alliance UK Beacon for Rare Diseases Patient Worthy Global Genes Dazzle4Rare

When shopping on eBay.co.uk, please make sure to use the link below for every purchase. This helps easyfundraising generate free donations for us! By using the link, you can make regular donations to us at no extra cost to yourself. You don't need to sign up for #EasyFundraising, just use the link every time you shop on eBay. They will track your purchases, and we will receive a donation. To make it even easier, you can bookmark the link and use it each time you shop: * https://lnkd.in/e5EDcY3s ... * Thank you for your support! 🧡💚💙 #NCBRS #NCBRSRare #FreeDonations #GiveBack #eBay

#GlobalNCBRSAwarenessDay is ONE MONTH today, Wednesday October 9th! Save the date and help us raise awareness of #NCBRS within our local and wider communities. Want the latest NCBRS merchandise? Check out our shop to get yours today: https://buff.ly/3Lidd4L... Add our awareness day frame to your social media profile picture/s to help raise awareness of NCBRS and please encourage your friends and family to do so as well: https://buff.ly/3z7Ctb7... Check out our awareness day page for more ways to get involved and raise moelp raise awareness of NCBRS and please encourage your friends and family to do so as well: https://buff.ly/3z7Ctb7... Check out our awareness day page for more ways to get involved and raise more awareness of NCBRS: https://buff.ly/3uj3ZLH... #NCBRSRare 🧡💚💙 Gene People RARE DISEASES INTERNATIONAL RARE Revolution Magazine Healthinote FaceMatch Rare Patient Voice Sanford Research Genetic Alliance UK Beacon for Rare Diseases Patient Worthy Global Genes Dazzle4Rare Asociación Síndrome Nicolaides Baraitser

Gather your friends and family to join us at Cambridge Rare Disease Network (CamRARE)'s #RAREfest24! We're thrilled to be media partners for this vibrant and vital event that puts those affected by #RareDiseases at the heart of the action. Explore talks, hands-on exhibits, art, and films showcasing pioneering research, life-changing tech, and inspiring real-life stories. For more info and FREE tickets, head to https://buff.ly/4dRCdMi 🧡💚💙 #NCBRS #NCBRSRare #Science #Technology #RareDisease #PatientVoice #Advocacy