Health Data Research UK (HDR UK)

MND is a devastating disease affecting the motor neurons in the brain and spinal cord, leading to progressive muscle weakness and paralysis. Despite decades of research, several scientific challenges continue to impede the development of effective therapies for the thousands of people living with MND in the UK. We are proud to be partners of a promising new data catalyst launching today to accelerate research into motor neurone disease. The MND Research Data Catalyst is a new initiative jointly led by Dementias Platform UK (DPUK) and Health Data Research UK (HDR UK) and with major funding from the NIHR (National Institute for Health and Care Research) to accelerate the discovery of new diagnostics, treatments and support better care for MND patients. This will be achieved by harnessing the UK’s trustworthy, large-scale health data infrastructure and fostering collaborative partnerships across the MND research landscape. Find out more: https://zurl.co/RKfR #MND #research #data

The Public Engagement in Data Research Initiative (PEDRI) has collaboratively developed seven draft Best Practice Standards for Public Involvement and Engagement (PIE) in data research and statistics. ➡️ Learn more about the draft standards, how they were developed and what's next: https://hubs.li/Q02J5pFY0

Motor neurone disease (MND) is a devastating condition affecting the motor neurones in the brain and spinal cord, leading to progressive muscle weakness and paralysis. The MND Research Data Catalyst is a new initiative led by HDR UK and Dementias Platform UK, supported by the UK Dementia Research Institute and in partnership with the MND research community. By harnessing the UK’s trustworthy, large-scale health data infrastructure and fostering collaborative partnerships across the MND research landscape, the MND Research Data Catalyst will accelerate the discovery of new diagnostics, treatments and support better care for patients. Find out more: https://hubs.li/Q02HXxTh0

We are excited to have Ayoola Duso join Health Data Research UK (HDR UK) in our Technology Team, as part of this year's #BlackInternProg. 🖥️📊 In our latest blog post, Ayoola shares her interest in data science, as well as insight into the programme and why she got involved. Learn more: https://hubs.li/Q02HNns-0 #HealthData #DataScience

NHS England has partnered with Prostate Cancer Research to launch Prostate Progress, a pioneering research initiative that harnesses the power of NHS secure data environments to revolutionise prostate cancer care.   Watch Stephen Fry, actor and prostate cancer survivor, explains the importance of this initiative: https://lnkd.in/ehs3GZKR   Key features: - The NHS Research Secure Data Environment Network combines pseudonymised clinical data with patient-reported outcomes - Enables researchers to access rich, integrated datasets securely - Potential to accelerate discoveries in treatment and care pathways This project exemplifies how the NHS is innovating to support data-driven research while maintaining the highest standards of data security and patient privacy.   Vin Diwakar, National Director of Transformation at NHS England, states: "The NHS Research Secure Data Environment Network allows us to link data and enable research at a scale not previously possible, while maintaining the highest levels of security."   For researchers and healthcare professionals interested in learning more about this ground breaking approach to data-driven research, visit https://lnkd.in/evef6-be   #PoweredbyNHSData #DataSavesLives #ProstateProgress

🎉 We are delighted to announce that Peter Harrison has been appointed as Deputy Chief Technology Officer of Health Data Research UK (HDR UK). Peter will play an integral leading role in standardising processes, accelerating access, and enhancing the interconnectivity of health data with health records. We are delighted to have you on board, Peter! 👋 Read more: https://hubs.li/Q02HM-t_0 #HealthData #DataScience

📢 We’re excited to announce the launch of our first research Call! Submit your proposals to leverage #biosamples & data catalogued on the EPND Platform. Join a growing community of researchers working to change the future of #neurodegenerative diseases. Successful applicants can receive financial support and will benefit from an array of resources and services, including facilitated access to #neurodegeneration biosamples and #datasets.  Read more and apply! ➡ https://lnkd.in/ednEcEUz Looking for potential collaborators, biosamples and datasets? Discover >70 #neurodegeneration studies across 12 disease areas in the EPND Catalogue, representing more than 240,000 research participants.   Explore the Catalogue ➡ https://lnkd.in/eGcTnUyt   Want to learn more about the application procedure, research requirements and important deadlines for our Call? Read our guidance and FAQs ➡ https://lnkd.in/e9VsrxBm Ready to apply? Download and complete the short application form, and submit to [email protected] by 15 September, 2024. Download the application form ➡ https://lnkd.in/ef2qeBj3 EPND is creating new pathways for collaborative research. Together, we can change the future of #neurodegenerative diseases 🌟 Innovative Health Initiative (IHI) EFPIA - European Federation of Pharmaceutical Industries and Associations Maastricht University University of Leicester Gates Ventures UCB AC Immune Alzheimer Europe Amsterdam UMC Aridhia – Digital Research Environment – DRE BBMRI-ERIC BMD Software Regulatory Science CBG-MEB German Center for Neurodegenerative Diseases (DZNE) IBBL (Integrated BioBank of Luxembourg) The Janssen Pharmaceutical Companies of Johnson & Johnson King's College London CHUV | Lausanne university hospital Lygature Novartis Roche Sanofi Svar Life Science AB SYNAPSE Research Management PartnersTakeda Teva Pharmaceuticals University of Oxford University of Geneva University of Gothenburg University of Luxembourg

We're part of the Public Engagement in Data Research Initiative #PEDRI. Involving organisations working with data and statistics to generate insights that can inform policy and practice. Health Data Research UK (HDR UK) Office for National Statistics Cancer Research UK (CRUK) DARE UK NHS England Research Data Scotland Find out more here: https://lnkd.in/evsfxmyG

"So how exactly did you go from studying Management to working as a Chef to being a Data Scientist?" Short answer: Curiosity Long answer: Curiosity (read ✨passion✨) plus a realisation that earning potential is almost directly related to the perceived difficulty and/or scarcity of the skills you possess. This very non-linear, non-traditional mishmash of skills has brought me to this exact point. What point? You ask. Well, this point of writing this article and eliciting the initial reaction from you reading the first sentence. In other news, my blogpost on hosting the #blackinternprog by Health Data Research UK (HDR UK) is up on https://lnkd.in/ezvvvAYf . Please give it a read and let me know what you think in the comments below. #blackindata #careerchange #yourfavetechsis

Apply now for our latest funding opportunity to recruit up to seven health care Data Partners from different parts of the UK to join the pilot Real-World Evidence network which will be led by Daniel Prieto-Alhambra, University of Oxford. The network will utilise data from multiple UK sources to demonstrate the potential of the Observational Medical Outcomes Partnership (#OMOP) Common Data Model (#CDM) as an enabler of efficient cross-nation research studies. Learn more and apply by 30 August 2024: https://hubs.li/Q02HpkN70