Are you, or someone you know, living with #Sarcoidosis? Have you ever experienced any side effects from steroids used to treat your condition? Help us to identify the harmful effects of steroids and minimise side effects for people living with sarcoidosis in the future! Available in English, French and Dutch. Take part here: https://lnkd.in/gD3sEUgJ Together, we can improve treatments and the quality of life for people living with sarcoidosis.
About us
ELF is a patient-driven organisation that works internationally to bring patients and the public together with healthcare professionals to improve lung health and advance diagnosis, treatment and care. Founded in 2000, ELF works in partnership with the European Respiratory Society (ERS) to develop the union between lung health professionals and patients. Based in Sheffield (UK) and Brussels (Belgium) ELF has grown and developed a core team of specialists and a network of individual patients and patient organisations. ELF works with people from all over the world, including our volunteer patient network of more than 350 people and our patient organisation network with more than 200 respiratory organisations in Europe; working together with people living with more than 40 different lung conditions. Our ethos is openness, inclusiveness and collaboration. We believe in working together to improve lung health.
- Website
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http://www.europeanlung.org
External link for European Lung Foundation
- Industry
- Non-profit Organizations
- Company size
- 11-50 employees
- Headquarters
- Sheffield, England
- Type
- Nonprofit
- Founded
- 2000
Locations
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Primary
Get directions
442 Glossop Road
Sheffield, England S10 2PX, GB
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Get directions
Rue de Trèves 49-51
Brussels, Brussels Region 1040, BE
Employees at European Lung Foundation
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Hans in 't Veen
Longarts Franciscus Gasthuis & Vlietland.
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Vildana Mujkic
Medical and Healthcare Communication Specialist. Healthcare and Patient Advocate. MBA. Founder of AAA Association and Telemedicine platform klinika.ba
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Louise Reecejones
Founder, Trustee and CEO The Local Carers Network Charity based at The Welcome Centre, Birkenhead, Wirral
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Pippa Powell
European Lung Foundation, Director
Updates
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Learn more about our upcoming events and activities in Vienna for ERS Congress, including our annual Patient Organisation Networking Day and some fantastic events linked to the #HealthyLungsForLife campaign. We are excited to offer free lung tests in Vienna at this year's public event, open to everyone looking to learn more about the Healthy Lungs for Life campaign and how to keep your lungs healthy. Not forgetting this year's #TakeTheActiveOption event on 10 September 2024! Learn more: https://lnkd.in/e_i7GhVn European Respiratory Society Lungs Europe
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Are you living with a lung condition, or know someone who is? Do you want to get more involved in research and advocacy? Our European Patient Ambassador Programme (EPAP) gives you the skills and knowledge to become a patient ambassador and help improve care for people living with chronic conditions globally. Now available in 8 languages, it is easier than ever to make a difference. Access our free resources here: https://lnkd.in/enwe7x3b
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6 weeks to go until #ERSCongress2024! Will you be joining us in Vienna, or attending online? Either way, as a Patient Representative, you have the power to make patients’ voices heard within the field of lung health! You could share your knowledge within our annual Patient Organisation Networking Day and contribute to the field of lung health. Or, if exercise is your thing, you could run/walk around the beautiful Vienna Prater and support our #HealthyLungsforLife campaign! Interested? Registration is easy when you follow this link: https://lnkd.in/eribP4MR We hope to see you there!
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There are many factors that can influence our lung health which is why we have created an information hub with resources and advice for keeping lungs healthy. #DidYouKnow air pollution levels are generally higher on hot summer days? You can sign up for air pollution alerts online or on your mobile device to understand the levels in your local area. Visit our website for more information on lung health: https://lnkd.in/eKqsHgm7
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It is time to catch up on the latest news and activities from patient organisations across Europe! Like us, organisations in the network have been celebrating #WorldBronchiectasisDay with events and activities to showcase the latest research and innovations in bronchiectasis. Plus, lots more fundraising and lung health activities happening throughout Europe. Read more in our July Patient Organisation round-up: https://lnkd.in/ePUcceS6
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Introducing AMECA! AMECA is a GPT4 powered robot, joining us in Vienna for #ERSCongress. AMECA will be joined by past ELF Chair, Kjeld Hansen, to answer your questions on lung health. Visit the link to submit your questions now: https://lnkd.in/gzTSmZzT
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This month we spoke with Stefano Aliberti, co-chair of #WBConf24. Stefano shared with us his highlights from the conference, working alongside ELF and his hopes for the future of #bronchiectasis! Read more about Stefano here: https://lnkd.in/egtBDqi6
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European Lung Foundation reposted this
Millions of Europeans need a strong #lunghealth policy to #KeepBreathing 🫁 Our vision: 🍀healthier people, 🪙 agile economies and 🛡️a resilient society, prepared for #health crises. 🔗 Read more and support our action for better lung health in the EU ➡️ https://lnkd.in/esBD73fS
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Our recent recording of #BronchiectasisQuestionTime is now available. Listen to questions from people living with bronchiectasis be answered by our expert panel! Watch the webinar here: https://lnkd.in/etE4Uh2Z
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