Adelphi Values

The Adelphi Values PCO team is excited to share a new publication on qualitative interviews in Ulcerative Colitis. Read the open-access article here: https://lnkd.in/en4Gebvz

We are attending ACCESS EU24 in Barcelona 14 - 16 November. Let us know if you will be there, it would be great to meet.

Adelphi Values Patient-Centered Outcomes will be attending ISPOR EU 2024 in Barcelona! Learn more about our attendees and poster presentations below. #ISPOREurope

The Adelphi Values Patient-Centered Outcomes team recently attended ISOQOL 2024 in Cologne. Join us in reflecting on an excellent conference. #ISOQOL2024

Intersex Awareness Day is honored October 26th, commemorating the first documented public demonstration by the intersex community in the United States, which took place in Boston in 1996. It is now celebrated every year to advocate for the human rights of intersex individuals and bring awareness to the community. “Intersex” is an umbrella term that covers a wide range of differences in sex traits, such as differences in “genitalia, hormones, internal anatomy, or chromosomes” (InterACT). Intersex individuals are often subjected to “attempts to prevent or ‘cure’ intersex differences” (InterACT). As reported by the United Nations Human Rights Office, “intersex children are subjected to repeated surgery and treatment to try to change their sex characteristics and appearance, causing terrible physical, psychological, and emotional pain – and violating their rights.” Intersex Awareness Day serves to raise awareness of these issues in the intersex community and to advocate for intersex individuals’ rights. At Adelphi Values, we aim to incorporate inclusivity and equity into every aspect of our organization. This includes recognizing and bringing awareness to the ongoing fights for justice in marginalized communities. We welcome you to join us in recognizing Intersex Awareness Day by learning more about the intersex community and how you can be an advocate. Please see the list below for further reading. Sources and further reading: -InterACT. (2021). “What is intersex?” InterACT. Retrieved 10/23/2024, from https://lnkd.in/eYarY6f -InterACT. (n.d.). “What is Intersex Awareness Day?” InterACT. Retrieved 10/23/2024, from https://lnkd.in/daY4Xa8 -Intersex Human Rights Australia. (2021). “About the Intersex Day Project.” Intersex Day. Retrieved 10/23/2024, from https://lnkd.in/gpkJUPSx -Intersex Justice Project. (n.d.). “Intersex Activism Resources.” Intersex Justice Project. Retrieved 10/23/2024, from https://lnkd.in/exEuQ9uQ -UN Free & Equal, United Nations Human Rights Office. (n.d.). “Intersex Awareness.” UN Free & Equal. Retrieved 10/23/2024, from https://lnkd.in/ebQbDCYc. 

The Adelphi Values PCO team is excited to share a new publication on patient perspectives of bowel urgency and bowel urgency-related accidents in Ulcerative Colitis and Crohn’s Disease Read the open-access article here: https://lnkd.in/eNw7e8PQ

Celebrated every year during the last full week of October, Ace Week celebrates asexual-spectrum identities and advocates for increased acceptance of the asexual community. Individuals on the asexual spectrum often face marginalization from various aspects of society, and in the realm of healthcare, research has demonstrated additional challenges and vulnerabilities faced by asexual individuals. A study published by Flanagan and Peters (2020) found that asexual individuals often do not feel comfortable disclosing their sexual identity to healthcare providers, and when they do, they run the risk of experiencing misunderstanding and pathologization. Research has also documented minority stress and associated mental health impacts in the asexual community, as with a large cross-sectional study conducted by Lech et al. (2024) showing that asexual-identified individuals had a significantly higher prevalence of depressive symptoms than other participants. Ace Week is a time to push for greater acceptance, understanding, and education around asexual-spectrum identities and communities. At Adelphi Values, we strive to incorporate diversity and inclusivity into all aspects of our work and research. We encourage readers to celebrate and learn more by checking out the resources below! #AceWeek Sources and further reading: - The Ace and Aro Advocacy Project. (2022). “Aro and Ace Healthcare”. The Ace and Aro Advocacy Project. Retrieved 10/17/2024, from https://lnkd.in/exQ7CVi3 - Ace Community Survey Team. (2023). “2021 Ace Community Survey Summary Report.” Retrieved 10/17/2024, from https://lnkd.in/eZGhwQsz - Flanagan SK, Peters HJ. (2020). “Asexual-Identified Adults: Interactions with Health-Care Practitioners.” Archives of Sexual Behavior 49(5):1631-1643. doi:10.1007/s10508-020-01670-6 - Guenzel, L. (2020). “How do we pick Ace Week’s dates?” Ace Week. Retrieved 10/14/2024, from https://lnkd.in/e2qRxrf4 - Langevin, B. (2020). “What is Ace Week?” Ace Week. Retrieved 10/14/2024, from https://lnkd.in/eQA8fz8f - Lech S, Köppe M, Berger M, et al. (2024). “Depressive symptoms among individuals identifying as asexual: a cross-sectional study.” Scientific Reports 14(1):16120. doi:10.1038/s41598-024-66900-6 - McInroy LB, Beaujolais B, Leung VWY, Craig SL, Eaton AD, Austin A. (2022). “Comparing asexual and non-asexual sexual minority adolescents and young adults: stressors, suicidality and mental and behavioural health risk outcomes.” Psychology & Sexuality. 13(2):387-403. doi:10.1080/19419899.2020.1806103 - PFLAG. (n.d.). “Asexual and Aromantic Resources.” PFLAG. Retrieved 10/17/2024, from https://lnkd.in/euvVXB2w

We will be attending ISPOR Europe 2024! We would love for you to visit our booth. #ISPOR2024 #ISPORBarcelona

Congrats Gavin Dickie on this momentous milestone!

Recognized every year on the 3rd Wednesday of October, International Pronouns Day “seeks to make respecting, sharing, and educating about personal pronouns commonplace” (Pronouns.org). Pronouns are used by others to refer to who we are as individuals, and often have gendered connotations. Using someone’s correct personal pronouns is a foundational aspect of treating people with dignity and respect. As an organization dedicated to understanding and uplifting the patient perspective, Adelphi Values believes that recognizing and respecting personal pronouns is a fundamental step in treating others with dignity and promoting belonging and justice. This starts by engaging with individuals with kindness and respect. To this end, members of Adelphi Values’ Diversity, Equity, Inclusivity and Belonging (DEI-B) working group have spearheaded various initiatives promoting respect for others’ gender identity and personal pronouns, including sharing pronouns internally and updating the documents we use to collect patient demographic data so that they contain inclusive and representative options for patients to mark their gender identity. Please join us today in recognizing International Pronouns Day. For sources and further reading, please see the list below. #PronounsDay Sources and further reading: -Human Rights Campaign. (n.d.) “International Pronouns Day.” Human Rights Campaign. Retrieved 10/8/2024, from “https://lnkd.in/eW7Xb9aU. -Pronouns.org. (2024). “International Pronouns Day.” Pronouns.org. Retrieved 10/8/2024, from https://pronouns.org/day. -Roberts, Madeleine. (2020). “Celebrating Our Community this International Pronouns Day.” Human Rights Campaign. Retrieved 10/8/2024, from https://lnkd.in/e95zcbhx. Image source: -Human Rights Campaign. (n.d.) “Why We Ask Each Other Our Pronouns.” Human Rights Campaign. Retrieved 10/8/2024, from https://lnkd.in/ggYsZYaZ.