Ada Lovelace Institute

High-quality, representative data is fundamental to the development and deployment of health systems. Research using – and technological innovations built on – health data can help to solve challenges from the diagnosis of rare diseases to more personalised care pathways.    But what happens when this data does not accurately represent the experience of certain people and groups accessing care? And what does that mean for equitable access to health services? Our report explores these questions through the lens of gender.    Our research found that NHS clinical information systems are not designed to accommodate gender diversity, conflating gender with physiological sex characteristics. Information about gender identity and sex is also recorded differently in different parts of the system.    This could have a number of harmful knock-on effects for transgender and nonbinary people seeking healthcare. It could affect continuity of care. It could also mean they are not treated with dignity and respect. And ultimately, it could lead to invisibility of transgender and nonbinary people in health data.    Read ‘The computer won’t do that’ https://lnkd.in/e8EeAsTG

I recently had the opportunity to give a keynote speech to around 100 practical data leaders – CDOs and CTOs of organisations in the private and public sectors. Having recently started as the new Director of the Ada Lovelace Institute – an independent research institute with the mission to make AI and data work for people and society – I took the opportunity to look across the full spectrum of our work and to draw out the ways leaders in this space can help to make AI work for people and society. My basic premise was that we cannot be ambitious about data and AI without being thoughtful about it first. And that we must expect this same thoughtfulness from suppliers, governments and teams. ---- Thank you to all at #CXODataSummit and for the insightful conversations Charlotte Bemand Johanna Hutchinson Caroline Carruthers Tia Cheang Tiankai Feng Arieh Hoch Noemi Moreno Fabelo Sami Rahman Dan KellettPatrick Giordani Stephanie Gradwell Aurélie Crégut Craig Suckling Luca Zuccoli Marco and others! We really need to understand people's experience 'at the other end of the telescope'

I'll be joined at Labour Party Conference by Ada Lovelace Institute collegues Imogen Parker and Michael Birtwistle - we are sitting on a few panels, attending roundtables and other events. For a flavour of Imogen's work and worldview, I loved this very personal introduction to the Global Government Forum, where she will be curating a regular column that will bring the institute’s emerging thinking and research to civil servants worldwide.

📢We're hiring! We are looking for an Editorial Manager to oversee editorial standards and practice at the Institute, ensuring Ada delivers high-quality, impactful research publications to our various audiences. As Editorial Manager, you will be the expert owner of our editorial and writing standards. Working with the Head of Communications and Content, you will support research teams in creating engaging, impactful publications. You will also own, develop and embed Ada’s editorial processes. Apply to be our new Editorial Manager ⬇️ https://lnkd.in/e2KGu53h Closing: 1 October 2024.

Our new report with Nuffield Council on Bioethics assesses the potential benefits, risks and appropriate role of AI-powered genomic health prediction (AIGHP) in the UK health system. While AIGHP could have some benefits within healthcare, there are significant risks concerning privacy and discrimination, as well as structural and societal problems that could emerge from its widespread roll-out for prevention at the population-level. The risks and concerns highlighted in the report relate to scientific uncertainty about the effectiveness of the emerging technology, privacy risks around the use of sensitive personal data on a mass scale, new forms of genetic discrimination (particularly in the context of health insurance), structural challenges surrounding NHS adoption of new technologies and a lack of evidence on public attitudes towards use of the technology. Read our full report, including recommendations for policymakers: https://lnkd.in/eN3q3hJi

Register now for the launch of our report with Nuffield Council on Bioethics assessing the potential, risks and appropriate role of AI-powered genomic health prediction in the UK health system. 📅 Wednesday 11 September 🕔 5-7pm Confirmed speakers: Grace Browne, independent journalist covering health, science and medicine Anneke Lucassen, Professor of Genomic Medicine and Director of Centre for Personalised Medicine Arzoo Ahmed, Director of Ethics, Our Future Health UK Professor Sarah C-Burley, Chair of Nuffield Council on Bioethics Harry Farmer, Senior Researcher, Ada Lovelace Institute https://lnkd.in/ef97D8eb

Register now for the launch of our report with Nuffield Council on Bioethics assessing the potential, risks and appropriate role of AI-powered genomic health prediction in the UK health system. 📅 Wednesday 11 September 🕔 5-7pm Confirmed speakers: Grace Browne, independent journalist covering health, science and medicine Anneke Lucassen, Professor of Genomic Medicine and Director of Centre for Personalised Medicine Arzoo Ahmed, Director of Ethics, Our Future Health UK Professor Sarah C-Burley, Chair of Nuffield Council on Bioethics Harry Farmer, Senior Researcher, Ada Lovelace Institute https://lnkd.in/ef97D8eb

📢Closing in 1 week! Apply to be Ada's new UK Public Policy Lead, a varied role that sits at the intersection of policy research, public policy, law and regulation, and public affairs.

From privacy and data to labour rights protections, corporate leaders are grappling with ways to embrace AI whilst navigating potential risk. 💼 What lessons, frameworks and strategies can businesses adopt to build trustworthy AI? Join us on 23 October at Trust Conference to find out from a truly impressive line-up of speakers: ️️🎙️ Mariagrazia Squicciarini, UNESCO 🎙️ Diana Zamora, Mastercard 🎙️ Andrew Pakes MP 🎙️ Wendy Hui Kyong Chun, Simon Fraser University 🎙️ Andrew Strait, Ada Lovelace Institute https://bit.ly/3WQlwuH #TC2024

The development of advanced 'AI assistants' is seen as a logical next step for major technology companies, following significant investment in foundation models. There has been considerable buzz following announcements by companies like Google, Meta, Microsoft, Anthropic and OpenAI to create AI assistants that mediate the entire user experience of their products. Some of these AI assistants are being marketed as ‘smart interns,’ capable of carrying out any number of general and administrative tasks. Others have been developed for a specific purpose like providing mental health care, legal advice or companionship. Our blog post looks at how this new generation of AI assistants distinguishes itself from systems like Apple’s Siri or Amazon’s Alexa, and how our legal and policy landscape should adapt to address any challenges presented by their introduction. https://lnkd.in/euY6KfFn