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ABC Global Alliance
Hospitais e atividades de atenção à saúde humana
We are a multi-stakeholder platform for all those interested in collaborating on projects relating to ABC worldwide.
Sobre nós
The ABC Global Alliance, registered as a non-profit association in Portugal, is a multi-stakeholder platform for all those interested in collaborating on common projects relating to advanced breast cancer (ABC) around the world. We are made up of people and organisations who are committed to develop, promote and support tangible improvements that will ultimately create awareness and actions that will improve and extend the lives of patients living with ABC worldwide. Our goal is to raise awareness of ABC and lobby worldwide for the improvement of the lives of ABC patients and to fight for a cure.
- Site
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https://www.abcglobalalliance.org/
Link externo para ABC Global Alliance
- Setor
- Hospitais e atividades de atenção à saúde humana
- Tamanho da empresa
- 2-10 funcionários
- Sede
- Lisbon
- Tipo
- Sem fins lucrativos
- Fundada em
- 2019
- Especializações
- Healthcare, Association, Oncology, Cancer, Breast Cancer, Advanced Cancer, Patient Advocacy, Healthcare policies, Non Profit, Cancer patients rights, Reducing inequalities, Research, innovation and digitalisation e Quality of life
Localidades
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Principal
c/o Fundação Champalimaud, Avenida de Brasília s/n
Lisbon, 1400-038, PT
Funcionários da ABC Global Alliance
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Kyle Srinivasan
Collaborating with the global breast cancer community to strategically advise on how to humanize healthcare in the interest of people living with…
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Vicki Durston
Director of Policy & Advocacy | Health Leader | International Board Director, Advanced Breast Cancer President of the General Assembly | Amateur…
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João Mouta
Medical Oncologist, family man, proud father (x2) | Principal Global Medical Leader - Breast and Gynecological Cancers (Roche)
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Simão Pinto Torres
Medical Oncologist
Atualizações
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Generally, cancer registries around the world only collect information about initial cancer diagnoses and mortality. Most do not document cancer recurrences that represent the majority of ABC cases and therefore it is currently unknown how many patients with ABC exist. ⚠️⚠️⚠️
YOU DESERVE TO BE COUNTED. #MAKEMECOUNT Breast cancer awareness month is here. Every October, the media cycle and public focus shifts ever so briefly to our cause and that can bring on a mix of emotions for our community, our team sure feels it, myself, too. “Yay” that we are being seen and talked about. But “ouch” when the story is full of gaps. And that’s a big part of why we launched #MakeMeCount today. That juxtaposition between the general public’s perceptions of breast cancer and the reality of the community’s experiences can be quite jarring and exposes the gaps. The dominant breast cancer story has a lot of gaps because our cancer data has gaps. It’s incomplete. It’s reported on at too high a level. We don’t know how many Black women are diagnosed in Canada. We don’t know how Indigenous communities are impacted. We don’t have data on outcomes for sexual and gender diverse groups. We don’t know how disabilities or income play a role in someone’s care. Vesna is someone who had a metastatic recurrence and she, too, is not counted. Only her first early-stage breast cancer diagnosis is captured in the stats. Her past 7.5 years of MBC treatment aren’t captured. Watch her video below. We can guess at who is having worse outcomes and why, but guessing isn’t good enough. Rethink wants more human dimensions to be counted in the data. Because you count when you’re counted. With #MakeMeCount, we are calling out the need for improved reporting on metastatic recurrence data, race-based data, and social determinants of health data within the breast cancer community. Head to the 🔗 below to sign our petition today and watch the videos of our “stat stars” to learn more about the real people who are impacted by these gaps. For more on why this campaign matters, our history of working on these issues and what actions we’re taking, MJ, Rethink’s Founder Executive Director has written a blog, which you can read via the 🔗 below too. 👉 https://lnkd.in/eQSPXhK3 Thank you for your support in using your voice to help close these gaps. 💗 #MakeMeCount 🏷️ #breastcancer #breastcancercommunity #metastaticbreastcancer #mbc #cancerdata #breastcancerawarenessmonth #breastcancercharity #cancercharity #canceradvocate #canceradvocacy #breastcanceradvocacy #rethinkbreastcancer
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🌍✨ An incredible group of experts from all over the world are gathering today in Lisbon to help us reflect on the progress made over the past decade and to revitalize the ABC Global Charter. Together, we are shaping the future of action for change in the field of #advancedbreastcancer for the next ten years (2025-2035). 💗 #BreastCancerAwareness #DecadeReport #ActABC 👉https://lnkd.in/djFFfDis
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Family life can be upended when a parent has MBC and discussing it with your kids can feel tricky. “The Adventure Jar: A Story of Magic for Families Living with Metastatic Breast Cancer” explores the everyday magic that can still be possible when families come together, even in times of inevitable change, uncertainty and disappointment. Find more and download the ebook: https://lnkd.in/gsYfiJR7. 305 Pink Pack
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We are organizing a webinar open to all stakeholders interested in learning more on implementation of cancer medicine programs in Low- and Middle-income Countries (LMICs) with The Max Foundation Do not forget to register here 👉 https://lnkd.in/dfRuchMb
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Amplifying voices, sharing realities. On #InternationalPodcastDay, we highlight the "Our MBC Life", by SHARE Cancer Support. This is a podcast dedicated to exploring life with metastatic breast cancer from the perspective the people living with this disease and the experts who partner with them to help make their lives better.
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Don't miss tomorrow's live webinar "Breast cancer highlights from the ESMO Congress 2024" with the discussant Shani Paluch-Shimon and the experts Fatima Cardoso and Nadia Harbeck. Access here: https://lnkd.in/dqsyEj64.
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Low-income and vulnerable communities face many barriers to accessing cancer and recovery care. The 305 Pink Pack , serving a largely Hispanic population in South Florida, provides a range of services aimed at reducing these barriers and improving equity in care and recovery, including childcare, transportation, self-care services and emotional support. Find more: https://lnkd.in/eR39uBVX.
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We are organizing a webinar open to all stakeholders interested in learning more on implementation of cancer medicine programs in Low- and Middle-income Countries (LMICs) with The Max Foundation Save the date and register here 👉 https://lnkd.in/dfRuchMb
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Breast cancer is the most common cancer worldwide and leading cause of cancer death among women disproportionately affecting individuals in low- and middle-income countries. A heartfelt thank you to World Health Organization's Global Breast Cancer Initiative for including the advamced breast cancer perspective in this crucial initiative. Fatima Cardoso