Global Heart Hub

All together for the implementation of an action plan for cerebro-cardiovascular diseases, which encompasses not only prevention but also improving the quality of life and disease management of survivors/patients. Thank you Global Heart Hub for the invitation! It's time to act 🤛🏻 #GHH #PatientAdvocacy #StrokeSurvivor #PatientEngagement #LifeAfterStroke #CardiovascularDisease #InvisibleNation Anu Gomanju, BPH, MA, MPH in Global Health Michael George Neil Johnson Paula Vital Maura Murphy Natasja Wijling Konstantina Boumaki Aistė Štaraitė Celina Gorre Diana Castillo Ellen Ross Kina Latrice L. Chloe Greene Valéria Fernandes Lucas Xavier Annie Faherty Costelloe Rhonda Monroe David Kelly Patricia Tiramani Joanna Ten-Kate Joanna Perkowska Karen Padilla Karen McGarty Teresa Glynn Olive Fenton

Great few days at Global Heart Hub’s Unite Annual Summit. So inspiring to meet so many patients, patient advocates and organisations and hear first hand how their individual or national battles have spurred them to drive change for others. From the US, Europe, Latin America, Asia to Africa, #CVD - a preventable disease - continues to impact the lives of millions of people. Many of whom are so young. No matter where you are though gender disparities, access and the burden of CVD on health systems are very real. Athough, often much more complex and challenging in countries where health system gaps are incredibly wide. As I am learning, we’re all potential patients. So if you haven’t already checked yourself recently or checked in on your loved ones, please do. 🙏🏽❤️ On behalf of the Asia-Pacific Cardiovascular Disease Alliance, thank you to the Global Heart Hub team for bringing the patient community from across the world together! 🌍🌎🌏 🤝 #GHHUnite

Celina Gorre and the team at WomenHeart: The National Coalition for Women with Heart Disease are great collaborators. It is a privilege to represent the National Forum for Heart Disease & Stroke Prevention and join Celina, Sue Koob Martha Gulati, and 165 other colleagues from 34 countries at #GHHUnite in #Dublin. Countries in North America, South America, Europe, Africa, and Oceania share many challenges: * Heart disease and stroke are the #1 killer or close to it * Every country under-invests in prevention — doesn’t matter whether they’re high income, middle income, or low income * Every country or region is challenged to strengthen the vital conditions for health and wellbeing (#SDOH) * Women do not receive cardiovascular medical care on par with men, e.g., women receive guideline-directed care less frequently than men * Every region struggles with coordinating the prevention of heart disease and linked conditions, e.g., diabetes, kidney disease, and mental health * People, ie patients, in every country face access to care barriers It has been exciting to learn from and strategize with one another to empower people (patients) to have fair opportunities to attain health. Congratulations to the Global Heart Hub for organizing and leading a dynamic, highly productive convening. Thanks to AstraZeneca, Boehringer Ingelheim, Faites la, Daiichi Sankyo Europe GmbH, Edwards Lifesciences, MSD, Novartis, Novo Nordisk, Roche, and Servier, whose sponsorships made the meeting possible. Nicholas Uzl Luther T Clark Rhoyge Traylor, MBA

Such amazing learnings directly from patients and providers at #GHHUnite. Dr. Martha Gulati shares data on disparities in cardiac care in women, including TAVR. Global Heart Hub WomenHeart Neil Johnson Heart Valve Voice UK Preventive Cardiac Nurses Association Mended Hearts Celina Gorre Heart Valve Voice Canada Heart Valve Voice US

An insightful 2-days here in Dublin with the Global Heart Hub Unite Summit. It was an honour again to represent Heart Support Australia amongst the 165 delegates from 34 countries around the world. 🌏 It was great to see so many patient organisations brought together from across the globe to unify the patient voice and drive improved policy to address CVD globally. Thank you Neil Johnson and the Global Heart Hub team for another successful summit and for uniting the patient voice globally 🇮🇪❤️

Recently, I had the privilege to represent the Heart Health India Foundation at the Unite Annual Summit (#GHHUnite) organized by the Global Heart Hub. Held in Dublin, Ireland, this year's gathering felt like a symphony of unity, with a shared mission to deepen our understanding of cardiovascular disease (CVD) and its interconnected conditions, including stroke, diabetes, kidney disease, and obesity. The summit’s overarching theme, "Connections," "Unity," "Teamwork," and "Harmony," was beautifully depicted through an orchestra (Quatuor Annesci), where each member contributed to a seamless, collective performance. Just as every instrument plays a distinct yet complementary role, each participant—be it patient advocate, healthcare provider, or industry leader—brought unique strengths that harmonized into a unified vision for improved cardiovascular care. This orchestration of voices and expertise resonated deeply, symbolizing the power of collaboration in achieving a shared purpose. This is how healthcare should be approached: interconnected, unified, and patient-centered. Key takeaways: Empowering patients who are partners in healing process; Healthcare often operates in silos, but our bodies don’t; they need a holistic approach; Cultivating hope is vital, as it bridges the isolation patients often feel; Creating hub and spoke models, where specialists from different fields collaborate at the grassroots level, ensures patients receive seamless care; Political, financial, and emotional investments in healthcare are crucial; Industry, Insurance, and Care Providers must think of “purpose with profit". The power of voice—to advocate, connect, and inspire—was a key lesson from this summit. In the fight against CVD and related conditions, every voice matters. This summit reinforced that by speaking up, we create a supportive network that validates every patient’s experience. True healthcare isn’t just about treatments; it’s about building a world where every patient feels seen, valued, and heard. Thank you Global Heart Hub and the sponsors for organizing this harmonious summit. Dr. Ratna Devi, Ram Khandelwal, Neil Johnson, Joanna Ten-Kate, @David Kelly, Teresa Glynn, Rhoyge Traylor, MBA, Christina Holton Moloney, Apoorva Gomber, Juliet Smyth, @Sandra Sa, John Clymer, @Hannah K. #GHHUnite, #Partnership, #Harmony, #OneFamily, #Connections, #CardiovascularCare, #PatientAdvocacy, #GlobalHealth, #CardiovascularHealth, #PatientCentricCare #OneWorldOneHeart, #GlobalHealthCommunity #StrongerHearts

Segundo e último dia do 4° Annual Unite Summit da @globalhearthub Ontem tivemos a oportunidade de compartilhar nosso cenário brasileiro com pessoas do mundo todo. Ouvir histórias e perceber que não estamos sozinhos na luta por uma saúde mais digna para a população. Cada país com sua história, mas todos pela mesma luta. A troca de informações engrandece nosso trabalho. Pegamos exemplos de cases de sucesso para nos inspirar e inspiramos a muitos com nosso trabalho, projetos, campanhas e ideias. Hoje, os temas de destaque foram: - Abordando as diferenças para pessoas que vivem com múltiplas condições - Perspectivas de Gênero, socio-econômicas e de Países de Renda Baixa e Média-Baixa. O cenário de saúde cardiovascular da mulher como um problema global foi destaque nesse painel, bem como a dificuldade de acesso à saude na Africa. Contamos com a presença da Dra. Ariane Vieira Scarlatelli Macedo, MD, MHS, PhD do nosso comitê científico palestrando sobre as perspectivas sócio-econômicas. - Experiências reais de diferenças e inclusões. Ouvimos pessoas que convivem com doenças cardiovasculares e diabetes contando histórias inacreditáveis de muita luta, mas também de muito preconceito e desigualdade. Inspirando todos a olharem para as necessidades reais da jornada do paciente, com a perspectiva do ser humano e não da doença. - Workshop: otimizar um sistema de saúde não projetado para pacientes com múltiplas condições. Em grupo, conseguimos debater a realidade de cada pais, compartilhar ideias de mudanças reais e o que é necessário ser feito para que eles aconteçam. Voltamos para o Brasil cheio de informações, bagagem, novas histórias e com a certeza de que temos muito trabalho pela frente. Com muito orgulho de cada passo dado. Obrigada @globalHeartHub e todos que estiveram ali presentes. #SaudedoCoracao #LadoaLadopelaVida #CVD #GHHUnite Marlene Oliveira Paula Vital Diana Wong Ramos Neil Johnson Michael George Elena Gallego Díez-Canseco Cecilia Salvador Celina Gorre Jens Naeumann Dimple Natali Orajitt Bumrungskulswat Dr. Ratna Devi Mandy Sandkuhler Alberto Colangelo Annie Faherty Costelloe WomenHeart: The National Coalition for Women with Heart Disease Mended Hearts Europe hearts4heart Valéria Fernandes

At the Global Heart Hub #GHHUnite Summit listening to the insights from people with the lived experience of NCDs. It's important to realise that healthcare needs to be informed by those living with illnesses. It is also important to understand that patients and patient advocates need to also look outside the healthcare setting and inform policy changes at a government level too.

4 Unite Annual Summit 2024 właśnie się zakończył, a emocje po tym wyjątkowym wydarzeniu pozostają nadal żywe. Przez trzy dni mieliśmy okazję uczestniczyć w inspirujących panelach dyskusyjnych, warsztatach, i spotkaniach, które zgromadziły liderów, ekspertów i przedstawicieli organizacji pacjentów z całego świata. To była wyjątkowa okazja do wymiany doświadczeń, dzielenia się najlepszymi praktykami oraz wspólnego wypracowywania nowych rozwiązań, które mogą zmienić życie pacjentów z chorobami serca na lepsze. Szczególne podziękowania należą się organizatorom tego niezwykłego wydarzenia – Neil Johnson Aistė Štaraitė David Kelly Joanna Ten-Kate Karen Padilla Karen McGarty oraz wszystkim członkom zespołu Global Heart Hub, którzy poświęcili ogrom pracy i zaangażowania, by Summit mógł się odbyć. Dziękujemy Wam za profesjonalizm, pasję i otwartość na potrzeby pacjentów. Summit był także czasem nawiązywania nowych przyjaźni i wzmacniania istniejących więzi. Spotkania z partnerami i przyjaciółmi z różnych krajów przypomniały nam, jak ważna jest współpraca międzynarodowa i wspólne działania na rzecz pacjentów. Każde spotkanie, każda rozmowa były dowodem na to, że razem możemy osiągnąć więcej i wyznaczać nowe standardy w opiece zdrowotnej. Dziękuję wszystkim uczestnikom za ich wkład i zaangażowanie. #GHHUnite

It was a true honor to represent the Young Leaders in Diabetes of the International Diabetes Federation at the Global Heart Hub - Unite Summit in Dublin. Now more than ever, I'm convinced that care for people living with NCDs must be holistic. Whether addressing heart conditions or diabetes, our focus must be on the person as a whole, not solely on their health condition. Strong health systems, with access to the best technology and medications, are essential to ensure that individuals can live without limitations imposed by their condition. I was also delighted to share the stage with such influential health advocates as Rhonda Monroe, Apoorva Gomber, and Anu Gomanju, BPH, MA, MPH in Global Health. It’s encouraging to see the growing commitment to including diabetes in global health policies and guidelines—a crucial step toward a more inclusive and accessible future in healthcare.